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Resources on the Internet for People With Multiple Sclerosis ( PWMS ) January 15, 2000

Resources on the Internet for People With Multiple Sclerosis ( PWMS ) January 15, 2000.

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Resources on the Internet for People With Multiple Sclerosis ( PWMS ) January 15, 2000

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  1. Resourceson theInternetforPeople With Multiple Sclerosis(PWMS)January 15, 2000

  2. SpeakerMr. Brian Johnson, ret. MS 1994http://users.AceLink.Net/MrRockyDogemail: RockyDog@AceLink.NetAnnual Meeting of the Middle Tennessee Chapter of the National Multiple Sclerosis SocietyNashville, Tennessee

  3. Agenda • Resources • Resources For PWMS • Resources For PWMS (and other people too) • Basic (& Free) Tools • Some Government Resources • Where to go? • Thank You & Questions

  4. Resources?("One man's trash is another man's treasure.") The Center for Earthquake Research and Information at The University of Memphishas a unique resource for the public. You can find and get a map of all the earthquakes occurring around the New Madrid fault area for any given period of time. This is a map of all of the earthquakes that have occurred since we moved to Nashville May 1, 1995.

  5. Resources?("One man's trash is another man's treasure.") But is this a resource for PWMS? There Were only 289 Events (about 5 Every Month for the last 56 months.Care to watch?

  6. Resources?("This is for the Dadman, a.k.a., Larry Cravetz. Thanks!!!") MS Watch is a superb new site for people with M.S. and their health care providers. Loaded with resources, tools, messaging, personal stories, medical updates, and much more. It is an invaluable resource for clients and professionals.The above description was written by F. Alexander Brejcha You should also check out Dadman's & Alexander's Links!!!! How about a refrigerator door?Many other PWMS have started making their own sites and telling their own story. Maybe you will too!

  7. Some Starting Points • Search Engines: • AltaVista - Get Free Internet Access There Now! • Ask Jeeves - You can just ask a question. • Inference Find! - Home Page and Resource Center There are now hundreds of search engines to choose from. Find the one that is the easiest for you to use.

  8. Resources For PWMS Must-see sites for PWMS for resources: World of Multiple Sclerosis National Multiple Sclerosis Society Middle Tennessee Chapter of the NMSS

  9. Resources For PWMS • International MS Support Foundation • MS Societies, Associations, & Foundations • Web Pages, News Groups, Chat Forums • Private Email, Mail Lists, Bulletin Boards • Video & Audio Shows • Webraries, Drug Indexes, Doctors • Games, Music, Videos, Museums Now let's take them one at a time!

  10. Resources For PWMS International MS Support Foundation The IMSSF was founded in Tucson, AZ in 1996 by Jean Sumption, Director. The IMSSF is unique in the fact that it is run and directed by people with Multiple Sclerosis. Jean Sumption's nursing background and experience with MS have proven valuable and insightful tools in the administration of the program. The IMSSF is independent of all other Multiple Sclerosis organizations. It's worth a visit IMHO.

  11. Resources For PWMS • MS Societies - Now that the MS Society is over 50, there are many chapters online. • Associations - Associations have sprung up to meet other support needs for PWMS. • Foundations - Imagine a world without help. Foundations are another resource for help for PWMS.

  12. Resources For PWMS • Web Pages - There is now a ring of websites, linked together, regarding MS. • News Groups - A NG is an ongoing discussion area for collective support. • Chat Forums - There are many MS chat forums. I've listed only one. • Drug Search Engines - For when you need more information about a drug and its use.

  13. Resources For PWMS • Private Email - Jooly's Joint is noted as a good network and Webpal (Email Pal) service for all of the people who live with Multiple Sclerosis worldwide. • Mail Lists - A Mail List relays a subscriber's email to the list out to everyone else who subscribes to the list. • Bulletin Boards - On a BB you can post your thoughts and questions. Maybe there's someone who can give you an answer.

  14. Resources For PWMS • Video - The NMSS website has now added video presentations you can access. Currently the lead story in Inside MS, MS Gender Research. What will they do next? • Not a resource, but our own MS 150 Bike Tour has one, too! Back 2 Jack 1999 • Audio Shows - You can listen to various talks about MS. Hear Dr. Randall Schapiro talk about "Fifty Years Of MS."

  15. Resources For PWMS • Webraries - Webrary Links pages consist of links to the more useful reference and informational web sites, organized by subject according to Dewey Decimal System call numbers. • Drug Indexes - Easy to use "Sounds Like" searches for registered drugs (old & new). Now you can also even look up alternative medicines info. • Doctors - This is a website where you can look up Doctors by State, City and Specialty. Not all doctors are listed, but many are!

  16. Resources For PWMS(and other people too!) • Games - Sometimes mindlessness is nice. • Music - Real Audio's index to Music on the net. Get ready for the next Live event! • Videos - Ever want to read a review or see the trailer of a movie you want to go see? • Museums - The Smithsonian is the museum of the United States. Follow their links to almost any museum in the world!

  17. Some More Resources For PWMS(and other people too) Newspapers For a listing of newspapers online from ALL over the World The Tennesseanis the local Nashville Paper. TV Stations or try www.(your local station).com Radio Stations Over 7,500 stations are online today. Maps & Driving Direction Get directions from where you are to where you want to go today. Even Bill Gates can't do better!

  18. Disability Resources For PWMS(and other people too) Brejcha Personal and Disability Resource Site F. Alexander Brejcha has MS and has built a Mega-List of Disability & MS resources. (He's also a member of the MS Web Ring!) I mentioned him earlier too! National Council on Disabilities This site has links to other federal agencies where you can find information about disabilities. WebABLE! The authoritative Web directory for disability-related internet resources.

  19. Disability Resources For PWMS(and other people too) Abledata The National Institute on Disability and Rehabilitation Research - U.S. Department of Education Assistive Technology On-LineGo to their AT On-Line Main Menu and get ready for information overload following the links! Handicaps, Inc. They make some products for the disabled, but they also have a very nice links page.

  20. Some Fun Resources For PWMS(and other people too) Some Comic Strips Of course there are more. The link above is to the King Features comics. Other places you can go to include Dilbert and my favorite, Doonesbury. Try finding some you like! Greeting Cards Send them for all occasions. Sometimes it gets hard to go out and buy a card when you need them. If your friends are online you can send one to them. Hobbies Got to do something in your spare time! Ever wanted something to do? These guys have a search page where you enter your zip code and they'll tell you where their closest stores are!

  21. Some Home Resources For PWMS(and other people too) • Home Improvement Encyclopedias with animation from Better Homes & Garden. • Grocery Store Coupons to use the next time you go to the store to buy food. • ALL-4-FREE STUFF that you can get with minimal hassle and disclosure. • Shareware Fonts for your word processor to use. Many different types for evaluation. • Star Office 5.1, from Sun Microsystems, gives you basically everything that is in MS Office, but Sun gives it away now for free. It even has a Java Based Browser, too.

  22. Basic Web Tools • Web Browser - A software package that interprets and displays the content of web documents and files. These are free. • Mosaic • Netscape Communicator • MS Internet Explorer • Plug Ins - Utility software that provides additional capabilities for the browser to have extended capabilities.

  23. Free Web Tools • Netscape Plug Ins - • Smart Update - A service from Netscape that looks at the components you have and lets you select which free plug in you may want to add. • Internet Explorer Plug Ins - • Windows Technologies - A similar service from Microsoft that detects what you have and offers free software updates.

  24. Free Helpful Tools AOL Instant Messenger (AIM)(ICQ & Others offer similar services) • AIM is now a standard add-in package for Netscape. If you use AOL, you have it already. • A Buddy is anyone who has installed and registered this FREE software and chosen a "screen name" to use. • A great way to stay in touch with your friends and relatives. Now you can invite multiple people to join in one Chat session. You can even exchange files with your friends.

  25. More Free Helpful Tools • Adobe Reader - Free software for reading PDF files (print definition format). Many places put their literature in PDF for easy transfer (IRS & SSA). • Real Player - You can watch the news, listen to music, even watch cartoons, too! • PKWare - Software for compressing and decompressing large files for faster transmission (down/upload) time. • WinAmp - A free program for playing MP3 files on your computer (a new file format for music).

  26. A Very Helpful Tool • Willow Talk - A Text to Speech software package for web browsers and more!! This is a handy tool that will read web pages (and documents) to you. You will need to customize its speaking dictionary so that MS reads as "em ess" instead of Microsoft. You can read any document that's in a Windows-based application. You can download a free demo of the product to see if it is of any help to you before you buy it from their website, or send for it.

  27. Government Resources For PWMS(and other people too) Government Places On The Net! • The White House - Take a guided Tour! • Federal Agencies & Commissions • The Senate • The House of Representatives • State of Tennessee's Website - Find yours! • Nashville City Government - Find yours! • Vote Smart - You can find all of your elected reps here and how they have voted in the past!

  28. Getting There If you're new to World Wide Web then perhaps you should Learn The Web. It's a good site to learn more about the internet. A good way to get around on the web is by following a link from one site to the next. As you find sites that you like, Bookmark (NS) them or add them to your Favorites (MS IE) list so you can easily return to that site again. Every site you visit will provide a link to another site somewhere else. Go Where . . .

  29. Now That You're There Where do I find places to go? Many magazines provide links on a regular basis. Ask your friends! Explore with Search Engines (remember?) How can I trust the information there? Buyer Beware! Knowing who is providing the information gives you an advantage. You should comparative browse for information new to you. The web is fast becoming the Embodiment of ALL human knowledge. Even YOU can contribute.

  30. Thank You Any Questions? Mr. Rocky Dog Thanks You, Too!

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