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Overview of Public Forums in Raising Continence Awareness for the Middle East

Overview of Public Forums in Raising Continence Awareness for the Middle East. Diane K. Newman, RNC, MSN, CRNP, FAAN Co-director, Penn Center for Continence and Pelvic Health Division of Urology Instructor, School of Medicine University of Pennsylvania Philadelphia, Pennsylvania, USA.

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Overview of Public Forums in Raising Continence Awareness for the Middle East

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  1. Overview of Public Forums in Raising Continence Awareness for the Middle East Diane K. Newman, RNC, MSN, CRNP, FAAN Co-director, Penn Center for Continence and Pelvic Health Division of Urology Instructor, School of Medicine University of Pennsylvania Philadelphia, Pennsylvania, USA

  2. Diane K. NewmanChairpersonContinence Promotion Committee (CPC)

  3. Urinary Incontinence A Hidden Condition • Nearly two thirds of patients are symptomatic for 2 years before seeking treatment • Many self-manage by voiding frequently, reducing fluid intake, and wearing absorbent products • Perceived as low priority by some primary care providers •  50% question patients about UI/Overactive bladder • Only 40% of patients who do ask for help get treatment suggestions • Result: UI is under-reported and under-treated (Ricci, et.al., 2003)

  4. Screening for IncontinenceTerminology • Understood • Bladder Health • Bladder Control • Leakage • Wetting • Poor Bowel or Bladder Control • Overactive Bladder • Not understood • Incontinence • Continence • Detrusor overactivity • Anal incontinence • Sphincter incompetence What are they? Symptoms, syndromes, diseases?

  5. Factors Influencing Access to Continence Services BARRIERS OPPORTUNITIES Attitudes toAging and Health Beliefs About Causesof Incontinence MediaInfluences Reactions ofIncontinence IndependentManagementof Incontinence Contact withPrimary Care Not Seeking Help Accessing CommunityContinence Services (Horrocks, et al 2004)

  6. Strategies to Raise Continence Awareness throughout the World

  7. International Continence Society (ICS)Continence Promotion Committee (CPC) • Principal aims: • Identify opportunities for networking across various countries • Increase awareness amongst ICS members of continence related issues • Facilitate development of continence organisations • Facilitate interchange of information about continence awareness and promotion • Identify opportunities for continence prevention strategies.

  8. National Organizations - 200842 Organizations in 33 Countries • AUSTRALIA • BRAZIL • COLOMBIA • FRANCE • INDIA • ITALY (2) • MALAYSIA • NEW ZEALAND • POLAND • SWEDEN • THAILAND • AUSTRIA • CANADA • CZECH REPUBLIC • HUNGARY • INDONESIA • JAPAN • MEXICO • NORWAY • SINGAPORE • SWITZERLAND • UK (3) • BELGIUM • CHINA (Hong Kong) • DENMARK • GERMANY • ISRAEL • KOREA • NETHERLANDS (4) • PHILIPPINES • SPAIN • TAIWAN • USA (4)

  9. Public ForumContinence Promotion Committee of the ICS • 2 global initiatives: • Public Forum • To be held in conjunction with the annual ICS meeting • Worldwide Continence Day

  10. Public Forum Strategy to Raise Continence Awareness throughout the World

  11. What is a Public Forum? • A “public meeting place for open discussion” • Dates back to the Romans • Used the public square or marketplace as an assembly place for judicial activity • Now a medium for open discussion or voicing of ideas • Usually involves a public meeting • Presentation or a discussion among experts and often including audience participation.

  12. Public ForumObjectives • Provide the general public with information about urinary incontinence. • Provide newly formed organizations with a “ICS/CPC Public Forum”model for use in their individual country Assist national organizations with patient advocacy programs • Foster collaboration among National Organizations • Increase the ICS’s profile with the public

  13. Public Forum • Opportunity for the CPC and the ICS to raise awareness and discuss subjects relevant to the area of Continence Awareness

  14. Public Forum • Mission • Blueprint – standardization of the Public Forum model for use by CPCs • Promote interaction between ICS organization and public to raise Public (end-user) Awareness • Bladder • Bowel ??

  15. CPC Public Forum • Purpose • “Raise Continence Awareness” • Empower people to take control of their bladder • Drive pts to providers • Involve pts • Learn about pts concerns - “stories” • Link ICS professional mtg with country • Increase ICS professionals interaction/involvement with public/pt

  16. Public ForumTarget Audience • Consumers/public • Patients • Professionals • Carers (caregivers) • Public officials • Providers (doctors, nurses, physios) 2007 CPC Rotterdam Public Forum

  17. Building the AgendaUSA-National Association For Continence • LUT and Pelvic Floor • The Female vs. Male Bladder • My Story……. • Getting Diagnosed • OAB/Nocturia • Bowel Health • Breakout Groups on SUI & FSD and Male SUI & ED

  18. Public ForumBudget • Expenses • Advertisement • Hall rental • Refreshments • Funding-Revenue • Charge a modest “ticket-price” to consumers • Donations • ICS stipend

  19. Forum Specifics • Title - Examples • You and your bladder • Incontinence- what to do? • Is your bladder in charge of your life • Is your bladder your boss?

  20. Public Forum Specifics • Advertisement • Format • Speakers 2007 CPC Rotterdam Public Forum

  21. Public Forum Specifics Advertisement • To Whom??? • Place on ICS & CPC website, local organ. website, mtg website • Flyer emailed to organizations • Local Advertising in radio, newspapers • Flyer/brochure/poster to: • Organizations • Pharmacists/GPs/Gyns/Midwives • Women’s groups/senior/residential centers • Industry contacts • Hospitals – Wellness programs??

  22. 2007 Rotterdam Public Forum Brochure Native Language

  23. Public Forum • Announcements • Newspaper • Local/daily paper • Senior papers/journals • Ladies magazines • Health/sports newspapers/sections • Radio Announcement

  24. Public Forum SpecificsPress Conferences • ICS Announces Public Forum @ press events • Flyer in “press map” announcing forum • Article developed (press release)-distribution to the press

  25. Public Forum Specifics • Format • Moderator • Volunteer -Local Official Welcome • Public - Local medical TV woman • Program • Date, Day of Week, Length

  26. Public Forum Speakers • Urologist/gynecologist Speakers • Experience with consumer audiences • Warm and energetic personality • Credentials that can be understood and appreciated • Diversity of skill sets (and perspectives) 2007 CPC Rotterdam Public Forum

  27. Public Forum Specifics • Continence nurse • Conservative/lifestyle changes • Management of urine

  28. Public Forum Specifics • Patient presenter • Personal story

  29. Public Forum Specifics • Extras • Refreshments • Beverages & cookies • Door prizes • Can they be awarded • Give aways 2007 CPC Rotterdam Public Forum

  30. Public Forum Specifics • Provide for exhibits and plenty of interaction • Product Display • Local industry • Product Manufacturers • Local Organizations 2007 CPC Rotterdam Public ForumIndustry Table Tops

  31. 2008 CairoPublic ForumFriday, October 24th

  32. THANK YOU Diane K. NewmanChairpersonContinence Promotion Committee (CPC)

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