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Personal Health Information Management in the Virtual Home A New Taxonomy for a New Perspective Technologies to Engage Consumers in Information Management S04. Catherine Arnott Smith, PhD Yuqi He, MLIS Gail Casper, RN, PhD University of Wisconsin-Madison Twitter: #AMIA2017. Disclosure.
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Personal Health Information Management in the Virtual Home • A New Taxonomy for a New Perspective Technologies to Engage Consumers in Information Management S04 Catherine Arnott Smith, PhD Yuqi He, MLIS Gail Casper, RN, PhD University of Wisconsin-Madison Twitter: #AMIA2017
Disclosure • The authors have no relevant relationships with commercial interests to disclose. AMIA 2017 | amia.org
Learning Objectives • After participating in this session the learner should be better able to: • Distinguish between different types of knowledge representation for investigation, analysis and classification of patient-work tasks in nonclinical spaces, like the home. AMIA 2017 | amia.org
Outline • Description of vizHOME project • The patient work context • The vizHOME house • Taxonomy development • Results • Discussion AMIA 2017 | amia.org
vizHOME • 5-year project (AHRQ R01HS022548) • www.vizhome.org/about • PHIM practices in the home via VR • LiDAR scanning six-sided CAVE • 20 homes AMIA 2017 | amia.org
Patient work • “The larger context of life” (Mickelson et al. 2015) • Focus of literature: • Behavior • Not tools or context • Spaces of performance are important • PHIM: broad range of behaviors • Recording, organizing, acting on, storing, retrieving, coordinating… • Information related to health and health care AMIA 2017 | amia.org
vizHOME house • Four home types • Unmodified homes, in natural state • Reference set of 20 households • Catalog of PHIM tasks performed • See Brennan et al., 2015 • Expert walkthroughs of CAVE • 47 assessments • 71 features supporting PHIM • Objects (Bed, backpack) • Spaces (Kitchen, bathroom) AMIA 2017 | amia.org
Taxonomy development • UMLS (2015AB) • 38% of features covered by 9 source vocabularies • Maximum in SNOMED: 20% AMIA 2017 | amia.org
Art & Architecture Thesaurus AMIA 2017 | amia.org
Results • 86% household features present in AAT (exact or modified) • 14% exclusively healthcare-related • https://www.ecri.org/components/UMDNS AMIA 2017 | amia.org
Discussion • General, not purpose-built, required • Existing systems focus on behavior • Without context • Pillboxes • Sofa • Steps • Toilet • Context required for the home! AMIA 2017 | amia.org
Works cited • Brennan PF, Ponto K, Casper G, Tredinnick R, Broecker M. Virtualizing living and working spaces: Proof of concept for a biomedical space-replication methodology. J Biomed Inf 2015: 57:53-61.] • Mickelson RS, Willis M, Holden RJ. Medication-related cognitive artifacts used by older adults with heart failure. Health Pol Tech 2015: 4:387-398. AMIA 2017 | amia.org
Thank you! Email me at: Catherine.arnott.smith@wisc.edu
AMIA is the professional home for more than 5,400 informatics professionals, representing frontline clinicians, researchers, public health experts and educators who bring meaning to data, manage information and generate new knowledge across the research and healthcare enterprise. AMIA 2017 | amia.org