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One Vision, One Voice: Palliative Care Community of Practice

A model for the relief of suffering and improvement of quality of life for infants, children, and adults with chronic and life-threatening conditions. This community aims to integrate palliative care into all specialties of nursing practice through education, support, and networking.

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One Vision, One Voice: Palliative Care Community of Practice

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  1. One Vision, One Voice:Palliative Care Community of Practice

  2. The Team • Dr. Karen L. Spencer, Ed.D Purposeful Development Associates • Dr. Cynda Rushton, DNSc, RN Institute for Johns Hopkins Nursing • Susan Hanley Dell Professional Services

  3. Palliative Care • “A model for the relief of suffering and the improvement of quality of life across the spectrum of illness” • Applies to infants, children and adults with chronic and life threatening conditions

  4. Does the Cure Have to Look Like This?

  5. Where We Are • Palliative and curative care challenges us to move beyond the “serial processing” of curative care then palliative care

  6. Where we want to be: Integration Norms of practice that provide for the “parallel processing” of curative and palliative care.

  7. Where we want to be:Culture Change • Decision making that spans an interdisciplinary team • Includes patients and families • Focuses on cure AND quality of life

  8. The Nursing Leadership Academy for End-Of-Life Care The Approach • Educate nurse leaders in strategies of planning and managing organizational change and advocacy initiatives related to palliative & end-of-life care • Create a system of support, networking, and mentoring integrate palliative care into all specialties of nursing practice

  9. The Nursing Leadership Academy for End-Of-Life Care Impact • 44 national nursing specialty organizations • More than 600,000 nurses represented by Academy participants

  10. WHAT TO DO WHEN THE FUNDING DRIES UP? COMMUNITYOF PRACTICE

  11. Technology Enables Community • Find and make connections with one another • Share best practices • Solve problems • Create enhanced meaning from their work • Provide support for the care giver • Find key resources

  12. Connecting Academy Members

  13. REWARDS • THE WORK CONTINUES • MORE SELF RESPONSIBILITY • SENSE OF ACCOMPLISHMENT

  14. CHALLENGES • GETTING PEOPLE ON LINE • CONTRIBUTIONS TO KEEP SITE LIVELY • FACE TO FACE TIME • FUNDING

  15. Technology Platform • Windows Server 2003 • Windows SharePoint Services • SQL Server 2000 Standard

  16. Partnering for Success

  17. (Public website) Contact Information Dr. Karen L. Spencer 410 730 8605 PurposefulD@aol.com

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