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Rocky Mountain Multiple Sclerosis Center Tissue Bank

Rocky Mountain Multiple Sclerosis Center Tissue Bank. Brain Donation Program A Legacy of Hope. Rocky Mountain Multiple Sclerosis Center Tissue Bank.

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Rocky Mountain Multiple Sclerosis Center Tissue Bank

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  1. Rocky Mountain Multiple Sclerosis Center Tissue Bank Brain Donation Program A Legacy of Hope

  2. Rocky Mountain Multiple Sclerosis Center Tissue Bank The Rocky Mountain MS Center was established in 1976 procuring, processing, preserving, and distributing MS autopsy material to research laboratories involved in multiple sclerosis research.

  3. Using the Tissue Bank programbrain tissue, the Center serves as a bridge to help MS scientists who are searching for the cause.

  4. WHY DO RESEARCHERS NEED POSTMORTEM TISSUE? “The only model for human disease is human disease.”

  5. Participation in theTissue Bank Program will help advance human research which could lead to diagnostic markers for early detection, treatments and possible cures for individuals suffering from multiple sclerosis.

  6. What is the Purpose of a Brain Donation? Even with improved clinical research methods such as genetic linkage studies or PET and CAT scans, MRI (NMR) and other imaging techniques, our understanding of the biochemistry of the brain is best achieved through the use of postmortem human brain tissue.

  7. WHO CAN DONATE? Any legally competent adult can donate their brain, just as they can donate any other organ. Those who are incompetent, or otherwise unable to sign, may provisionally donate through their guardian.

  8. HOW DO I BECOME A DONOR? Simply complete, sign, and return the Organ Donation Permit and Authorization to Release Medical Information forms. You can download the forms from our website or contact us and we can have them mailed to you. Rocky Mountain MS Center Tissue Bank

  9. HOW CAN MY SURVIVORS DETERMINE WHO IS NEXT-OF-KIN The hierarchy of legal relationships is fairly consistent from state to state. Generally, all legal guardianships, powers of attorney, and other court-appointed relationships end at death. The surviving legal next-of-kin is the first to fulfill one of the following requirements. Spouse (unless divorced or legally separated) Eldest adult child (if more than one, all should be in agreement) Parent Eldest sibling (if more than one, all should be agreement) Other relative (niece, nephew, grandchild, etc. Executor of estate if already appointed.

  10. It is simple for interested individuals to enroll asDonor Members. We also advise that the Donor Member inform ALL members of family of their intentions to donate to donate to research. It is important that the NEXT OF KIN of the Donor Member agree to this as we must get their permission in order to remove the tissue at the time of donor’s death.

  11. POSSIBLITES OF DONATING MY OTHER ORGANS Because exact cause of MS is unknown, kidneys or other organs as well as any tissues such as bones can not be donated for transplantation purposes. There are nonprofit and for profit organizations that take whole bodies for educational and research. We can usually work with them to obtain the brain and spinal cord and they keep the remainder of the body.

  12. What Procedures Must Be Followed at the Time of Death? Donor Coordinator must be notified immediately. Telephonic informed consent is obtained from next of kin. Tissue should be removed within 4 hours after death. Donor Coordinator arranges for the removal of the tissue by licensed pathologist or pathology assistant. Donor Coordinator must arrange for tissue specimen to be sent to our center. After the tissue is removed, the body is released to the funeral home or mortuary for funeral arrangements.

  13. MUST THE DONOR BE TRANSPORTED TO THE CENTER? The Donor does not have to be transported to our Center. The brain and other tissue is removed at a facility in close proximity to the donor’s death. Only the tissue authorized in the donation are sent to the Center.

  14. IS THERE ANY EXPENSE? • The Center pays for the • tissue removal • transportation of specimen to our Center • if necessary use of facility where tissue is removed.

  15. HOW THE CENTER CAN HELP YOU. Families of donors may obtain the microscopic examination of tissues called the "neuropathology report," which supports or negates the clinical diagnosis

  16. Rocky Mountain Multiple Sclerosis Center Tissue Bank How to contact Donor Coordinator Phone: (303) 788-4030 ext 110 Fax: (303) 788-5418 • Mail request for Donor Enrollment Packet to: • Rocky Mountain Multiple Sclerosis Center • Attn: Tissue Bank • 701 E. Hampden Ave., Ste. 420 • Englewood, CO 80113 To Report a Death: Page the Donor Coordinator at (303) 649-6602

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