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March of Dimes Perinatal Data Center: Communicating Maternal and Infant Health Information

March of Dimes Perinatal Data Center: Communicating Maternal and Infant Health Information. Michael J. Davidoff March of Dimes Perinatal Data Center. March of Dimes. 1938 to Present. Founded 1938: National Foundation for Infantile Paralysis

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March of Dimes Perinatal Data Center: Communicating Maternal and Infant Health Information

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  1. March of Dimes Perinatal Data Center: Communicating Maternal and Infant Health Information Michael J. Davidoff March of Dimes Perinatal Data Center

  2. March of Dimes 1938 to Present • Founded 1938: National Foundation for Infantile Paralysis • Today: 52 chapters; 281 divisions; Over 3 million volunteers • Mission: • Improve the health of babies by preventing birth defects, premature birth, and infant mortality • Advanced through: • Research • Community Service • Consumer/Professional Education • Advocacy • Polio to Prematurity

  3. Polio Incidence 1949 Put U.S. Map here Footnotes Sources

  4. March of Dimes Prematurity Campaign Preterm is less than 37 completed weeks gestation. Source: National Center for Health Statistics, final natality data. Retrieved June 1, 2006, from www.marchofdimes.com/peristats.

  5. March of Dimes Prematurity Campaign • Multiyear, multimillion-dollar research, awareness and education campaign to help families have healthier babies. • Raise awareness of the problems of prematurity and reduce the rate of premature birth in accordance with the U.S. Public Health Service Healthy People 2010 objective. • Partners: AAP, ACOG, AWHONN

  6. March of Dimes Perinatal Data Center: Overview • Internal epidemiology group (3FT, 3PT, PAC) • Goal: To provide • (1) relevant and timely maternal/infant health data; • (2) the resources/technical support to use the information effectively. • Audience: • March of Dimes Staff and Volunteers • Health Professionals (perinatal researchers, clinicians, policy makers, health departments, students) • Media

  7. March of Dimes Perinatal Data Center: Services and Research • Small Analysis Projects • Approximately 40 requests per month • e.g. Chapter grants • e.g. External researchers applying for grants • e.g. Media • Methodological questions • Epidemiologic Research • NCHS Vital Statistics • Hospital Discharge Data (HCUP - AHRQ) • State Vital Statistics • Insurance companies (e.g. Kaiser Permanente)

  8. Obstetrics and Gynecology January 2003

  9. Obstetrics and Gynecology February 2005

  10. Seminars in Perinatology March 2006

  11. March of Dimes Informatics www.marchofdimes.com/peristats

  12. March of Dimes PeriStats Overview • Launch: • September 2001 • August 2004 • Response to need for geographic-specific data • US, state, county and city maternal & infant health data • Quick access to information: • 60,000 graphs, maps and tables • 40,000 automated bullet descriptions

  13. March of Dimes PeriStats Data Sources • Centers for Disease Control and Prevention • National Center for Health Statistics • National Center for Chronic Disease Prevention and Health Promotion (e.g. BRFSS) • National Center for HIV, STD, and TB Prevention • US Bureau of the Census • National Newborn Screening and Genetics Resource Center • Centers for Medicare and Medicaid Services • Health Resources and Services Administration • Substance Abuse and Mental Health Services Administration • National Governors Association • United States Department of Agriculture

  14. March of Dimes PeriStats Data Inclusion Criteria • Importance to field of maternal and infant health • Reliability of data and data collection methodology • Availability of data for a majority of states • Ability to regularly acquire and maintain updates

  15. Birth rates Distribution of births Timing of prenatal care Adequacy of prenatal care Low Birthweight Preterm birth Plurality Delivery Method Folic acid March of Dimes PeriStats Data Available • Infant mortality rates • Age at death • Cause of death • Population • Substance use • Sexually transmitted diseases • Health Insurance • Newborn Screening • Neural tube defects Stratified Race/Ethnicity, Maternal Age, Plurality

  16. March of Dimes PeriStats Demonstration www.marchofdimes.com/peristats

  17. Closing Remarks • Importance of vital records • PeriStats: A starting point • Chapter Program Services Committees • Research collaborations – Linkages • Methodological challenges

  18. Contact Information Michael J. Davidoff Manager, Informatics Research/Development March of Dimes Perinatal Data Center Phone: 914-997-4549 Email: mdavidoff@marchofdimes.com

  19. Presentation Outline • March of Dimes Background • March of Dimes Perinatal Data Center • Epidemiologic research/interpretation • PeriStats Web site demonstration

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