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Disease Cluster Investigation “Legal issues” group presentation

Disease Cluster Investigation “Legal issues” group presentation. Lewinda Knowles (Waterloo Region) Monica Bienefeld (Toronto) Naomi Kasman (York Region) Elizabeth Rael (Ministry Liaison). Introduction. Formation of the APHEO Working Group Legal sub-group tasks/issues What we did:

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Disease Cluster Investigation “Legal issues” group presentation

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  1. Disease Cluster Investigation “Legal issues” group presentation Lewinda Knowles (Waterloo Region) Monica Bienefeld (Toronto) Naomi Kasman (York Region) Elizabeth Rael (Ministry Liaison)

  2. Introduction • Formation of the APHEO Working Group • Legal sub-group tasks/issues • What we did: • Develop better understanding of legal context • Develop ideas for better functioning within current legal context

  3. Outline of legislative context • Consultation with PHU lawyers and information session NB: Consultations did not constitute “legal advice” • See handouts provided (not to be shared electronically) • Our understanding of legal context: • HICs • Prescribed entities • Etc…

  4. Possible options for going further… • Pursue options available for data sharing e.g. through PHPDB • Develop a standardized research protocol that can be “pre-approved” e.g. get REB approval one time • Use GIS and other web-based tools for access, such as in CCO’s current funding proposal. • Also, Ministries (MOHLTC & MHP) are exploring the options available

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