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FAMILY SUPPORT AND THE DONATION DISCUSSION

Introduction. Cross cultural perspectivesFamily centered careOverview :Preliminary MentionRe-opening the Donation Discussion. California Transplant Donor Network . Cross cultural perspectives. CTDN's commitment to creating a culturally neutral model of careGuarding against ethnocen

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FAMILY SUPPORT AND THE DONATION DISCUSSION

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    1. FAMILY SUPPORT AND THE DONATION DISCUSSION PRELIMINARY MENTION AND RE-OPENING THE DONATION DISCUSSION Johanna Castro, MSW Family Resource Coordinator CALIFORNIA TRANSPLANT DONOR NETWORK Š California Transplant Donor Network

    2. Introduction Cross cultural perspectives Family centered care Overview : Preliminary Mention Re-opening the Donation Discussion Š California Transplant Donor Network

    3. Cross cultural perspectives CTDN’s commitment to creating a culturally neutral model of care Guarding against ethnocentrism Adopting cultural humility No assumptions – no judgments! Openness to all input … Š California Transplant Donor Network

    4. Family Centered Care What is family centered care in action? Š California Transplant Donor Network

    5. Family Care and Donation A simple definition The role of CTDN staff is to ensure that families have the opportunity to have a fully informed decision making process This requires: timeliness and Sensitivity Š California Transplant Donor Network

    6. Fundamental belief Families need and deserve the opportunity to stabilize their cognitive and psychological functioning prior to being offered information about donation Š California Transplant Donor Network

    7. We know how to assure this We recruited experienced social workers We performed qualitative analysis of best practices (defined by family satisfaction as well as consent rates) We incorporated principles from Grief theory (especially Acute Grief) Crisis Intervention theory Š California Transplant Donor Network

    8. Philosophy and Protocols We adopted Guiding Principles that put the family first We developed a Family Care Sequence that prioritizes support and stabilization of the family prior to the donation discussion Š California Transplant Donor Network

    9. The CTDN Sequence of Care Six flexible steps: 1 Communication 2 Beginning Family Support 3 Brain Death Discussion 4 Coping with Loss 5 Donation Discussion 6 Aftercare for All Families Š California Transplant Donor Network

    10. Why the emphasis on stages and slowing things down? The cognitive functioning of grieving families The early “no” to donation is often associated with denial about the death of their loved one Even the early “yes” is not an informed decision Maslow says so …! physiological; safety; social; respect; ”actualization” Š California Transplant Donor Network

    11. Maslow’s Theoretical Model (1943)

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