INSTITUTE FOR PATIENT- AND FAMILY-CENTERED CARE Joanna Kaufman, RN, MS Information Specialist

2. INSTITUTE FOR PATIENT- AND FAMILY-CENTERED CARE Joanna Kaufman, RN, MS Information Specialist jkaufman@ipfcc.org 301-652-0281

3. Patient- and Family-Centered Care — What is it? Patient- and family-centered care is working with, rather than doing to or for.

4. Patients and Families: • Bring important perspectives about the experience of care. • Teach how systems really work. • Inspire and energize staff. • Keep staff honest and grounded in reality. • Provide timely feedback and ideas. • Are partners in Safety and Quality

6. Patient- and Family-Centered Principles • People are treated with respect and dignity. • Health care providers communicate and share complete and unbiased information with patients and families in ways that are affirming and useful.

7. Patient- and Family-Centered Principles • Individuals and families build on their strengths through participation in experiences that enhance control and independence. • Collaboration among patients, families, and providers occurs in policy and program development and professional education, as well as in the delivery of care.

8. Institute of Medicine • Health care should be based on continuous healing relationships. • Care should be individualized. • It is important for patients to be involved in their own care decisions. • Patients and families should have improved access to information. • Health care should become more transparent.

9. Something to think about • What Can I Do What Can I Do?

10. -Families can certainly assist with this • Coler-Goldwater Specialty Hospital and Nursing Facility modified and expanded the Institute for Healthcare Improvement's inpatient ventilator bundle for use in the long-term acute care setting. • Key elements of the modified bundle include early and ongoing evaluation for weaning, pulmonary and dental evaluations, head-of-bed elevation, peptic ulcer disease and deep vein thrombosis prophylaxis, and comprehensive oral care. • Pre- and post-implementation analyses suggest that the program has reduced the incidence of ventilator-associated pneumonia by 58 percent, which, in turn, has led to a decline in the overall facility pneumonia rate and use of antibiotics. • Families can certainly assist with this

11. Beth Israel Deaconess Hospital • The U.S. Department of Health and Human Services (HHS) named BIDMC among the first-ever awardees in the National Awards Program to Recognize Progress in Eliminating Healthcare-Associated Infections. The awards focus on central line infections and ventilator-associated pneumonia, two of the deadliest and most expensive hospital-acquired infections.

12. Beth Israel-con’t • The award recognizes the efforts of the staff of BIDMC’s nine ICUs to develop “person-centered critical care.” Their work includes the creation of a Patient- and Family-Advisory Committee that had input into quality improvement projects, including ideas related to decreasing VAP

13. SOME EXAMPLES Dana Farber Cancer Institute Cincinnati Children’s Hospital University of Pittsburgh Medical Center University of Washington, Seattle Anne Arundel Medical Center

14. Thank you