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Shared Lives: unlocking the potential Anna McEwen Director of support & development Shared Lives Plus www.SharedLivesPlus.org.uk. Kent Shared Lives . Karl and Clare with Shared Lives carers Blossom and Mike, at their wedding, before moving to live independently. Who are we?.
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Shared Lives: unlocking the potential Anna McEwen Director of support & development Shared Lives Plus www.SharedLivesPlus.org.uk Kent Shared Lives Karl and Clare with Shared Lives carers Blossom and Mike, at their wedding, before moving to live independently
Who are we? Shared Lives Plus is the UK network for family-based and small-scale ways of supporting adults. Our members are Shared Lives carers and workers & Homeshareprogrammes. Shared Lives Plus was established in 1992 and has 5,000 members UK-wide. Shared Lives is used by 12,000 people UK-wide. Community Catalysts: our sister Community Interest Company.
Personalisation • Shared Lives offers a highly personalised alternative solution to housing, care and support needs for older and disabled people. • Shared Lives gives people the opportunity to share family and community life. • A great service does not guarantee a great life. • A good life usually involves choosing and contributing to relationships, families and community. • White Paper highlights Shared Lives and micro-enterprise as routes to prevention, well-being, inclusive communities.
Sharing home and family life. • The carer’s house feels like a family home and the model is to share home and family life, through living together or visiting the Shared Lives carer, as well as spending time together out in the community. • Organised by 150 registered local schemes who recruit, train, support and monitor Shared Lives carers.
The matching process • Participants are matched into real relationships. • The matching process is the key to the relationship. • Matching can take time, but pays dividends in exceptionally stable relationships and added value. • Providing short breaks as well as long term support helps with matching and achieving early returns on investment. “There’s a huge gap between what carers receive as payment and what the individual receives as a service.” “The whole village is helping – but in a natural way.”
Paul and Sheila Paul, 50, moved in with Shared Lives carer, Sheila and family in Birmingham. He bought his first bicycle and enjoys bike rides with Sheila and her husband, who have helped Paul become a visible and popular member of the community. He knows people like local shopkeepers by name and Sheila encourages everyone to ‘look out for Paul’. Paul has learned to use public transport and cross roads safelyand he can now walk unaided in his community for the first time. Paul doesn't have a lot of speech, but when asked what 'independent' means, he smiles and says 'walk'. Other stories: the Parker family (the Telegraph): http://goo.gl/gM3Iq; Nigel and Stephen (the Guardian) http://bit.ly/eqritE
The role of the scheme. • The scheme recruits, trains, approves, supports & monitors local Shared Lives carers and steps in if the match ends. • The registered manager of the scheme is ultimately responsible for quality and safety of care. CQC inspect. • Shared Lives carer is self-employed, not employed by the service user (who may use personal budget/ Direct Payment). • The role of the scheme is vital to ensure matching, safeguarding, continuity of care (a ‘plan B’) and that arrangements comply with care, housing, insurance and tax regulations and requirements.
No ‘clocking on and off’: Shared Lives support is flexible and not paid by the hour. Mixing paid and unpaid care and support contributions. Not a professional/client transaction: a real relationship, formed after an extensive matching process. Moving away from the ‘gift model’: everyone contributes. Shared Lives: unique personalised features Shared Lives Unpaid family care Professional paid hourly care Befriending Homeshare
Shared Lives: outcomes ‘Firsts’ for 500 individuals using Shared Lives: • 35% learned a household task • First ever holiday: 30% (UK) 16% (abroad) • First boyfriend/girlfriend: 12% • 26% joined a club not exclusively for disabled people. • 34% of service users had made five or more new friends.
Shared Livesfunding • The payment to a long term Shared Lives carer is: • An accommodation payment (from housing benefit) • Payment for board & utilities (from person’s benefits). Typical: £40 p.w. • Payment for care (from social care budget). £150-450pw. Av. £240pw • Cost of service to council: • Payments to carers for care, including cost of 28 days (minimum) breaks (less any contribution under Fairer Charging) • Cost of any day services / support • Scheme costs (range from £90-£125 pw), including: • One coordinator per 25 long term arrangements (more short breaks) • Recruiting, vetting, training, approving, supporting carers • Marketing, overheads etc • Shared Lives carers are self-employed and get a tax break.
Shared Lives: short breaks • Rose is Vera’s daughter, and she cares for Vera full time within her own home • Rose needs support and breaks • Neither keen on a day centre • Wanted flexibility - where Vera can go for a few hours or a few days Shared Lives South West http://sharedlivessw.org.uk Shared Lives South West
Shared Lives: day support ASA Lincolnshire: At Home Day Resource • Day support in the Shared Lives carer’s home and the local community. • Matching process ensures provider and client compatible. • A Shared Lives carer supports up to 3 people at a time. • Maintaining skills: cooking, gardening, eating together. • Consistent, familiar setting. • A break for family carers (carer’s grant funded). See also article on the Falkirk Time to Share: http://bit.ly/9I50Ki.
Shared Lives vital statistics • In England in 2012/13 over 9660 people were being supported in Shared Lives arrangements, half of which were long term arrangements, by 6,700 Shared Lives carers. • In Wales: 512 Shared Lives households, support 751 different individuals via 1,423 support arrangements. • In Scotland: 550 Shared Lives carers support 1130 people. • In N. Ireland: 200 Shared Lives carers support 154 people. • This adds up to just under 12,000 people supported in UK. • 150 independent local schemes, of which around 80% are run by councils, 20% (and rising) by the Third Sector.
Shared Lives vital statistics In England, primary (not sole) reason for support: • 7710 are people of all ages with learning disabilities • 820 are people with mental health issues • 310 have dementia or another age-related condition • 280 are people with physical disabilities Age: 6720 Shared Lives carers: • 4403 providing long term support, and an additional • 2317 solely providing breaks and day support
Shared Lives savings in three local authorities in 2013 • • Average net savings from a long-term Shared Lives arrangement per-person per year are £26,000 (learning disabilities) and £8,000 (mental health). • • Expanding a scheme by 75 arrangements (50 for people with learning disabilities; 25 mental health needs), requires • around £250,000 of up-front investment and should generate savings of c£1.5 million pa once capacity reached. • Source Social Finance Shared Lives July 2013
Regional variation: • Yorkshire & Humbs = 0.9% of eligible people, compared to 0.2% East of England. • Yorkshire and Humbs: 30% of Shared Lives arrangements are for over 65s, but in the North East, this is only 2.1%.
Shared Lives vital statistics • Sheffield supports 2% of the total number of people over 65. If all areas caught up: 17,200 moreolder people supported. • Hampshire supports 9% of supported adults with learning disabilities. If all areas caught up: 5300 more people. • Sheffield supports 2% of people with mental health issues. If all areas caught up: 4500 more people would be supported. • If all areas caught up with the best: Shared Lives would grow to 36,000 people. • This would generate a (cashable) saving of £147,500,000.
Shared Lives savings • Mary, 63 lived in a care home for 17 years. • Now settled in Shared Lives with the South Tyneside scheme. • Her health and appearance have improved. More active andaccesses GPs and dentist, overcoming a childhood fear. • She has two work-related placements at a lunch club and a local café andan NVQ level 2 qualification in care. At college she studies cookery and independent living. • No longer needs Community Nursing. • Mary sees herself as ‘part of the family’. Accessesadditional benefits. New clothes & enjoys holidays with hercarer. • South Tyneside council saves £6500 pa, plus Mary’s reduced use of community health services.
Shared Lives savings • ‘Alan’, 22, South Tyneside. Asperger’s Syndrome, alcoholism. • Family care broke down, then series of expensive residential placements. Deteriorating behaviour. • “I hate it here and want to get out”. • Health professionals worried about risks of family home setting. • Matching process: ‘get-togethers’, overnight then weekend stays, week-long stay. • Alan is settled. “I want to stay here for the rest of my life.” • Community education classes, leisure centres, aiming for work placement. • Saving: £49,000 per annum (£965 per week).
Comparing Shared Lives & employing / living with a PA Shared Lives isn’t for everyone, but should always be offered.
Contact details West Wales Adult Placement Anna McEwen Director of Support & Development Shared Lives Plus anna@sharedlivesplus.org.uk 07525 234698 www.SharedLivesPlus.org.uk