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Personal Health Information Task Force. Introduction. The ACADIE-BATHURST Health Authority (ABHA) as well as all other RHAs have been struggling to conform to existing privacy legislation (POPIA)
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Introduction • The ACADIE-BATHURST Health Authority (ABHA) as well as all other RHAs have been struggling to conform to existing privacy legislation (POPIA) • The ABHA has put in place a multidisciplinary Information Management Committee chaired by the Chief Privacy Officer (CPO) to develop and execute the IM Strategic Plan that addresses conformity to POPIA • Presentation to concentrate on areas that have become major obstacles for the ABHA in achieving that
Scope of Legislation • should apply to both recorded and unrecorded information • must apply across the continuum of care • if 2 entities are under different legislation it is very difficult to manage the exchange of information • One Person One Record vision involves all interveners and to all types of information • should override the other 20+ Acts that relate to health information
Consent • Implied knowledgeable consent should be the “standard” • Individuals have normal expectations of how their information will be used and shared in the delivery of care to them (ex. Information desk, family members calling for information) • Express consent should be required for any secondary use of health information
Collection, Use and Disclosure • Legislation needs to address the use of health information in populating provincial registries (ex. provincial Electronic Health Record, Common Client Registry, etc…) • Should be noted that the disclosure of non-identifiable aggregate data can have a negative impact on an individual
Collection, Use and Disclosure • Legislation needs to address to what extent an individuals health information can be used and shared, without express consent, for administrative purposes • Legislation needs to be clear how institutions are required to interact with law enforcement agencies and/or the courts and its officers
Conclusion • Health Information Legislation should take into consideration not only the normal expectations of individuals and their families, but it must also not deter the workflow of the caregivers in providing efficient and effective health care. • Government must be prepared to financially support institutions to conform to new legislation