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NPSDD and the measure of activity and participation (MAP): employment data

NPSDD and the measure of activity and participation (MAP): employment data. Sarah Craig and Anne Doyle, Health Research Board. Structure of presentation. Introduction to the National Physical and Sensory Disability Database (NPSDD) Outline of information collected

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NPSDD and the measure of activity and participation (MAP): employment data

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  1. NPSDD and the measure of activity and participation (MAP): employment data Sarah Craig and Anne Doyle, Health Research Board.

  2. Structure of presentation • Introduction to the National Physical and Sensory Disability Database (NPSDD) • Outline of information collected • Overview of the Measure of Activity and Participation (MAP) • Benefits of MAP • Data on employment and participation • Future developments

  3. The NPSDD • Established in 2002 as a service planning tool • Managed by HRB for the DOH • Captures information on current and future need for specialist disability services • Circa 25,000 people

  4. Purpose of NPSDD • Improve accuracy of planning data • Guide future service development • Registration Criteria: • Have a persistent physical and/or sensory or speech/language disability • Less than 66 years of age • Receiving or requiring specialised health and personal social services • Have consented to being on the database

  5. Service user details Therapeutic/rehabilitation services Personal assistance and support Technical aids and appliances Type of disability (physical, visual, hearing, speech and language) Diagnosis Measure of activity and participation (added in 2004) >16 years only 12,444 respondents (2010 data) What is collected?

  6. Measure of Activity and Participation (MAP) • Three broad areas based on WHO’s ICF: • Barriers & challenges • Participation • Extent of restriction • WHODAS II • Difficulties experienced in day to day living

  7. Barriers and challenges • Physical environment • Services, support and information • People’s attitudes • Transport • Laws and entitlements • Income • Climate/weather

  8. Barriers and challenges, NPSDD, 2010

  9. Participation restriction • Education and training • Employment • Community/family life • Shopping • Leisure/sports • Services

  10. % Participation restriction 2010

  11. WHODAS II • WHO Disability Assessment Schedule II • Concentrating • Learning a new task • Standing/walking/washing/getting dressed • Day to day work/school • Community life/dealing with people • Emotional impact of disability

  12. % who experienced difficulty WHODAS II, 2010

  13. Benefits of MAP • Distinguishes different levels of functioning which may be better indicator of health care needs than diagnosis • Holistic view of disability – ICF • Could assist with move to individualised budgets

  14. Benefits of MAP ctd. • Move away from impairment-based interventions • Determines impact of service on functioning/participation • Facilitates communication across disciplines (e.g therapists)

  15. MAP and comprehensive employment strategy • Remove disincentives and benefit traps, and make work pay • Ensure that people with disabilities are equipped to compete for today’s and tomorrow’s jobs • Improve retention in employment • Ensure that programmes of education, training and employment meet the needs of all people with disabilities

  16. Numbers on NPSDD in employment 2010

  17. Linking MAP data to service interventions • MAP provides scope to monitor impact of services on participation in employment • Possibility to track over time • Greater focus on outcome of the interventions

  18. Restriction in participation, NPSDD 2010

  19. Participation restriction by PA use/need, 2010

  20. The future? • Capture of data for those <16 years • Work to ensure that all cases on the NPSDD are up-to-date • Mainstream use of MAP (e.g. HSE Service Plan)

  21. Questions? Thank you scraig@hrb.ie www.hrb.ie

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