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Congresses Education Care standards Research and scientific activities Communication

Commission on European Affairs Report - July 2007. Congresses Education Care standards Research and scientific activities Communication. European Congress on Epileptology ECE. Dublin 1996 Warsaw 1998 Florence 2000 Madrid 2002 Vienna 2004

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Congresses Education Care standards Research and scientific activities Communication

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  1. Commission on European Affairs Report - July 2007 • Congresses • Education • Care standards • Research and scientific activities • Communication

  2. European Congress on Epileptology ECE • Dublin 1996 • Warsaw 1998 • Florence 2000 • Madrid 2002 • Vienna 2004 • Helsinki 2006 • Berlin 2008 • Rhodos 2010 • ???? 2012 Post Congress Satellite in St Petersburg Co-organisation Germany / Israel Selection process to be started Jan 2008 Call for expression of interest from Chapters

  3. Commission on European Affairs Report - July 2007 • European Congress outcome - Evaluations • Registrations • Abstracts • Scientific programme • Sponsorship • Expanditures • Surpluses CEA budget CEA and EAC activities

  4. Commission on European Affairs Report - July 2007

  5. Commission on European Affairs Report - July 2007

  6. Significant changes in Sponsorship Several of the companies that had supported the ECE for many years were not in a position to do so for the congress in Helsinki In some cases, the sponsors scaled down their total sponsorship contribution At the same time, some companies new to the field of epilepsy showed an interest in supporting the congress. Commission on European Affairs Report - July 2007

  7. New modalities of collaboration New Drug Symposium Schwarz Pharma and Valeant Pharmaceuticals jointly hosted a satellite symposium Orphan Drug Symposium Biocodex, Eisai and UCB contributed speakers and presentations to this Congress session. Commission on European Affairs Report - July 2007

  8. Commission on European Affairs Report - July 2007 • Educational activities • Educational Courses • EUREPA activities • ILAE Commission on Education activities • Developing guidelines for CEA support • Miscellaneous contributions

  9. New Commission Commission on European Affairs Report - July 2007 Geographical and Thematic distribution

  10. Commission on European Affairs Report - July 2007 • Care Standards - Drugs • Generics • Rare epileptic diseases • Contribution to the colloquium on Status Epilepticus (London, April 2007) and European guidelines for the treatment of SE • European Project on Development of Epilepsy Surgery Programme (EPODES)

  11. AEDs Developers Pharma industry Regulatory guidelines R C Trials Study results Scientific data AES ILAE Nice Others Evidence-based Assessment / guideline on AEDs clinicians

  12. Contact group with European Drug Agency (EMEA) CEA official correspondent of the EMEA Exchange of views on AEDs development and use Discussions on specific issues like Orphan drugs Revision of the EMEA guideline on AEDs in 2007-2008 Efficacy working Party of the CHMP Rapporteurs Member state agencies Scientific community (Europe, Worldwide, FDA) CEA-ILAE through its contact group Commission on European Affairs Report - July 2007

  13. EUREPEAN PROJECT ON DEVELOPMENT OF EPILEPSY SURGERY PROGRAM (EPODES)Ç.Özkara, W. Emde Boas, I. Rektor, P. Halasz, K. Malmgren, H. Stefan, C. Baumgartner A-) Courses:: 19-23 March 2008, Brno (I. Rektor) Keynote speakers and case presentations by students and tutors B-) Fellowships: Three months of visiting a center specialized in surgery • 5 people/year • Endorsment required for application (fellowship should be part of the plan of development) • Holding a position in a “center” • Host centers prerequists should be identified C-) Visiting professorships: 1 week • 3 people / year • Visit will be on request of the visited center from the host centers

  14. Research and scientific activities Financial support to the MORTIMUS study Support to EURAP, FONDE projects Support to the EPICURE prg Zurich Update Meeting (2007) IGE Symposium, Bridging basic and clinical sciences, Antalya-Turkey (2007) Commission on European Affairs Report - July 2007

  15. Commission on European Affairs Report - July 2007 • Political action in favour of Epilepsy Research • Promote and facilitate Epilepsy Research across the EU grant procedures • Defend the presence of Epilepsy-related topics in the calls for EU grants (FrameWork Prg 7, 2006-2013) • Need for defining and expressing our research objectives • Epilepsy research priorities for the next decade: A representative view of the European Community

  16. Commission on European Affairs Report - July 2007 • Communication • Website • Global campaign (Thank you for filling the questionnaire in your files) • EUCARE

  17. Commission on European Affairs Report - July 2007 Milda Endziniene (Lithuania) Alla Guekht, EAC Chair,(Russia) Cigdem Ozkara, CEASecretary, (Turkey) Bettina Schmitz (Germany) Michel Baulac, CEAChair, (France) Meir Bialer, CEATreasurer, (Israel) Peter Halasz (Hungary) Svein Johannessen, EAC secretary, (Norway) Frederico Vigevano (Italy) ILAE Financial Office and ILAE Headquarters Office

  18. Commission on European Affairs Report - July 2007

  19. Commission on European Affairs Report - July 2007 • Budget ILAE Financial Office

  20. Commission on European Affairs Report - July 2007

  21. Commission on European Affairs Report - July 2007

  22. Commission on European Affairs Report - July 2007 Miscellaneous • Zurich Meeting (2007) • Idiopathic generalised epilepsies Symposium,Bridging basic and clinical sciences,Antalya-Turkey (2007)

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