Informing Care Decisions: Emerging Technologies, Scientific Evidence, and Communication

1. Informing Care Decisions: Emerging Technologies, Scientific Evidence, and Communication AHRQ 2009 Annual Conference Research to Reform: Achieving health System Change September 13-16, 2009 Speakers Elise Berliner Agency for Healthcare Research and Quality Amy P. Abernethy Duke University Medical Center Mellanie True Hills StopAfib.org Michael Fordis, MD, Moderator Baylor College of Medicine, Houston, Texas

2. Framing Discussion Background in problem of communicating uncertainties Emerging technologies and evidence� Scientist�s Perspective from AHRQ. Elise Berliner Clinician�s Perspective�Oncology Amy Abernethy Patient�s Perspective�Atrial Fibrillation Melanie Hill

3. Emerging Technologies Challenge: Mismatch between published evidence and adoption into clinical practice Questions: Perception of stakeholders about the state of the evidence and balance of potential harms and benefits? Messages reaching patients from the media, DTC advertising, and other sources? Communicating what is known and what is not? Role for AHRQ in communicating the broader questions of development of emerging technologies and evidence generation?

4. Overview Problem of uncertainty across treaments�how common is it? Case example�audiences facing challenges of uncertainty. The John M. Eisenberg Center�charge to translate and disseminate. What patients want, what they get, and how prepared are they to act upon information. Sources of uncertainty�it is certain that we will remain uncertain