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ACCELERATE HEALTH CARE. Platform Presentations – Session B March 12, 2018. www.dhsa.org. www.de-ctr.org/community. Delaware’s Road Map for Engaging Adults with Intellectual and /or Developmental Disabilities (IDD) in Health Promotion. JoAnn Abbott, DNP
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ACCELERATE HEALTH CARE Platform Presentations – Session B March 12, 2018 www.dhsa.org www.de-ctr.org/community
Delaware’s Road Map for Engaging Adults with Intellectual and /or Developmental Disabilities (IDD) in Health Promotion JoAnn Abbott, DNP Delaware Division of Developmental Disabilities Pilot Study Supported by U of Delaware, CDS, ARC and DDDS. No Disclosures. Exempt Study NO DISCLOSURES: Human Subjects EXEMPT * Source Abbott, J, 2016
WHERE is DE on THE ROAD to HEALTH PROMOTION ? • Delawareans with IDD have higher rates of obesity, diabetes and heart disease. • Physical activity has many health benefits however, Delawareans with IDD report lower levels of exercise/ physical activity. • Delawareans with IDD face many barriers to being active including lack of supportive environments and appropriate learning tools that would encourage self-determination.
Engagement with HealthMatters™ Staff Trainer-led Pilot CURRICULUM** STAFF TRAINING * Train-the-Trainer 12 weeks • Three webinar sessions on HealthMatters Curriculum • Two collaborative implementation planning meetings 1.5-3 hrs. 3 times per week over 12 wks. Pilot Community Supported by U of Delaware, CDS, ARC and DDDS
Engaging with HealthMatters™ CURRICULUM HealthMatters is a Research-based, field tested Curriculum that engages people with IDD showing them how to: • develop clear exercise and nutrition goals • develop an exercise routine • improve health knowledge • promotes self-determination
PROCESS EVALUATION: Engagement and Outcomes IMPLEMENTATION of HealthMatters™ (HM) Pilot “SETTING” or environment Staff surveys Assessment of organization “REACH” PARTICIPANTS, STAFF and PCP ENGAGEMENT “FIDELITY” Comparison of Pilot with HM Program “COSTS” SWOT (Strengths Weaknesses Opportunities Threats)
REACH: PARTICIPATION & ENGAGEMENT High participation of the 10 adults with IDD • 8 of 10 completed all 12 weeks • participated in the exercise and nutrition curriculum High Primary Care Providers’ (PCPs) Participation 100% of PCPs provided written responses allowing for the participation in the exercise and nutrition curriculum Comments “ …it was fun…helped my pain” “ … made friends…feel better…”
Assessing the“SETTING” of Pilot’s Implementation usingValidated survey tools of “CAPACITY” and “NEEDS” “CAPACITY”: agree/improve with 30 statements on Pro-Health Promotion Policies “NEEDS”: agree/improve with 7 statements on Pro-Health Promotion Needs
Developing Support with Community Collaboration to Sustain Health Promotion Goals: An Opportunity
COSTS of PILOT IMPLEMENTATION ~ $300/participant Cost estimate of providing the curriculum by previously trained staff in existing facilities would be ~$230/participant
DIASTOLIC BP Diastolic Blood Pressure Mean (mmHg): 81 ----------------------------------------------- 77 80 mmHG PRE- and POST- PARTICIPATION
DE is NOW ON THE HEALTH PROMOTION ROAD Strengths: Delaware's PILOT demonstrated that HealthMatters™ is an effective learning tool for People with Disabilities to self-determine exercise participation and healthy meal choices.
DE is NOW ON THE HEALTH PROMOTION ROAD Strengths: High levels of engagement by participants, DDDS Staff Trainers and PCPs creates necessary supportive environments
DE is NOW ON THE HEALTH PROMOTION ROAD Opportunity: Lowering BP and low costs/participant predicts that statewide adoption of HealthMatters would likely reduce yearly health care costs well more than the Program’s costs.
The Looking Glass: Insight into Homeless Elders’ Barriers to Care Jim Ellison MD Diane Bohner MD Loretta Consiglio-Ward MSN Susan Howard-Smola JD MBA Elizabeth Brown MD MSPH Linda Brittingham, LCSW Carmela Longobardi, MSW Joel Harris, Director
Presented by: None of the study investigators or personnel have conflicts of interest to disclose.
Why Focus on homeless elders? http://c.ymcdn.com/sites/www.delawaregrantmakers.org/ resource/resmgr/Docs/Overview_of_Poverty_in_Delaw.pdf
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Increase in older population • Aging of chronically homeless individuals • Newly homeless elders – a common route • Becoming homeless: • Financial (limited safety net/income options, job loss) • Mental or cognitive health crises, including Substance Use • Relationship breakdown (e.g. widowhood) • Health problems and medical bankruptcy • Staying homeless: • High “housing cost burden” for fixed-income elders • Social Security benefits often fail to cover the cost of housing. • Nation-wide, at least nine seniors wait for every unit of affordable elderly housing. The waiting list is often 3 to 5 years. Pathways to Elder Homelessness http://c.ymcdn.com/sites/www.delawaregrantmakers.org/ resource/resmgr/Docs/Overview_of_Poverty_in_Delaw.pdf
from the 2017 Annual Homeless assessment report to congress https://www.hudexchange.info/resources/documents/2017-AHAR-Part-1.pdf
Poverty In US and Delaware: On the Rise http://c.ymcdn.com/sites/www.delawaregrantmakers.org/ resource/resmgr/Docs/Overview_of_Poverty_in_Delaw.pdf
85% have chronic medical condition (3.6x more than homeless<50) • Most common: Hypertension, Arthritis, Other musculoskeletal • 73% have mental health/cognitive disorders • 75% have Substance Use Disorders • Other Geriatric Syndromes (a San Francisco study) • Urinary incontinence 48% • Difficulty with ≥1 ADL 38.9% • Falls 33.7% • Cognitive impairment 25.8% • Vision impairment 45.1% • Hearing impairment also common Medical Problems in Homeless Elders Joyce & Limbos. Can Fam Phys 2009;55(11):110-1111 Gonyea et al. J Geront SW 2010;53:575-90; Brown et al. Gerontologist 2016;00;1-20.doi:10.1093/3gergnw011.
Grim Prognosis for Homeless Elders: Follow Up Study 1. Data from O’Connell et al. Care Manag J. 2004;5(2):101-6.
Medical: Emergency/Immediate assistance: 911 or ER of WH, St Francis Hospital, Christiana Care Need medical appointment without insurance: St. Clare Mobile Health Clinic Emergency Dental: Wilmington Hospital/Pierre Toussant Dental Clinic Prescriptions (non-narcotic): Friendship House Day Centers (once per year) Mental Health: Hotline 302-428-2118 Suicidal: Hotline 800-273-8255 Mental Health: Drop-in Center Delaware Psychiatric Center Wilmington Hospital Center for Comprehensive Behavioral Health Meadowwood Behavioral Health Center / Rockford Center LIMITED Local Health Care Resources for Homeless Elders:
Sanctuary for people in need on Wilmington’s east side since 1971 Provide services in a welcoming, dignified, respectful, and caring environment St. Patrick’s Center107 East 14th Street, Wilmington, DE, 19801
Food Programs • Transportation • Homeless Respite Services • Clothing Bank • Recreational and Educational Activities • Individualized Services Services Offered
A Health Needs Assessment for the homeless elders of st. Patrick’s Center: Study objectives Funded by a grant from the CCHS Physicians Professionalism Council
1. Complete the planned 100 health assessments and evaluate findings. • 2. Disseminate results • Guide allocation of resources • Focus guest education efforts • Justify appeal for further support Future Directions
Thank you! Questions?