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Supporting people with active and advanced disease

Supporting people with active and advanced disease. Need better data collection Discussion at MDT – new diagnosis support Identify best practice Early palliative care support improves quality and quantity of life. What is the economic evidence behind survivorship?.

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Supporting people with active and advanced disease

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  1. Supporting people with active and advanced disease • Need better data collection • Discussion at MDT – new diagnosis support • Identify best practice • Early palliative care support improves quality and quantity of life

  2. What is the economic evidence behind survivorship? • ‘Routes from Diagnosis’ is a way of linking and analysing routinely collected data • Maps the cancer journey from diagnosis through to death • Describing health outcomes i.e. survival times, incidence, prevalence of cancer and non related cancer morbidities. • Tells us how patients interact with the system e.g. interaction with health care services, when, how long and cost

  3. This is a survivorship outcome framework All patients reach one of these outcome groups – taking different routes from diagnosis Everyone diagnosed with prostate cancer in England in 2004 25.3% 7+ years, no complications 29.7% 7+ years, morbidities SIMPLIFIED EXAMPLE 6.3% 1-7 years, no complications Diagnosis 1-7 years, other morbidities 5.9% 1-7 years, cancer complications 20.4% 12.4% 0-12 months

  4. What does RfD tell us? We know more about clinical outcomes – beyond just survival We know more about how they interact with the system

  5. Insight – Health economics

  6. Designing effective Service Solutions Interventions tailored for each ‘Route from Diagnosis’ Different ‘Routes from Diagnosis’ 3 final CR survivorship pathways for testing

  7. Exciting new research • Macmillan working with NCIN and Imperial College London to produce evidence on main drivers of cancer costs. • Cost data will allow comparison of alternative pathways of care. • Investigate variation in costs in England across lung, breast, prostate and bowel cancer: • Economic burden of cancer • Differences in the cancer care pathways and their effects on patient survival and costs • Cost of emergency admissions of patients with cancer

  8. Supporting people with active and advanced disease • Need better data collection • Discussion at MDT – new diagnosis support • Identify best practice • Early palliative care support improves quality and quantity of life

  9. Key survivorship messages • A shift in professional culture is essential to enable supported self management. • New models of cancer aftercare gives opportunities to improve quality and reduce cost. • Many people can self manage their health with support, with rapid access to professionals when needed. • There is significant unmet need arising from consequences of treatment, which can be successfully addressed through prevention and treatment. • Good survivorship care requires timely communication across boundaries.

  10. Aligning with the NHS Mandate in England

  11. Taking Action - a ‘how to guide’

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