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An Alzheimer Campaign in France ( Haute Vienne ): Impact on Public Opinion and Stigma Dr L Cartz - Piver (1,2) , Dr N Dumoitier (2,3) , Mme H Videaud (1,2) , Pr P Couratier (1,3) , Pr JP Clément (1,3 ). Alzheimer’s Disease International TORONTO, march 2011.
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An Alzheimer Campaign in France (Haute Vienne): Impact on Public Opinion and StigmaDr L Cartz-Piver(1,2), Dr N Dumoitier(2,3), Mme H Videaud(1,2) , Pr P Couratier(1,3), Pr JP Clément(1,3). Alzheimer’sDisease International TORONTO, march 2011 • Memory Clinic and Research Center , Limoges UniversityHospital, France • Réseau COGLIM, Limoges, France • Médecine University, Limoges, France
Alzheimer’s Disease (AD) in France • Population: 65 million (INSEE, 2011) • Estimated 800,000 people with AD • French Health Recommendations (HAS, 2008) and 3rd French Alzheimer’s Plan (2008-2012) • Early diagnosis is important for • Better treatment, care and information • May delay admission in nursing homes.
Delay in Screening for AD The BNA Bank National Alzheimer : French National Register since 2009 Data from > 300 memory clinics RESULTS (dec 2010): Average MMS score at 1st visit : 17/30 • Moderately severe stage of AD
WHY the delay? People’s attitudes may be one of the causes: • Lack of information • Psychological and social factors “… may have a negative impact on the intention to obtain screening and to ask for help or assistance “ (Gallez, 2005).
Objectives • Organize a campaign about AD • Inform people about the disease and about health structures and sources for care and assistance • Evaluate the impact of the campaign
Haute Vienne, Limousin in France: one of the oldest populations in Europe (cf. INSEE, 2003)
“A different look at Alzheimer”(September 2009) • Conferences • Meetings with professionals and families from France Alzheimer Association • Cultural events: a play, movies, and a modern ballet dance.
Questionnaire • Have you learned about AD ? • Have you identified sources for care ? For assistance ? • Are you more or less willing to screen for AD? • Have you changed the way you see people with AD? • Are you more or less inclined to keep close contact with a patient and a family suffering from AD?
The population 600 /2243 people filled out the questionnaire (27%) • 83% women • 48,7% aged under 50 General public 52,3% not in medical (24,5%) or in social fields (19,8%).
What events did they attend? 24.4% Conferences 23% Meetings 52.6% Cultural events • 84,4% of the younger group • More professionals (61% versus 38,4%).
Questionnaire: INFORMATION • Learn about AD VERY MUCH 56,4% • Identified care VERY MUCH 53,9% • Identified assistance VERY MUCH 59,4%
« Have you changed the way you see people with AD? » An important change in • 1/3 of the public 39% older group 26% younger group • Also 1/4 of the professionals.
Reducing Stigma More inclined to keep contact • With a person : 34,8% • With a family suffering from AD: 38,6% Cultural events had the same impact as conferences or meetings with families and professionals.
Discussion • MENTAL HEALTH: many campaigns • Short term campaigns have shown positive outcomes in mental health issues (Evans-Lacko et al., 2010). There are very few campaigns for Alzheimer’s Disease.
A good impact • Information and health literacy was increased • Attitudes towards screening progressed • Stigma was reduced
Further AD campaigns • Use of cultural events • interesting to attract a younger population • Addressing a general public • also useful for professionals. The campaign was financed by the 3rd French Alzheimer Plan. Special thanks to France Alzheimer Haute Vienne.