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Integration of electronic TB and HIV data collection in facilities. Data management of HIV wellness patients. Background.
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Integration of electronic TB and HIV data collection in facilities Data management of HIV wellness patients
Background • At TB/HIV integration kick off meeting (7 March 2016) - which announced national roll out of TB module in TIER – Dr. Pillay formally sanctioned utilization of the HTS and pre-ART functionally in TIER • This undertaking has been: • To strengthen patient and data management • Use TIER.Net to improve data driven decision-making • To address leakage across pillars of diagnosed vs. initiation - critical to track whether individuals who tested positive have been initiated on ART and those who have been enrolled in HIV wellness (pre-ART) Comprehensive TIER Training for TB/HIV Integration
Adult HIV Treatment Cascade Comprehensive TIER Training for TB/HIV Integration
UTT vs pre-ART • With introduction of universal test and treat (UTT) strategy in Sep 2016 - all patients should be offered ART if diagnosed with HIV • However there are likely to be patients who elect to not start ART immediately • It is essential that facilities continue to manage and monitor people living with HIV who are not yet on ART • As such all patients who have been diagnosed with HIV - and are without an ART start date - must be captured in TIER using pre-ART functionality Comprehensive TIER Training for TB/HIV Integration
Why is it necessary to digitize pre-ART data? • It is imperative that all HIV+ patients enrolled in HIV wellness are managed up to a point of initiation • Use of pre-ART module in TIER.Net– critical to this end • Capture of pre-ART patients will assist facilities to: • Understand facility burden • Assist with triaging HIV+ clients • Support patient monitoring for patients not ready or willing to start treatment immediately after diagnoses • Support linkage to care Comprehensive TIER Training for TB/HIV Integration
Data source for capturing of pre-ART data in TIER? • From a public health perspective and Ideal Clinic/ICDM prescripts - effective clinical and data management compels institution of one patient, one folder, one folder number • Standardised HIV/ART clinical stationery designed to track each client diagnosed with HIV and enrolled in care • HIV/ART clinical stationery must be used as source for capture of pre-ART data in TIER • Clinical stationery accounts for all data required to populate the fields in pre-ART module in TIER • All folders must flow to data clerk daily (after every visit) for capture of pre-ART data in TIER Comprehensive TIER Training for TB/HIV Integration
Data source for capturing of pre-ART data in TIER? (2) • As part of rationalization of registers initiative - provinces were directed to withdraw the pre-ART register • Therefore pre-ART register cannot and must not be used as a source for capture of pre-ART data into TIER • As such, pre-ART data will be prospectively captured. This means, patients newly diagnosed but not yet on ART will be captured in the pre-ART module Comprehensive TIER Training for TB/HIV Integration
Back-capture of pre-ART data? There will be NO back capture of pre-ART data (as pre-ART register no longer exists) Rather select a day that pre-ART capture will commence and capture active HIV wellness patients Thus there will be prospective capture of pre-ART data from patients folders (from date facility decided to capture these data) All stakeholders within the facility must be aware of the decision Comprehensive TIER Training for TB/HIV Integration
Folder flow for capture of pre-ART data 1 1 3 3 1 1 1 2 2 1 1 The flow covers all points that a data clerk can access folders for capturing 1 Location of folder collection by DC 2 Data capture 3 Filing 1
Capture in TIER Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (2) Source: Demographic information and Treatment supporter Source: Date of diagnosis and longitudinal record Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (3) HIV positive window from HTS module Click on “pre-ART” button: Demographic info of patient - with HIV diagnosis date automatically filled Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (4) Source: Testing point Source: Staging Source: CD4 Count Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (5) Source: TB data Source: IPT data and treatment Planning Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (6) -Capture visit date -Referral from which service -Pregnancy status -Workup status Click under month of visit to be entered There will be a designated box for these files at each collection point, this differs per facility. Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (7) All blood results entered here- CD 4 count TB screening, IPT, Stage, Pregnancy screening and Next appointment date Comprehensive TIER Training for TB/HIV Integration
Capture in TIER (8) Reminder: this is where DC retrieves results for capture into TIER.Net. If results are not filed- the clinician does not have the result and data clerk does not have a value to capture In turn, the programme cannot monitor impact of treatment Comprehensive TIER Training for TB/HIV Integration
Waiting for ART list - Lists patients eligible for ART but not on treatment - Data clerk to generate report weekly and give to designated clinician who will contact patient and arrange follow-up appointment - Appointment to be documented in clinical stationery and given to clerk for capturing into TIER Place the waiting list for initiation here Comprehensive TIER Training for TB/HIV Integration
What does the list encompass? Name of list Facility Name Date list generated Number of records 2 1 3 4 1.Name 2.Surname 3.Folder number 4.Age disaggregation for children Comprehensive TIER Training for TB/HIV Integration
What does the list encompass? (2) TB Screening Pregnancy Screening CD4 count <200 # weeks patient has been eligible for treatment Comprehensive TIER Training for TB/HIV Integration
ART monthly report Monthly report consists of: newly enrolled in HIV care (pre-ART) & remaining in HIV care (pre-ART) patients started on IPT Comprehensive TIER Training for TB/HIV Integration
ART monthly report (2) • Report tracks: • # patients newly enrolled on ART and HIV care (pre-ART) • # patients remaining on ARTand HIV care (pre-ART) • # patients started on IPT • # pregnant women initiated on ART • ART monthly report should be pulled by data clerks by 7th working day of every month • Report must be saved on computer – and file named appropriately • Facility manager to verify and sign off on reports and file in respective section in lever arch file • Signed copy of report is submitted to sub-District office with DHIS MDS Comprehensive TIER Training for TB/HIV Integration
Change management themes • A patient in pre-ART might not be issued a patient file in some facilities • As the clinical record is source for pre-ART (and ART) data captured in TIER – all HIV+ patients must have clinical stationery completed and inserted in patient folder • This is a necessary step and has to be reinforced at facilities • Clinicians should be orientated on correct documentation in HIV/ART clinical stationery for all HIV positive patients - those on ART and not-yet-on ART Comprehensive TIER Training for TB/HIV Integration
Change management themes (2) • Digitising data from clinical record • Streamlined folder (which contains paediatric ART clinical stationery) flow in-facilities IMPERATIVE • Clinicians need to be made aware that data completeness in clinical stationery - critical • All fields in the HIV clinical stationery must be completed • However, completeness remains critical • Client records must be stored on-site • Headlines for TKI when conduct clinical documentation training • Consider the workload: • Look at facility data to determine what facility process would be and what workload would be based on different situations
Change management (3) • Ideal Clinic/ICSM – HPRS prescripts • One patient, one folder, one folder number • Every new patient must have a folder opened – even if patient only in facility for HIV test • Unique identifier - ID number (or other identification domains) where available PLUS HPRN/folder number MUST be tracked in all registers, clinical stationery, Road to Health book, laboratory forms as well as every other piece of clinical stationery