1 / 38

By: Risnawati Utami Nur Alvira Pasca Wati UCP WHEELS FOR HUMANITY INDONESIA

By: Risnawati Utami Nur Alvira Pasca Wati UCP WHEELS FOR HUMANITY INDONESIA. The Explorative Study : The Special Need of Children and Young Adult Living With Dis a bilit y in Yogyakarta Special Province. Outline Presentation. Back ground of the Study Objectives of the Study

blake-hunt
Download Presentation

By: Risnawati Utami Nur Alvira Pasca Wati UCP WHEELS FOR HUMANITY INDONESIA

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. By: Risnawati Utami NurAlviraPascaWati UCP WHEELS FOR HUMANITY INDONESIA The Explorative Study : The Special Need of Children and Young Adult Living With Disability in Yogyakarta Special Province

  2. Outline Presentation • Back ground of the Study • Objectives of the Study • Outcome of the Study • Research Study Method • Findings from the Qualitative Analysis • Findings from the Quantitative Analysis • Conclusions and Recommendations

  3. High population of people with disabilities in Indonesia and there is no clear data of the exact number of children living with disabilities in Indonesia High number of reproductive health problem among the young mother who are those getting pregnant and giving birth Lack of access to healthcare and education among the children and young adult with disabilities Lack of disability awareness in the community and stake holders Lack of mainstreaming disability in development specifically in the government programs in all levels Lack of laws and policies enforcement concerning the rights of persons with disabilities in Indonesia Background of the study

  4. Promoting and supporting the realization of the government programs and private sectors to advocate the rights of children and young adult with disabilities specifically to get proper mobility access, healthcare and education Developing effective programs and the sustainability to advocate the rights of children and young adult with disabilities Developing programs and shared efforts with other organization to avoid the duplicate programs Developing proper program actions to ensure the needs of children and young adult with disabilities to get better access to mobility, healthcare and education in the government/public sector and in the private sector Objectives of The Study

  5. To create ideas and innovative programs to ensure the needs of children and young adult with disabilities in order to compliment the the Existing Social Protection Programs di Indonesia. To ensure the effective policies on social, health and education that have disability perspective To create synergy and program collaboration with the other organization, government institution and private sector to get the proper solution concerning disability issues Indonesia OUTCOMES OF THE STUDY

  6. Research method : exploratory research Time : January – May 2009 Project sites: 4 municipality and 1 town Population and sample: Children and young adult with disabilities age 6-25 years old 55 respondents are for the Qualitative analysis and 252 respondents are for the Quantitative analysis This research study is primarily focus on the qualitative research and it has been backed up with the quantitative data in order to describe the detail respondents characteristic in each municipality Technical data collection : random sampling Research Variable Identification: Family health data Characteristics children and young adult with disabilities Medical check up data Health and social security Nutrition Assistive devices School Sanitation and hygiene research Study Method

  7. Continued: Research Method Study • Data collection method: • Quantitative Data : In-depth Interview and Focus Group Discussion • Qualitative Data : Structured questionnaire • Data source : primary and secondary data (Ministry of Social, Special School, Hospitals) • Data analysis : Quantitative data is using univariate analysis meaning that the data describes every research variable based on the characteristic of location, people/population, and time Qualitative data is based on the analysis of the In-depth Interview and Focus Group Discussion of the parent’s group • The research process: - Preparation - Pre test questionnaire • Pre test evaluation • Data collection in the field • Data analysis

  8. Qualitative Analysis • Stigma and prejudice : • Disability is assumed as a disease that could be cured • Disability is still assumed as the bad thing in the family (superstitious) • The cause of disability : • Reproductive health problem is the primary factor of the cause of disability specifically in the period of pregnancy and giving the birth (i.e the young mothers rarely check their pregnancy through USG because the un-affordable cost and the distance, premature and vacuum/suction) • Children get sick (usually high fever) in the age between 0 - 5 years old • The highest type of disability is Cerebral Palsy

  9. Continued : Qualitative Analysis • Social-economic of respondents and their parents are very low : • Mostly they don’t have assistive devices i.e wheelchair • Lack of access to information to get the proper wheelchair • Children and young adult with CP need care taker or assistant who could support them to their ADL (Activity Daily Living) • Most children are having the serious condition that make them could not go to school and if they could go to school, they couldn’t access it • Personal Hygiene: • The digestion system is not working well – it will cause the bowel movement daily • Seating and positioning of children and young adult with CP are mostly not correct -it will cause the posture of the children (i.e Scoliosis) • Lack of nutrition – it will cause children and young adult with CP have high risk in health and the development process • Life expectancy is very low : • Inadequate health and social security specifically for children and young adult with CP • Difficulty to access the clinic therapy /primary health care that provides physical therapy and related healthcare • Lack of access to information specifically for accessing the proper therapy • Lack of human resources to serve children and young adult with CP

  10. Number of Respondent per Municipality

  11. Family Characteristics Kulonprogo 68,1% Family member: 4-6 75,4% Income: Rp <500.000 60,9% Occupation: labor 40,6% Education: High School Bantul 66% Family member: 4-6 82% Income: Rp <500.000 62% Occupation: labor 34% Education: Elementary School GunungKidul 79,2% Family member: 4-6 56,6% Income: Rp <500.000 34% and 18,9% Occupation: labor and temporary worker 47,2% Education: Elementary School

  12. Continued Yogyakarta 60% Family member: 4-6 52% Income: Rp <500.000 32% and 24% occupation: entrepreneurs and labor 28% and 24% education: junior and high school Sleman 68,5% Family member: 4-6 75,9% Income: Rp <500.000 44,4% occupation: entrepreneurs and labor 44,4% education: junior and high school

  13. The closest healthcare provider HEAlth Data

  14. First treatment when people get sick

  15. Health Counseling Status

  16. The family members who have children and young adult with disability

  17. Age: 7-12 years old 48,0% • Gendder : a. M: 68,0% b. F: 32,0% Yogyakarta Bantul Sleman • Age: 7-12 years old 42,6% • Gender: a. M: 59,3% b. F: 40,7% Characteristics of respondent

  18. K U L O N P R O G O Educational Status

  19. Facility in School

  20. Bantul

  21. Yogyakarta

  22. continued

  23. GunungKidul

  24. The Type of disability and how to get the assistive devices

  25. Health Security • Kulonprogo • 53,6% of respondents are having the health security  35,1% JPKM • 89,2% type of health security is “the health card” • 89,2% Period of health security is 1x/year • Bantul • 22,0% of respondents are having the health security  54,5% ASKESKIN • 72,2% type of health security is “the health card” • 36,4% Period of health security is 1x/> 1 year • GunungKidul • 47,2% of respondents are having the health security  56,0% JAMKESMAS • 56,0% type of health security is in cash Rp 300.000/month • 80,5% Period of health security is 1x/1 year

  26. Continued • Yogyakarta • 44,0% of respondents are having the health security  38,5% JAMKESMAS • 69,2% type of health security is “the health card” • 61,5% period of health security is 1x/1 year • Sleman • 31,5% of respondents are having the social security 29,4% DINSOS (Local Ministry of Social) • 35,3% type of social security is a social card • 41,7% period of social security 1x/6 month

  27. Nutrition

  28. Continued

  29. Personal Hygiene and sanitation

  30. Bantul

  31. GunungKidul

  32. Yogyakarta

  33. Conclusion The result of study has proved that the major problems of children and young adult with disability are : • The children and young adult are in low social and economic level • The major cause of disability reproductive health of the mother and children get sick at age 0-5 years old • Never go to school • No assistive device, so that in ADL/Activity Daily Living need assistant • The difficulty of geographical condition  Healthcare services and access to education : GunungKiduland Kulonprogo • Lack of nutrition children with CP mostly have serious health problem • Health and social security are not appropriate with the needs of children with CP • Never done medical check and proper therapy (Physical therapy) • Home and public facilities do not support the needs of children with CP

  34. Chart Conclusion • See the file conclusion and recommendation

  35. Recommendation • This recommendation is crucial part of the responsibility in across sectors and departments in the government level and ideally should be done together by healthcare professional, NGO/INGO, DPO, parent’s group, corporations and other related stake holders – to get the real solution and could solve the social problems specifically to mainstream the disability rights in the program development in Indonesia after the President SBY signed the Convention on the Rights on Person with Disability on March 2008. 1. Preventive • Strengthening health policies in term of reducing the disability cases specifically Cerebral Palsy in Indonesia : Reproductive health policies specifically pregnancy and giving the birth 2. Curative • Strengthening the social policies after the disability cases happened Health policies and education policies are crucial to protect and to support the rights of children and young adult with disability in order to reduce social burden and other impacts of the disability. These could be done through developing clinical therapy programs, counseling, and inclusive education/Ministry of Education , providing proper health security and social security as part of the social protection program that has been developed by the Ministry of Social and Ministry of Health 3. Rehabilitative • Providing proper assistive devices i.e wheelchair to support the mobility and independency of children and young adult with CP as well as increasing soft skill /vocational trainings • Establishing policies across department in the government level to support accessibility and technical steps to provide the proper assistive devices in term of assistive devices, mobility access, inclusive education and to improve the existing health security and social security programs 4. Advocating the parent’s Group and disability rights to mainstream disability rights in the inclusive government development programs

More Related