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Conversation Analysis. The ethics and data collection of naturally occurring conversations in dementia. Doing Dementia. CA is the primary method of analysis Family conversations Data collection Ethics Safeguarding the participants. Why study conversation?.
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Conversation Analysis The ethics and data collection of naturally occurring conversations in dementia
Doing Dementia • CA is the primary method of analysis • Family conversations • Data collection • Ethics • Safeguarding the participants
Why study conversation? • CA is a research tool which can be applied to all talk-in-interaction • Courtroom • Business meetings • Interviews • Emergency calls • Investigation of the interactional strategies employed by people with dementia and their co-participants • The lived experience of dementia happens at home, everyday, in the small mundane decisions we make
Data collection • Informed consent • Privacy • Practical challenges – who will operate the recording device? • Recruiting participants
Project Design Support by the Alzheimer’s Society
Ethics Proposal • Supporting letter from the Alzheimer’s Society • Information for Alzheimer’s Society staff • Information for potential participants • Accessible format ‘Easy Read’ (DH, 2010) • Given time to read, understand and ask questions • Contact information provided • Demographic questionnaire • Consent form
Informed Consent • Capacity to decide • Can the participant understand the research, and their part in it, well enough and for long enough, to make an informed decision? • Mental Capacity Act (2008) • Nuffield Council on Bioethics (2009)
Project design • A multiple case study. • A snap-shot of the conversational abilities of people with dementia and their caregivers. • Video data of around three hours from up to 12 dyads • To explore the communication strategies of PWD and their everyday conversational partners.
Recruiting participants Members of the Alzheimer’s Society valued this kind of research. Both people with dementia and caregivers felt it was an important area for research. Communication was one of the major issues that affected daily living in the early to mid stages of dementia.
Feedback Members told me… • They had too much on • Medical complications • Already involved in other research • Operating a video recorder would be problematic • They were ‘private’ people
Project design (2) A detailed single case study Mixed methods approach • Primarily CA • Semi-structured interviews • Observations from wider involvement with PWD • Audio recorded conversation
Thank you I am grateful for the support of the local branch of the Alzheimer’s Society and of course to the generous families who have taken part in this project.