EU FUNDING WORKSHOP ELF Patient organisation networking day ERS International Congress 2016

1. EU FUNDING WORKSHOP ELF Patient organisation networking day ERS International Congress 2016 London, 3 September 2016

2. ABOUT US

3. ABOUT YOU EU PROJECTS • How many have participated to EU projects? • Any project partner? • TRAININGS • How many took a course/training on EU project funding?

4. WHY EU funding? Benefits: • Work with international universities, companies and other organisations • Getting insights on new discoveries and achievements in your disease areas • Influence policies Benefits of EU projects: • New projects and activities • 100% funding • Prestige

5. HOW DOES EU FUNDING WORK? Every 7 years

6. IMI • IMI uses both public (EC) and private funding (pharma) • IMI funds: • Medicines, treatments and vaccines • Large projects • More specific topics

7. IMI & PATIENTS “Patient-centric approach” SHAPE RESEARCH PATIENTS MORE EFFECTIVENESS

8. H2020 research programme • Emergencies and challenges • From the lab to the market • Innovative solutions

9. H2020 funding in health Health, demographic change and wellbeing Priorities 2016-2020: • Personalised medicine • Sustainability of healthcare systems 3. Active and healthy ageing

10. Who can PARTICIPATE Consortia are made of: • 1 Project coordinator • Project partners Geographical area • EU 27 + Associate countries: Switzerland, Norway, BH, FYROM, Serbia, Turkey etc. Check with the text of the call

11. HOW TO PARTICIPATE ADMINISTRATIVE and FINANCIAL CAPACITY • Paid staff • Good administration and • financial management • Previous experience with funding

12. Brexit Nothing changes in the short term

13. eu project structure Activities, budget and timeline defined in the project proposal

14. Work packages • WP 2 Research • WP 3 Screening • WP 4 Interventional study / trial • WP 5 Data collection knowledge management • WP 6 Health economics WP 1 Project management In every project WP 7 Dissemination

15. Project writingwhere PATIENTS can play a ROLE

16. WP project managementwhere patients can play a role

17. Wp disseminationwhere patients can play a role

18. FUNDING

19. NO RESTRICTIONS Patients can play different roles More funding for: • Patient-centred projects • ICT solutions leading to patient empowerment • Patient engagement • Improving patient experiences

20. EU projects - examples • U-BIOPRED: is a research project using information and samples to learn more about different types of asthma. • EARIP: The European Asthma Research and Innovation Partnership (Asthma UK project coordinator) • MyAirCoach: is a project aimed to develop an inhaler device as a self-management tool for people with asthma including measures of environmental factors (EFA consortium member)

21. U-BIOPRED • PIP • Input in WPs & tasks • Project website • Lay language • Social media • Project ambassadors Read more: “A short guide to successful patient involvement in EU-funded research”

22. The EARIP project • Co-ordinated by Asthma UK • 12 partners from across Europe • Funded under the FP7 programme • €500,000 grant • 50+ consortium members

23. ASTHMA UK experience Pros: • Drive a patient led agenda for research across Europe • Incorporate the development of your organisation objectives into a larger project • Organisational reputation for leading a European initiative (future relationships and projects) • Being part of the cutting edge innovation, allows you to exploit this knowledge early for patient benefit – Roadmap for asthma research Cons: • A LOT of time and financial commitment needed • Responsible (partly) for ensuring external partners do work and meet deadlines • Administrative burden on organisation Benefits to your organisation: • Some projects will already fit within your organisational planning/objectives • Great way to get the patient voice heard in cutting edge research – great way to advocate for PPI • Reputation – build networks and are asked to be involved in a number of other activities as a result

24. Efa experience myAirCoach: • Leadingdissemination and exploitation WP • Translatingresearchoutcomesinto patient-friendlylanguage • Promoting the projectthrough social media and website and in relevant conferences • Liasingwithpartners for updates on ongoingactivities • Responsible for the Advisory Patient Forum: • Involve patients throughout all project stages from the very beginning to beyond the project lifecycle • Support the various roles patients have in the project • Coordinate involving individual patients within the consortium/workpackages

25. Pro: • Ensuringthe inclusion of patients perspective in research • Contributing to the achievement of ground-breakingresearchresults • Deliveringconcreteoutcomes to your network of patients • Developingknowledgethatcanbeexploited in otherfields (egAdvocacy) • Enlargingyour network of partners and stakeholders Cons: • Findyourrole: discusswithcoordinator and understandwhereyoucancontribute • Respect deadlines • Admnistrativetasks

26. GET READY Questions to askyourself : • Does the project fit with your organisational objectives? • Does this meet the needs of the patients you represent? • Do you have the resources (Personnel time, Budget)?

27. GET STARTED • Networking • Check online the EC’s websites Health research & Innovation Horizon 2020

28. GET STARTED • Work with other patient organisations • Contact us

32. IMI

33. TOPICS • Topics • Addressing the clinical burden ofClostridium difficile infection (CDI): Evaluation of the burden, current practices and set-up of a European research platform (part of the IMI New Drugs for Bad Bugs(ND4BB) programme) • Development of immune tolerance therapies for the treatment of rheumatic diseases • Data quality in preclinical research and development • Next generation of electronic translational safety • Identification and validation of biomarkers for non-alcoholic steatohepatitis (NASH) and across the spectrum of non-alcoholic fatty liver disease (NAFLD) • Joint influenza vaccine effectiveness studies

34. H2020 PORTAL • Home - Research Participant Portal ec.europa.eu/research/participants/portal/ • Funding Opportunities

35. HEALTH CALLS

36. CALL LIST

37. Open – single stage • H2020-SC1-2016-2017 – Personalised medicinedeadline: 11/04/2017:- SC1-HCO-03-2017: Implementing the Strategic Research Agenda on Personalised Medicine- SC1-HCO-07-2017: Global Alliance for Chronic Diseases (GACD) prevention and management of mental disorders- SC1-HCO-08-2017: Actions to bridge the divide in European health research and innovation- SC1-PM-03-2017: Diagnostic characterisation of rare diseases- SC1-PM-11-2016-2017: Clinical research on regenerative medicine- SC1-PM-20-2017: Methods research for improved health economic evaluation

38. Open –TWO-stage • 2 STAGE04/10/2016 (1 deadline) + 11/04/2017 (2 deadline).- SC1-PM-02-2017: New concepts in patient stratification- SC1-PM-07-2017: Promoting mental health and well-being in the young- SC1-PM-08-2017: New therapies for rare diseases- SC1-PM-10-2017: Comparing the effectiveness of existing healthcare interventions in the adult population

39. UPCOMING • Calls for proposals announced on 20/09/2016 with deadline on 31/01/2017 :- SC1-HCO-17-2017: Support for large scale uptake of Digital Innovation for Active and Healthy Ageing- SC1-PM-15-2017: Personalised coaching for well-being and care of people as they age • Calls for proposals announced on 8/11/2016 with deadline on 14/03/2017:- SC1-PM-16-2017: In-silico trials for developing and assessing biomedical products- SC1-PM-17-2017: Personalised computer models and in-silico systems for well-being- SC1-PM-19-2017: PPI for uptake of standards for the exchange of digitalised healthcare records

40. H2020 - SWITZERLAND • EC Statement (june 2016) valid until December 2016 https://ec.europa.eu/research/participants/data/ref/h2020/other/hi/h2020-hi-swiss-part_en.pdf • H2020 contact point in Switzerland (State Secretariat for Education, Research and Innovation – SERI) http://bit.ly/2cqsbbf