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Accessible Information and Communication

People First Scotland is a local area coordination parenting project. We provide support, training, and accessible information to parents with learning disabilities, helping them understand and cope independently. Contact us for more information.

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Accessible Information and Communication

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  1. Accessible Information and Communication People First (Scotland) Parents’ Group Edinburgh Local Area Coordination Parenting Project

  2. People First Parents’ Group

  3. What is a learning disability? People with learning disabilities have a significant lifelong condition that started before adulthood, which affects their development and which means they need help to: • Understand information • Learn skills • Cope independently About 16,000 school age children in Scotland and 26,000 adults. Identification issues Keys to Life, Scottish Government 2013

  4. How a learning disability might affect parents People might find it difficult to understand • Complex language including reports • Concepts of time and distance (half a mile or in a couple of weeks) and have difficulty • Expressing themselves (in a meeting or discussion) • Following a conversation (fast or unfamiliar language or mumbling)

  5. And might need support • Finding their way around new places • Planning and prioritising (household tasks,cooking etc) • Understanding processes (referrals etc) • Concentrating • Retaining new information (remembering workers names and roles) • Answering quickly

  6. Verbal information • Simple words, no jargon • Break it down into manageable chunks • Show not tell • You may need to show someone several times until they have got it • Memory aids – checklist, calendar, text

  7. Easy Read Information • Short sentences • Easy words – no jargon • Well spaced out • Large print and clear font • Pictures – photos or drawings

  8. Stories Zoe and John’s story Experiences of parents with learning difficulties

  9. Experiences of parents with learning difficulties Fear Assumptions Information not in accessible formats Not understanding what’s going on No ongoing support Not enough support Not right sort of support Judged

  10. We need support that is: • Right from the start • Flexible • Ongoing • In our own home: hands on and one to one • From someone we trust • From someone with experience in supporting people with learning difficulties It needs to include: • Accessible information • Independent advocacy • Emotional support

  11. Support • Training • Ongoing support with things like: • Morning routines • Getting ready for school or nursery • Washing and brushing teeth • Healthy eating • Play and interaction • Homework

  12. Support (cont.) • Going out to clubs and other activities • Finding your way to new places • Letters and forms • Appointments • Going to meetings with you • Sorting out clothes • Behaviour and boundaries • Bedtime routines

  13. CHANGE resources • Easy read alternatives to Ready Steady Baby and Ready Steady Toddler given out by NHS Health Scotland through midwives and health visitors • Parents often still don’t get these

  14. And to finish... ...sometimes it works out well

  15. Contact details People First (Scotland) Jane Lewis jane.lewisp1st@btconnect.com 0131 4787707 www.peoplefirstscotland.org

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