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Needs for related health and population data : vision for the future Luule Sakkeus

Needs for related health and population data : vision for the future Luule Sakkeus. International Seminar Population and Health Data: Why we need it personalised December 6-7, Tallinn,200 4. REQUIREMENTS FOR NATIONAL (HEALTH) STATISTICS. Independence ( similar output to everybody )

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Needs for related health and population data : vision for the future Luule Sakkeus

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  1. Needs for related health and population data: vision for the future Luule Sakkeus International Seminar Population and Health Data: Why we need it personalised December 6-7, Tallinn,2004

  2. REQUIREMENTS FOR NATIONAL (HEALTH) STATISTICS • Independence (similar output to everybody) • Impartiality (in-depth analysis, systematic assessment of needs) • Relevance (essential events/processes, coverage) • Quality (analysis, personalisation of data at collection level) • Continuity (definitions, classifications, the longer the trend the better the projection of the process)

  3. ESTONIAN SITUATION IN (HEALTH) STATISTICS • Independence ?— Statistical Office under MFA, for health statistics — unit in MSA • Impartiality ?— no research in statistical organisation, partially the capacity of research institutions used • Relevance? — low methodological capacity, mainly sectoral needs assessed • Quality? – primary checks, restricted analysis for personalised data • Continuity? — perception of trend data as old and irrelevant, rare recalculations for definition and classification changes

  4. DEVELOPMENT of HEALTH STATISTICS • WHERE? • Population related health data— where the independent, reliable, relevant, quality-assessed, impartial data will be collected? • WHY? • Overall societal need to understand • In case of reduction of active labour force and ageing – HEALTH becomes a valuable resource • Who are healthy- who are ill (prevention) • To which extent the accessibility is secured and to whom • What are the critical health problems for Estonia (?AIDS, DRUG-ADDICTS, EXTERNAL CAUSES, STRESS, HEART DISEASES, NEOPLASMS?) • What are the priorities in framework of restricted resources

  5. DEVELOPMENT of HEALTH STATISTICS: WHERE • STATISTICAL OFFICE or NATIONAL HEALTH INSTITUTE (on the basis of the unit in MSA and NIHD) • STATISTICAL OFFICE • ADVANTAGES: • Legal framework exists (although disputed) • Population statistics developed • Coverage (if events appear in different sectors) more easily reached • Primary routine for quality checks developed

  6. DEVELOPMENT of HEALTH STATISTICS: WHERE • NATIONAL HEALTH INSTITUTE • ADVANTAGES: • Capacity in medical issues partially developed • Population health related registries developed and in development • Methodological coordination in a systematic way started • Development of coordinated infrastructure started in the framework of digital health record project • Experience in medical information collection • Closer to data providers and main users • Analytical capacity partially already involved • THUS: more easily achievable the main pillars for national statistics — independence, reliability, impartiality, quality

  7. DEVELOPMENT of HEALTH STATISTICS: WHERE • PRESENT DECISION FAVORS DEVELOPMENT OF NATIONAL HEALTH STATISTICS IN STATISTICAL OFFICE • GENERAL RISKS: • Use of personalised data disputed • Trend of reduction of resource allocation for statistics • General low public opinion on reliability and independence of statistical institution • No analytical capacity developed • Infotechnological infrastructure not so well developed • RISKS IN HEALTH ISSUES: • Capacity in medical issues has to be developed from scratch • Capacity of processing population health related data has to be developed • Methodological capacity has to be developed • No experience in medical information collection

  8. DEVELOPMENT of HEALTH STATISTICS: WHERE • MANAGEMENT OF GENERAL RISKS: • RISKS IN USAGE OF PERSONALISED DATA • governmental/parliamentary commission on personalised statistics • establishment of decoding centre • development of organisational, technical and physical measures for secured usage of personalised data in SO • RESOURCE RISKS: • resource pooling from state budget in combination with several (European, Nordic) funds • development of information based training in higher education establishments • pooling analytical capacity of national institutes • annual reporting on main social themes (population, health, economics) to the Parliament • IMAGE RISKS: • establishment of a statistical management board in SO, consisting of representatives of government, scientific community and society at large • data output with better quality • achievement of full coverage for events • dissemination of data to wider public • more targeted outputs with analytical texts • trends and projections in combination

  9. INDEPENDENCE AND IMPARTIALITY OF STATISTICS – THE KEY ISSUES • HOW TO SECURE ? • INDISPUTABLE COVERAGE • INDISPUTABLE QUALITY • INDISPUTABLE TRENDS • ACCESSIBLE AND AVAILABLE • METHODOLOGIES DESCRIBED AND DATA RECALCULATED IN TIME • ……

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