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Special Olympics Healthy Athletes Data WG2013

Special Olympics Healthy Athletes Data WG2013. Matt Holder, MD, MBA Global Medical Advisor - Special Olympics, Inc. Chairman of the Board - Special Olympics Kentucky. Special Olympics. Our Reach Globally. Nearly 4 million athletes

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Special Olympics Healthy Athletes Data WG2013

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  1. Special Olympics Healthy Athletes Data WG2013 Matt Holder, MD, MBA Global Medical Advisor - Special Olympics, Inc. Chairman of the Board - Special Olympics Kentucky

  2. Special Olympics

  3. Our Reach Globally Nearly4 million athletes Nearly50,000 competitions around the world each year—more than 136 competitions hosted each day More than 1 million coaches and volunteers 32 Olympic-type summer and winter sports Special Olympics Accredited Programs inmore than 170 countries 7 Global Regional Offices—China, Egypt, Ireland, Panama, Singapore, South Africa and the United States

  4. World Games® Every two years, the world transcends the boundaries of geography, nationality, political philosophy, culture and religion to come together for the Special Olympics World Games. Alternating between Summer and Winter Games, these are flagship events for the Special Olympics Movement. Featuring more than a week of grueling yet inspiring international competition among thousands of athletes, the World Games are viewed by millions across six continents and more than a half-million spectators including world leaders, celebrities and dignitaries.

  5. Spread the Word to End the Word® Campaign The “Spread the Word to End the Word®” Campaign is a grassroots effort to get people around the world, including the entertainment industry, to stop using the “R-word” (“retard” and comparable words in different cultures). The campaign targets students through school events and social networking, inviting them to sign an online pledge and spread the word on their campuses. To date, nearly 250,000 people have taken the online pledge while millions around the world have signed petitions, displayed banners and taken oaths to stop hurtful language and banish prejudices.

  6. Get Into It® To educate, motivate, and activate all youth to be agents of change, schools in more than 75 countries around the world use the Special Olympics Get Into It® curriculum. Get Into It is a K-12 service-learning curriculum designed to promote acceptance and understanding of people’s differences, motivating them to become advocates for and together with all people. Get Into It has been translated into 23 languages and has reached more than 4.5 million students in general education classrooms. The full curriculum, as well as a variety of interactive web-based components are available for free online.

  7. Unified Sports® Unified Sports® places individuals with intellectual disabilities (athletes) and individuals without intellectual disabilities (partners) side-by-side on competitive sports teams. As the fastest growing sports initiative within Special Olympics, Unified Sports has been shown to raise the self-esteem of all participating athletes—with and without intellectual disabilities.

  8. Athlete LeadershipPrograms Athlete Leadership Programs train Special Olympics athletes to hold meaningful roles as public speakers, board members, sport officials, coaches, photographers and more. By participating in the Special Olympics Movement as leaders, not just recipients of services, athletes help shape the public’s perceptions about what they can do and gain skills that help them excel off the playing field.

  9. Special Olympics Mission To provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities (ID), giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the community.

  10. From the Backyard in 1962… Camp Shriver: Shriver family lawn and home, 1962

  11. To the first Games in 1968…

  12. And to the Games of Today… 4.0 million athletes 200,000 unified partners 260,000 coaches 50,000 competitions 68% are ages 8 to 21

  13. Public’s Knowledge of ID • Worldwide, the public perceives individuals with ID as moderately to severely impaired. • More than 60% believe they are not capable of independent living skills. • In reality, the majority (85%+) have mild impairments and are capable of significant independence.

  14. Public’s Support for Inclusion • Worldwide, the public believes that people with ID should live at home and work in segregated settings. • 55% believe they should live at home. • 48% believe they should work in segregated workplaces. • Worldwide, the public believes that children with ID should learn in separate schools. • Over 60% in all countries support this belief.

  15. Access to Health Care • General public • Believes people with ID receive better health care than the general population.

  16. Healthcare for People with IDD

  17. Access to Health Care • General public • Believes people with ID receive better health care than the general population. • Training of Health Care Professionals • 52% of medical school deans, 53% of dental school deans, 56% of students and 32% of medical residency program directors responded that graduates were “not competent” in treating people with ID.

  18. Life Expectancy Increase +30% +200%

  19. Genetic Acquired Cephalic Intellectual Disability Sensory Impairment Cardio Pulmonary Neurodevelopmental Disorder Genito Urinary Cerebrogenic Conditions Secondary Health Consequences Syndrome Specific Somatic Conditions NeuromotorDysfunction Seizure Disorder Abnormal Behavior Musclo Skeletal Secondary Health Consequences Endocrine - Metabolic

  20. People with Intellectual Disability Motor impairment 20-30% Seizure disorders 15-30% Vision impairment up to 25% Hearing impairment up to 32% Behavioral disorders 15-35%

  21. Secondary Health Consequences Rampant dental decay secondary to the patient’s inability to perform self-care

  22. Fragile X Syndrome Down Syndrome Fetal Stroke ID Neurodevelopmental Disorder Cerebral Palsy Autism

  23. Healthy Athletes

  24. Healthy Athletes

  25. Healthy Athletes 1991 1995 1997 1999 2000 2003 2007

  26. Healthy Athletes • 636 screenings • 56 countries • 149,460 athletes: • Dentistry– 31, 386 • Optometry– 29,892     • Physical Therapy – 23,914 • Health Promotion – 20,924 • Audiology– 16,441 • Podiatry– 14,946 • Medical Exams – 11,957

  27. Opening Eyes • Provides visual screenings • Provides sunglasses to athletes • Provides corrective eyewear • 5.2% Never had an eye exam (US) • 23.5% world wide • 14.6% Eye Disease (US) • 15.8% world wide • 32.7% Need new glasses (US) • 28.2% world wide

  28. Healthy Hearing • Provides hearing screenings • Provides hearing aids to athletes • 41.8% Blocked Ear Canal (US) • 38.6% world wide • 29.1% Failed pure tone testing (US) • 26.8% world wide • 3.5% Need hearing aids (US and worldwide)

  29. FUN Fitness • A Fitness Screening • Flexibility, strength, balance, and aerobic condition • 42.3% needed improvement in balance (US) • 29.3% world wide • 59%% needed improvement in flexibility (US) • 33% needed improvement in strength (US) • 49% world wide • 66% Exercising more than 3 days per week (US) • 38% world wide

  30. Health Promotion • Provide and reinforce healthy lifestyle information to athletes and families • Establish best ways to shape lifestyle choices; promote health literacy of persons with ID • Provide both games-based and community based opportunities for Health Promotion • 24% Low bone density (US) • 20% world wide • 75% Obese and overweight (US) • 33% world wide • 5.3% Use Tobacco (US) • 31% world wide

  31. Fit Feet • Provides screenings of the feet and ankles • Assesses the correctness of footwear • Provides community referral as needed • 51% of females and 59% of males are wearing the wrong size shoes!! • 25% had ingrown toenails • 11% had athlete’s foot

  32. Special Smiles • Provides dental screenings • Provides mouth guards for athletes in contact or high-risk sports • 12% in active dental pain (US) • 14% world wide • 24% had untreated dental decay (US) • 37% world wide • 47% had gingival signs (US and world wide) • 9.4% Needed urgent dental treatment (US) • 14.2% world wide

  33. Decay

  34. Abscess

  35. MedFest • Provides a free sports physical and other health screenings to any potential Special Olympics athlete • Provides referrals to community health providers • 25% are taking medications which can negatively impact the athletic experience • 22% had at least one previously undiagnosed medical condition

  36. Medication Risks • Major Health Risk Categories • Long QT Syndrome (cardiac arrhythmia) • Weight Gain • Osteoporosis (low bone density) • Constipation • Sun Sensitivity • Reflux • Carries (dental cavities) • Dehydration

  37. Medication Risk • Long QT Syndrome (cardiac arrhythmia) • Rule of 5% • 5% of SO athletes take an at risk medication • 5% of those athletes will have long QT syndrome • 5% of athletes with long QT will have a cardiac event • Detection - medication screening tool and EKG • Prevention – switch medications, do not engage in sports that elevate the pulse (e.g. bocce or bowling), know where the nearest AED is, in case of cardiac event.

  38. Medication Risk • Weight Gain • Another rule of 5% - in SO athletes these medications appear to cause, on average, a 5% increase in body mass compared to athletes not taking these medications. • Detection – bathroom scale, BMI chart • Prevention – switch medications, encourage portion control and better eating habits

  39. Medication Risk • Osteoporosis (low bone density) • Another rule of 5% - about 5% of SO athletes have Osteoporosis • About 15% of SO athletes have osteopenia • The lower the bone density, the higher to bone fracture risk • 21% of SO athletes have broken a bone • Athletes that take these medications have bone density scores that are 0.6 less on average than other SO athletes. • 0.0 vs -0.6 (-1.0 = osteopenia) • Detection – DEXA or peripheral bone scan (at HP venue) • Prevention – switch medications, weight bearing exercise, more sunlight, more vitamin D, more calcium. Avoid sports with trauma potential if t-scores are lower than -2.5 (osteoporosis).

  40. Medication Risk • Constipation • Laxatives are one of the most common prescribed medications to people with ID (up to 48%) • If bad enough, constipation can lead to impaction and intestinal rupture • Detection – the first sign might be behavioral changes in the athlete, decreased desire for sports. Just ask or get a history from the family/caregivers. • Prevention – high fiber diet, laxatives, hydration

  41. Medication Risk • Sun Sensitivity • Around 20% of SO athletes take medications that can cause sun sensitivity (easy burning, or rash associated with sun exposure) • Detection – redness, rash, blistering or peeling of skin on sun exposed areas • Prevention – medication review, sun screen, long sleeves, hat, pants, sunglasses.

  42. Medication Risk • Reflux • Very common problem in patients with ID (up to 36%) • Causes “heartburn”, can lead to behavior problems, eating problems, enamel erosion and tooth loss, esophageal cancer • Detection – May appear as behavioral problems, may be detected by dentist at Special Smiles if they see “posterior enamel erosion”, definitive testing comes from a GI specialist • Prevention – Medication review, anti-reflux medications

  43. Contact Thank You! mattholder@aadmd.org – Global Medical Advisor

  44. Special Olympics Special SmilesWorld Games 2011 Steven P. Perlman D.D.S, M.Sc.D, D.H.L. (hon) Senior Global Clinical Advisor and Founder Special Olympics Special Smiles Professor of Pediatric Dentistry Boston University School of Dental Medicine President American Academy of Developmental Medicine and Dentistry Allen Wong, DDS, EdD, DABSCD North America Clinical Advisor Special Olympics Special Smiles Professor, Dental Practice- Director AEGD and Hospital Dentistry Program Pacific Dugoni School of Dentistry

  45. Special Smiles Program-outline • History of the Beginnings of Special Smiles (Steve) • Spread of SOSS • Special Smiles and AGD • Where we were and where we are going with Smiles • CAMBRA and Special Olympics ( Allen) • Raisin and Special Olympics • Getting involved with Special Smiles

  46. World Games 2011 Results • To be updated

  47. CAMBRA and Special Smiles • Caries Management By Risk Assessment and “legal” • Getting training • Implementing facets of CAMBRA

  48. Pictures

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