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EUROCHIP Pilot Study

EUROCHIP Pilot Study. UK. Dr. Finian Bannon Dr. Anna Gavin N. Ireland Cancer Registry. Waiting Times & Compliance with Guidelines. Talk outline. Background UK Waiting Times Initiative UK National Cancer Audit EUROCHIP Pilot Study in UK Issues for Clarification. 1. Background.

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EUROCHIP Pilot Study

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  1. EUROCHIP Pilot Study UK Dr. Finian Bannon Dr. Anna Gavin N. Ireland Cancer Registry Waiting Times & Compliance with Guidelines

  2. Talk outline • Background • UK Waiting Times Initiative • UK National Cancer Audit • EUROCHIP Pilot Study in UK • Issues for Clarification EUROCHIP

  3. 1. Background • Waiting Times a political issue - Mr Andy Kerr, Scottish Minister of Health, reported in May 2006: "Cancer waiting times performance across the NHS isn't good enough”. • Targets exist and they are monitored EUROCHIP

  4. Scottish Cancer Waits Targets GP referral for suspected cancer First Treatment for all cancers First treatment: Breast cancer, acute leukaemia, and children's cancer 31 days 62 days for all cancersfrom urgent GP referral.

  5. Welsh Cancer Waits Targets GP referral for suspected cancer Diagnostic phase (CT, MRI, endoscopy, biopsy, etc) and MDT First Treatment Decision to Treat made 31 days for all cancers 62 days for all cancersfrom urgent GP referral.

  6. English Cancer Waits Targets GP referral for suspected cancer First seen for suspected cancers Diagnostic phase (CT, MRI, endoscopy, biopsy, etc) and MDT First Treatment Decision to Treat made 14 days 31 days for all cancers 62 days for all cancersfrom urgent GP referral. Strict Monitoring!

  7. 1. Waiting TimesNorthern Ireland • Health Minister is advocating a monitoring system • Has adopted some of the English Waiting Times targets, e.g. max. 2 week wait • Currently civil servants looking at • definitional issues • data capture e.g. electronic at hospital multi-disciplinary team meetings (MDT) • Registry has 5 yearly retrospective timelines for major cancer sites EUROCHIP

  8. Cancer Services Audit 1996 & 2001 www.qub.ac.uk/nicr EUROCHIP

  9. 2. National Cancer AuditCompliance with guidelines • Scotland prospective cancer audits • Northern Ireland 5 yearly retrospective audits and beginning prospective MDT data collection • England no national audit of cancer services, but regional initiatives NYCRIS, and site specific e.g. BASO (breast), BAUS (urology). • Wales no national audit of cancer services but some site specific audits, e.g.NBOCAP EUROCHIP

  10. EUROCHIPProgress to date

  11. EUROCHIP-Progress to date • Sent out the protocol to all UK registry’s • 9 of 11 have responded to date • Responses represent 66% of UK population • Feedback has been helpful EUROCHIP

  12. Population and Sample 68.6 % positive response (registries in red) EUROCHIP

  13. Clarification issues

  14. 3 clarification issues • What do options for SOURCE mean? • What does active/passive mean? • What sampling level is required? EUROCHIP

  15. 1. Meaning of Source Options‘Yes’ interpretations? • Yes • We collect it routinely • It generally exists in this source, but may not be routinely collected by cancer registry • For this sampled patient, we found a record of it in this source EUROCHIP

  16. 1. Meaning of Source Options ‘No’ interpretations? • We do not collect it routinely, but it may exist in this source. If it doesn’t exist in this source, then ‘NA’. • For ‘X’ sampled patient, we could not find a record of this information in this source. ‘NA’ means it never exists in this source. EUROCHIP

  17. 1. Meaning of Source optionsQuestionnaire completion 1. Are we assessing routine registry sources? Registries recorded ‘Yes’ if that source provided data for the registry, i.e. some rows empty? Or 2. Are we assessing all the data sources irrespective of what registries routinely receive ? i.e. a tick in each row? EUROCHIP

  18. 2. Definition of Active and Passive? • Is passive where data comes in automatically, creates records, and populates fields in the registry database. • Does active involve any human intervention, even, for instance, reading a pathology report that comes into registry on a file. EUROCHIP

  19. 3. Sample Size • Difficult to assess the local sources of information with 3-20 cases EUROCHIP

  20. Summary • Monitoring Waiting Times is high on agenda for UK • We feel the we have undertaken pre-pilot of the Pilot Study • Need Clarification • Interpretations of ‘Yes’, ‘No’, and ‘NA’ • Definition of active/passive • Sample Size EUROCHIP

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