1 st ANNUAL GENERAL MEETING

1. 1st ANNUAL GENERAL MEETING

2. Agenda • Welcoming • Presentation & Discussion of Annual Report • Open Positions on the Board of Directors • Discussion of new Committees • Fundraising • Music Festival on May 3rd • 94.7 Cycle Challenge • BEE Certificate

3. Agenda – ANNUAL REPORT Annual Report will be available on www.sofftsa.org as from Monday 14 April 2014

5. Agenda – ANNUAL REPORT

6. Agenda – ANNUAL REPORT Families Primary Support Facebook Page Reach: 253 805 Website: 232 108 visits of which 64 707 are unique visitors. Secondary Support 84 Tertiary Support 10 Children Primary Support Direct Contact: 107Indirect Contact: 560 Secondary Support 84 Tertiary Support 11 SiblingsPrimary Support Direct Contact: 58Indirect Contact: 840 Secondary Support 210 Tertiary Support 5

7. Agenda – ANNUAL REPORT Strategic Partners

8. Agenda – ANNUAL REPORT • Key Results Areas • Genuine Care – SOFFT will not simply dispense sympathy over a quick cup of tea. Our families will be genuinely loved and cared for on all levels, especially on a spiritual and emotional level. Special attention will be paid to bereavement counselling. Additional effort will be put into continuing SOFFT’s relationship with families in the event that the child affected with the serious medical condition passes away. • Psycho-social Support • Social Support Networks • Parent-Child Creative Workshops / Activity Workshops • Sibling workhops • Volunteer / Ministry Guidance

9. Agenda – ANNUAL REPORT Key Results Areas Funding – SOFFT will be financially healthy and stable and will have funds available according to its operational budget. After meeting a family’s most critical medical funding needs, SOFFT will pay particular attention to implementing sustainable long term solutions to the family’s medical funding problems. Opening balance: R0.00 Income: R119 179.60 of which R90 320.20 came from donations. Expenses: R104 412.50 Closing balance: R14 767.01

10. Agenda – ANNUAL REPORT Key Results Areas Sponsorships Received; Satellite Internet @ R899 for home office for 36 months.Security Gates: R8000 (SOFFT paid the remainder of R1000) Design Services : 826 hours at R350 per hour: R302 400

11. Agenda – ANNUAL REPORT Key Results Areas In the past financial year SOFFT funds were spent in the following way. Operational Costs: R38 286.55 Bank Fees: R 2099.20 Transportation: R11 587.85 Communication: R3984.00 Fundraising: R20 615.50 Assistance provided: 27 932.16 Food Relief: R11 540.00Medical Bills: R5 433.39Services Subsidised: R10 958.77

12. Agenda – ANNUAL REPORT • Key Results Areas • In the past financial year SOFFT funds were spent in the following way. • Other Assistance: • Return Flights x 4: 2 Return flights from JHB to Cape town for Heart Surgery, 2 x Return Flights from Durban to Cape Town for heart Surgery. • Referrals: Referral of a family to The Solidarity Helping Hand Project for Food and Social Assistance. Referral of a family with a terminal cancer patient to a play therapist for emotional support and preparation. • Project Costs: R38 193.83 • SOFFT Family Wellness Centre: R38 193.83

13. Agenda – ANNUAL REPORT • Key Results Areas • In the past financial year SOFFT funds were spent in the following way. • Other Assistance: • Return Flights x 4: 2 Return flights from JHB to Cape town for Heart Surgery, 2 x Return Flights from Durban to Cape Town for heart Surgery. • Referrals: Referral of a family to The Solidarity Helping Hand Project for Food and Social Assistance. Referral of a family with a terminal cancer patient to a play therapist for emotional support and preparation. • Project Costs: R38 193.83 • SOFFT Family Wellness Centre: R38 193.83

14. Agenda – ANNUAL REPORT • Key Results Areas • Infrastructure – SOFFT will focus on building a successful flagship SofftShell in Pretoria, as well as mini shells in the various State Hospitals in and around Pretoria and then replicating these models in all the towns across South Africa, building a dynamic and effective network, based on strong partnerships with local communities, state institutions and independent organizations • The SOFFT Family Wellness Centre currently provides the following services; • · Play Therapy , using child life principals • · Occupational Therapy • · Song and music therapy

15. Agenda – ANNUAL REPORT

16. Agenda – ANNUAL REPORT

17. Agenda – ANNUAL REPORT • Key Results Areas • · Therapy through art • · Equestrian Therapy • · Parent — Child Workshops • · Social Integration opportunities • · Health Awareness days with appropriate screening.

18. Agenda – ANNUAL REPORT

19. Agenda – ANNUAL REPORT

20. Agenda – ANNUAL REPORT • Key Results Areas • The obstacles that we are facing include the following: • Approach is a delicate education process • Cultural Differences • Lack of Marketing Budget

21. Agenda – ANNUAL REPORT • Key Results Areas • Policy – SOFFT advocacy positions will be disseminated widely, and SOFFT will work to take hands with all involved state organizations in order to elevate the minimum level of competency in advocacy/policy and health care standards. • Strategic Partnerships

22. Agenda – ANNUAL REPORT • Seminar on 6 June 2014

23. Literature that has been submitted for approval by Paediatric Cardiac Society • Of South Africa and Department of Health

24. Literature that has been submitted for approval by Paediatric Cardiac Society • Of South Africa and Department of Health

25. Literature that has been submitted for approval by Paediatric Cardiac Society • Of South Africa and Department of Health

26. Literature that has been submitted for approval by Paediatric Cardiac Society • Of South Africa and Department of Health

27. Literature that has been submitted for approval by Paediatric Cardiac Society • Of South Africa and Department of Health

29. Agenda – ANNUAL REPORT • Key Results Areas • Diversity/Cultural Competence – SOFFT’s leadership will both reflect and serve – to a high level of satisfaction – our diverse constituency • Empowerment – SOFFT will empower the families to remain / become self sustaining and its activities will be aimed at avoiding the cultivation of a culture of dependency on financial assistance from SOFFT. • Awareness Tools • Entrepreneurial Skills • Fund management – R53 000

30. Agenda – ANNUAL REPORT

31. Agenda – ANNUAL REPORT • Awareness Committee: • public places: creating awareness • Parents • Volunteers • students, anyone. • Recruit Patrons and Ambassadors. • Fundraising & Marketing Committee • fundraising events • donations. • Marketing • membership program • loyalty program • debit order giving

32. Agenda – ANNUAL REPORT • Volunteer Committee • recruit and co-ordinate volunteers. • Presenting • service hospital wards • setting up drop off and collection points for donations and awareness material

33. Agenda – BOARD POSITIONS • Role of the Board • Board directors are trustees who act on behalf of an organization's constituents. • The board of directors has the principal responsibility for fulfillment of the organization's mission and the legal accountability for its operations. • This means that as a group they are in charge of establishing a clear organizational mission, forming the strategic plan to accomplish the mission, overseeing and evaluating the plan's success, hiring a competent executive director and providing adequate supervision and support to that individual, ensuring financial solvency of the organization, interpreting • and representing the community to the organization, and instituting a fair system of policies and procedures for human resource management.

34. Agenda – BOARD POSITIONS • Current Board • Chair Person: Ross Welsh • CEO: Liza Welsh • Secretary: Elmarie van Niekerk • Treasurer: ? •  Vice Chair Person: ? • Other Members:?