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The Right to Work and Study

The Right to Work and Study. The Finnish Neuromuscular Disorders Association Liisa-Maija Verainen Co-ordinator employment services. disability policy paper. ”Nothing about us without us” EQUALITY PARTICIPATION- INCLUSION

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The Right to Work and Study

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  1. The Right to Work and Study The Finnish Neuromuscular Disorders Association Liisa-Maija Verainen Co-ordinator employment services

  2. disability policy paper ”Nothing about us without us” EQUALITY PARTICIPATION- INCLUSION NECESSARY SERVICES Becoming new policy paper 2010 - 2015 → a strong foundation for the human rights, non-discrmination, equality and inclusion

  3. convention United Nations Convention on the Rights of Persons with Disabilities → not yet ratified → disability is a human right

  4. Situation • The pathway to the world of work is still blocked • Inaccesbility of the built enviroment, public transport, attitudes, lack of information about available solutions and funding for those solutions etc. • Alternative paths to the work, shorter hours and flexible arrangements provide opportunities

  5. Work ability index of disabled persons in Finland in 2010

  6. Results of the research • Inquiry research for disabled persons: employment, willingness to work, working ability. • 35 % of disabled persons have excellent or good working ability. • Slightly less than 50 % of disabled persons are trying to get work, hence in Finland there are about 23 000 disabled persons with good working ability willing to work. • Technical device and accessibility of working environment would enable many of the disabled to work.

  7. The disabled persons’ estimate of their present work ability compared to their life-time best (10.0) in 2010

  8. The work ability index of disabled persons by age and sex in 2010 in Finland

  9. integration - inclusion

  10. human life cycle

  11. clients anf themes

  12. peer support Our guiding principle is peer support. This means mutual support and the sharing of experiences. People with neuromuscular disorders can meet in a safe and approving atmosphere, exchange views and discuss how they have managed to move on and to cope better. TRAINING INFORMATION (publications, Facebook) REHABILITION COURSES

  13. employment services • Support children`s school choices and equal schooling • Vocational guidence & career planning • Activate independent job seeking • Maintain and improve working capacity • Monitoring rights of disabled people • Working with authorities, employers • Development

  14. training • Peer support • Disability and job search • The first impression • Working & disability pension • SOB – statement of benefit • Job search documents • Portfolio

  15. Working & disability pension • Disability pension can be left to rest (min. 3 months, max. 2 years), entitlement remains, but payment is stopped earning-related pension (earning limits) national disability pension (Kela), 600 euros/ month

  16. vocational rehabilition system • ”Bulgarian ornament ”/ lace • OECD Sickness, disability and work report: Finnish vocational rehabilition system too complicated • Lack of coordination, no solidarity between authorities, not customer friendly • Disablity organisations are part of a formal rehabilitiion system (service provided)

  17. vocational rehabilition system and funding • Earnings-related pension insurer companies • The Social Insurance Institution (Kela) • Labour administration • Insurance Company (occupational disease and injury)

  18. FNDA vocational rehabilition services • Working capacity courses (The Social Insurance Institution) • Return to work plan (earnings-related pension insurer) • Work place visit (earnings-related pension insurer work place enviroment, ergonomics → opinion, recommendation, teamwork

  19. working capacity courses • Two courses per year • a multiprofessional team consisting: neurologist psychologist social worker physiotherapist occupational therapist expert specializing in working life issues

  20. TYYNE = Working capacity rehabilition course TESTING (5 DAYS) PEER SUPPORT BIO, PSYCHO SOCIAL TESTS INFORMATION PORT FOLIO MOTIVATION (10 DAYS) PEER SUPPORT WORK PLACE ENVIROMENT ERGONOMICS BIO, PSYCHO, SOCIAL APPROACH WORKING LIFE ISSUES CAREER PLANNING PORTFOLIO WORKPLACE VISIT CONCLUSION ( 4 DAYS) PEER SUPPORT FINAL TESTING BIO, PSYCHO, SOCIAL APPROACH RECOMMENDATIONS PORTFOLIO FOLLOW-UP (WRITTEN QUESTIONNAIRE) TWO TIMES CLIENT OCCUPATION HEALTH EMPLOYER

  21. disability rights monitoring The Finnish Disability Forum • Network of employment experts • Non-discrimination Act, Disability Act Vates Foundation Own statements

  22. development - The Finnish Institute of Occupational Health Barrier-free working enviroment for disabled- people ( recommendations, evaluation form) - Back to work -Rehabilitation Network RehabNET: vocational rehabilitation orders transmitted over the Internet

  23. development ICF AND BIOPSYCHOSOCIAL (BPS) APPROACH TO EVALUATE LEARNING DIFFICULTIES ICF = International Classification of Functioning, Disability and Health (WHO) - boarder than WHO´s ICD classification - takes into account the social aspects of disability – does not see disability only as a medical disfunction

  24. Contact Person Lihastautiliitto ry The Finnish Neurmuscular Disorders Association liisa-maija.verainen@lihastautiliitto.fi www.lihastautiliitto.fi

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