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Forward for Life: Helping our Recipients Give Back

The Forward Focus Excellence in Organ Donation Collaborative aims to increase organ donors through shared vision and collaboration across donor hospitals, OPOs, and transplant centers. This initiative has led to a 66% increase in donors and the potential to save 200 more lives annually. The program involves a phased approach, team organization, material development, and feedback collection to improve patient and family awareness, engagement, and satisfaction in organ donation.

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Forward for Life: Helping our Recipients Give Back

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  1. Forward for Life: Helping our Recipients Give Back UNOS Region 7 Educational Program February 13, 2015 Jaime Myers, RN, MSN, CCTC

  2. Background: Forward Focus The Forward Focus Excellence in Organ Donation Collaborative is an initiative aimed at moving a donation process that works in silos to a process that has a shared vision, collaboration and accountability across the donor hospital, OPO and transplant center.

  3. What Is The True Denominator for Potential Organ Donation? EligibleDeaths Other Potential Donors (DCD, > age 70, etc.) Other Potential Donors Not Declared Brain Dead

  4. UWHC OPOActualDonor and Potential Donor Data Analysis Cumulative data indicates a possible 66% increase in donors.

  5. The Possibility Current State Breakthrough Improvement 200 more lives saved each year!!

  6. Collaborative Engine & Timeline LS 1 LS 2 LS3 Nov2012 Mar 2012 Apr 2013 9 Largest Donor Hospital CEOs Committed and Teams Enrolled Enroll ParticipantsDec 2011 Support System • ListServe • Site Visits • Conference Calls • Rapid Sharing • Data Reporting • Website Select TopicMay and June 2011 Prework Identify Change ConceptsOct and Nov 2011 Planning GroupJul and Aug 2011 22 Faculty Members Committed Theda Clark Facilitator Commitment of 8 hrs/week

  7. Team Transplant: Identify a Problem Limited means to communicate to patients and live donors about how they could assist with the promotion of organ donation. Transplant staff had limited materials and information on where to point patients who did inquire.

  8. Goals Increase number of volunteers throughout the UW Organ & Tissue Donation service area Increase in volume of thank you’s sent to donor families and donor hospitals Increase in state registry volumes Increase number of donors Improve patient satisfaction

  9. Aim Statement To develop a formal program to heighten patient and family awareness of the need for organ donation and to better engage patients in donation awareness activities to increase organ donation.

  10. Organize a Team • Transplant surgery • Inpatient Nurse Manager • Transplant coordinators • Transplant Recipient • Administrative support • Marketing • OTD Hospital Liaison • Live donor

  11. Target Population 1000+ wait list patients 5600+ transplant recipients 2900+ live donors Family members of all groups More than 10,000 people we can target to help with our mission!

  12. Material Development • Attended patient support group to elicit ideas: • Provide patients with folder/packet at time of discharge with information and materials on organ donation. Materials provided can include volunteer information if patients wish to get involved at this time. Also, ways they can share their story, and information on community activities. Provide trinkets (bracelets, bumper stickers, pins) that patients might be willing to wear. • It seemed patients would want to wait until they received the transplant, rather than being confronted about this while on the waiting list. • Should wait to have discussions with patients to solicit their further involvement until 1st year anniversary.

  13. Materials

  14. Study: How are the materials doing? Methods: Survey Monkey emailed out to patients who had a completed one year anniversary visit in our study period (August 2013-April 2014). 51 Surveys completed

  15. Study Findings

  16. Survey Findings

  17. Survey Findings

  18. Study Findings

  19. Study Findings

  20. Study Findings

  21. Study Findings

  22. Ways of Giving Back

  23. Staff Survey

  24. Staff Survey • Folders moved to more convenient location • Education to staff

  25. Results

  26. P. H. 45-year-old male 08.29.2014 Letter from transplant recipient to team that cared for donor

  27. Other Acknowledgement Forward For Life project/folder/materials won an Award of Excellence and a Judges Choice Award at the Wisconsin Public Relations and Healthcare Marketing Society annual conference Fall 2013

  28. Phase 2 Plan: Develop additional ways to help recipients thank donor hospitals Do: Record videos of patients Check: Feedback from donor hospitals

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