NATIONAL EHDI MEETING February 13, 2002

1. NATIONAL EHDI MEETINGFebruary 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY HEALTH TRACKING FROM BIRTH CDC/MCHB

2. LEGISLATION • No enacted legislation • Two pending State Bills • Medicaid (June, 2000) policy requiring all newborns have a hearing screen in-hospital or within first month of life CDC/MCHB

3. POPULATING THE DATABASE/DATA ITEMS • Reporting through metabolic screening with a separate pull out hearing card • Hospitals have responded well to this system as it is familiar • Hearing does not interfere with other reporting to MDCH CDC/MCHB

4. DataBase Tracking • MDCH currently uses FOXPRO software for blood spot screening • Because newborn hearing is linked to that database, we also use FOXPRO • Both databases have converted to an Access program for report generation CDC/MCHB

5. RED NUMBER IS INVENTORY NUMBER HEARING SCREEN PAGE BAR CODE FOR MATCHING FOURTH SHEET ON CARD BENEATH NBS SHEETS BLUE AREA FOR HEARING RESULTS CDC/MCHB

6. EFFECTIVENESS OF SYSTEM • Process has been well accepted as hospitals are accustomed to system • Has made NBS look at data integration as important relative to the finding of newborns with missed screens CDC/MCHB

7. BIRTH CERTIFICATES/DATA INTEGRATION • Three projects are occurring • Data integration with Michigan Birth Defects Registry • Pilot project for hospitals to use electronic birth certificate system for reporting hearing • Medicaid integrated data system CDC/MCHB

8. Birth Defects Registry • Case finding project with Vital Records, Birth Defects Registry (BDR) to capture reported hearing loss. • EHDI to BDR (confirms DX codes and adds new cases to database) • BDR to EHDI (adds new cases to ensure follow-up for infants) • BDR is reported monthly by law CDC/MCHB

9. Electronic Birth Certificates • Approximately 80% of Michigan birth certificates are reported electronically bi-weekly • 100% reported within four weeks • Exploring Web based reporting of birth certificates CDC/MCHB

10. Michigan’s Medicaid system is also developing a statewide system to store and integrate data – Executive Information System/ Decision Support System • Enhance Medicaid information by identifying patterns of behavior across recipients and providers • Build supporting infrastructure to expand integration, access and analysis of data CDC/MCHB

11. HEALTH CARE PROVIDER REPORTING/COLLABORATION • Michigan’s EHDI Program receives information in a variety of ways • Primary care physicians/clinics • Part C of IDEA (Early On) • State audiologists • Maternal Support System/Infant Support System (Medicaid program) CDC/MCHB

12. Counties with All Students Achieve Program-Parent Information and Education grant participants • Children’s Special Health Care Services • Local Public Health Nursing contacts • Have shared information with WIC and information will be added to their intake histories on newborn hearing and possible acquired hearing loss concerns for the older age group CDC/MCHB

13. We have developed a system of facsimile forms to notify and receive information back from collaborating providers • Many audiologists use a reporting form, but we accept their audiological reports in FAX or written form CDC/MCHB

14. PARENTS AND FAMILY • Hospitals have been asked to notify parents of the hospital newborn hearing screen • We also request that they share our brochure or one they have developed with families CDC/MCHB

15. In March of 2001, we developed a parent signature form allowing the EHDI program to refer, follow-up and collect pertinent information • We have supplemented hospital efforts with information to prenatal classes • We also have a new parent consultant who has developed information systems for parents CDC/MCHB

16. CONTACT INFORMATION • Anne Jarrett, Follow-Up Consultant • 517/ 335-8878 • Jarretta@michigan.gov • Debby Behringer, Com. Dev Consultant • 517/ 335-8875 • Behringerd@michigan.gov • Amy Lester, Parent Consultant • 517/335-8273 • Lestera@michigan.gov FAX 517/335-8036 CDC/MCHB