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First Annual National EHDI Meeting

First Annual National EHDI Meeting. Panel on Operating Effective Screening Programs South Carolina Jane Lukshis, MN, RN Nurse Consultant- DHEC Division of Children with Special Health Care Needs. Count Their Fingers Count Their Toes Test Their Hearing

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First Annual National EHDI Meeting

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  1. First Annual National EHDI Meeting Panel on Operating Effective Screening Programs South Carolina Jane Lukshis, MN, RN Nurse Consultant- DHEC Division of Children with Special Health Care Needs

  2. Count Their FingersCount Their ToesTest Their Hearing Because Babies Can’t Tell Us If They Can’t Hear

  3. Background-1996 • Conducted a needs assessment specific to SC and results were consistent with national findings:  Hospitals were only screening newborns with risk indicators (2 hospitals were screening all newborns)  Average age of identification was 2 ½ to 3 years of age   Limited number of audiologists providing services to infants identified with a hearing loss

  4. January – July, 1997 • Established statewide Advisory Council • DHEC- serve as Lead Agency • SC Perinatal Association • Audiologists • SC Department of Education • Early Intervention Programs • Title V and Part C Programs • SC School for the Deaf and Blind

  5. January – July, 1997 (cont.) • Established statewide Advisory Council • Governor’s Office • Speech-Language Pathologists • Neonatologists • Otolaryngologists • Pediatricians • AG Bell • Bureau of Health Licensing- DHEC • South Carolina Medical Association

  6. January – July, 1997 (cont.) • Established statewide Advisory Council • DHHS- Medicaid program • USC Schools of Public Health & Medicine • SC Academy of Audiologists • SC Association of the Deaf • SC Hospital Association • SC State Office of Rural Health • Nursery staff • Parents of children with hearing loss

  7. January – July, 1997 (cont.) • Created 4 subcommittees from the Advisory Council Tracking and Data Management- responsible for developing hospital screening and audiology evaluation forms; and tracking methods Funding- responsible for exploring payment/reimbursement options for in-patient screens and audiologic follow-up

  8. January – July, 1997 (cont.) • Created 4 subcommittees from the Advisory Council Education- responsible for developing public awareness and educational materials Early Intervention- responsible for assessing SC’s capacity to provide services for infants identified with a hearing loss

  9. August 1997- December 1999: Implemented Pilot Project  8 hospitals volunteered to participate (represented 24% of annual births statewide)  ABR or AABR technology used for in-patient screens  Hospital screening and audiology evaluation forms sent to DHEC for tracking purposes

  10. Level I Level II Level III

  11. Data analysis of pilot Revisions in the hospital protocols, introduction of an electronic data monitoring and tracking system, and referrals to Family Support Services resulted in a 99.9% capture rate, referral rate <4%, and 6% lost to follow-up.

  12. January 2000-June 2001 • Developed a work plan to implement statewide early hearing detection and intervention  Intensified our collaborative efforts with SC Hospital Association  Arranged for NATUS and Pediatrix, Inc. to provide technical assistance  Met with representatives from all 48 birthing centers and conducted a “readiness” assessment

  13. January 2000-June 2001 (cont.)  Outlined which hospitals on a monthly basis we would bring on board  Funded legislation was passed in June, 2000 mandating that newborn hearing screening prior to hospital discharge be conducted in hospitals with at least 100 births annually beginning July, 2001

  14. January 2000-June 2001 (cont.)  Contracted with a consulting firm to develop an Internet based data entry and tracking system  Developed First Sound brochure (available in English and Spanish)  Completed statewide implementation in May, 2001

  15. Data analysis 1/00-6/01

  16. Infants with confirmed hearing loss: n= 84

  17. Confirmed HL with risk factors

  18. Laterality of confirmed hearing loss

  19. Right Ear versus Left Ear (all confirmed hearing loss)

  20. Types of hearing loss (all confirmed hearing loss)

  21. Degrees of hearing loss( all confirmed hearing loss)

  22. Unilateral- types of hearing loss

  23. Unilateral- degrees of hearing loss

  24. Bilateral- types of hearing loss

  25. Bilateral- degrees of hearing loss

  26. July 2001 to present • Funded legislation effective July, 2001 • All 48 birthing centers are screening newborns prior to discharge and submitting data electronically to DHEC • Statewide implementation of Internet based application in progress, to include access and entry by hospitals, audiologists and PCP

  27. July 2001 to present • Completed a statewide PR campaign in December, 2001 which included PSAs and bill boards • Full time Program Manager, Program Coordinator and Data Manager • Continue to provide trainings, in-services and oversight for hospitals and audiologists • Strengthened our links with other programs to ensure follow up activities occur from hospital screening through early intervention

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