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Resources for Caregivers of Persons with Dementia & Intellectual Disabilities

Resources for Caregivers of Persons with Dementia & Intellectual Disabilities. ADSSP Call. February 14, 2013. http://alzheimers.gov/ http://alzheimers.gov/down_syndrome.html. http://www.eldercare.gov/. National Alzheimer’s Contact Center Call 800-272-3900 Staffed 24/7

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Resources for Caregivers of Persons with Dementia & Intellectual Disabilities

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  1. Resources for Caregivers of Persons with Dementia & Intellectual Disabilities ADSSP Call February 14, 2013

  2. http://alzheimers.gov/ http://alzheimers.gov/down_syndrome.html

  3. http://www.eldercare.gov/

  4. National Alzheimer’s Contact Center • Call 800-272-3900 • Staffed 24/7 • Information also available on-line, via email, message boards, etc.

  5. http://www.nia.nih.gov/alzheimers NIA’s Alzheimer’s Disease Education and Referral (ADEAR) Center 1-800-438-4380Mon-Fri, 8:30 am-5:00 pm Eastern Time adear@nia.nih.gov • Focus on research-based information • Referral to government and organization resources

  6. According to NIH, “Today, at least 50,000 volunteers, both with and without Alzheimer’s, are urgently needed to participate in more than 175 actively enrolling clinical trials and studies in the United States. To reach that goal, researchers will need to screen at least half a million potential volunteers.”  

  7. http://www.nia.nih.gov/alzheimers/alzheimers-disease-research-centers#adcshttp://www.nia.nih.gov/alzheimers/alzheimers-disease-research-centers#adcs NIA-funded Alzheimer’s Disease Centers (ADCs): • ADCs conduct research to improve diagnosis and care and test treatments • Help with obtaining diagnosis and medical management • Opportunities to participate in research

  8. http://www.nia.nih.gov/alzheimers/clinical-trials NIA ADEAR Search for Alzheimer’s Clinical Trials Find trials by: • Location • Eligibility criteria • Drugs tested • Featured trials • ADEAR phone support1-800-438-4380 • Sign up to receive e-alerts, RSS when new trials posted/updated

  9. Web Address: http://www.alz.org/trialmatch Phone: 1.800.272.3900

  10. AoA Alzheimer’s Page • http://www.aoa.gov/AoARoot/AoA_Programs/HPW/Alz_Grants/index.aspx, includes the following: • Information on ADSSP • Links to prior webinars on various dementia-related topics • Stay tuned for upcoming 2013 ACL/NIH webinar series which will include a session on dementia & intellectual disabilities

  11. Questions? Amy Wiatr-Rodriguez, MSW U.S. Department of Health and Human Services, Administration for Community Living, Chicago, IL 60601 Phone: (312) 938 – 9858 Fax: (312) 886 – 8533 Email: amy.wiatr@acl.hhs.gov Web: www.aoa.gov

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