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Community-Powered Brain Health Research. Joshua R. Steinerman, M.D. Health Inequities Think Tank April 12, 2010. Overview. Healthy Brain AGINg: Why? How? Engaging co-op City: Progress to date planned programs. Multimodal Brain Fitness Interventions. Taking it to the Street.
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Community-Powered Brain Health Research Joshua R. Steinerman, M.D. Health Inequities Think Tank April 12, 2010
Overview • Healthy Brain AGINg: Why? How? • Engaging co-op City: Progress to date • planned programs
Taking it to the Street • Center for Healthy Brain Aging • Engaging Co-op City • Projects underway
Community-based researchCoordinated efforts, shared benefits • The goals of C4HBA at Co-op City are: • To partner with community-based organizations • To promote awareness of brain fitness • To enhance current elder programming using • neuroscientific principles and cognitive technologies • To study brain fitness interventions in community settings
Focus Groups for Community Brain Health Research Design • Brain aging lexicon • Wellness-oriented (Brain Fitness, Healthy Brain Aging) • Disease-oriented (Alzheimer’s, Dementia, Brain Failure) • Brain Failure Knowledge and Attitudes • Attitudes toward participatory research • Attitudes toward technology
Community Brain Health Forum • April 30! • CBO leadership meeting 11AM • Public educational forum 1PM • Mini Brain Health Fair, Refreshments by Fairway
CBO leadership meeting agenda • Suggestions? • Air Tentative Conclusions from Focus Groups • Invite participation in summer survey • Display/distribute paper survey • House a drop-box • Host a survey assistance table session • Summer Youth Employee joint supervision • Invite participation in ongoing community working groups (Data Sharing and Privacy, Reversing Inequities, Public-Private Collaboration)
What’s next? • Community Survey • Sky is the limit
Community Brain Health Survery • Summer 2010 • Knowledge and attitudes about brain aging, participatory research, technology • Current behavior and self-efficacy • Content Suggestions? • Logistics Suggestions? • Internet research ethics and data management • Grassroots survey distribution and collection • Summer youth supervision
Future directions • Community brain aging registry • Pilot interventions • Integrate cognitive outcomes and technology-enabled measurement strategies in allied community-based projects
Thank you • joshua.steinerman@einstein.yu.edu • www.c4hba.org