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NLM Resources to Support Research

NLM Resources to Support Research. Ruth Holst NN/LM Greater Midwest Region University of Illinois at Chicago. CER issues discussed in MLA news. CER Participants. Policy/Decision Makers – need to inform CER policy Practitioners – be aware of CER for their own patients

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NLM Resources to Support Research

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  1. NLM Resources to Support Research Ruth Holst NN/LM Greater Midwest Region University of Illinois at Chicago

  2. CER issues discussed in MLA news

  3. CER Participants • Policy/Decision Makers – need to inform CER policy • Practitioners – be aware of CER for their own patients • Health Services Researchers – help frame CER questions and conduct CER • Patients and Families – participate in studies and need to understand information • Librarians/information Specialists • knowledge of resources • expertise for systematic reviews

  4. Resources • PubMed/Medline • ClinicalTrials.gov • HSRProj (Health Services Research Projects in Progress) • PubMed Health • Community health data • AHRQ • Many more…

  5. Searching: Standards to Resources to Integration • Standard approaches for searching • Guidance for searching efficiency • Information about the full spectrum of resources • Effective formats for incorporating evidence into clinical decision support and patient decision aid systems

  6. Information Retrieval Challenge • Researcher meant • clinical effectiveness research • What their paper said • Population-based study • Quality of life study • Systematic review • Meta-analysis • Outcomes measures

  7. NLM Resources for Informing Comparative Effectiveness http://www.nlm.nih.gov/nichsr/cer/cerqueries.html

  8. NLM Resources for Informing Comparative Effectiveness page

  9. Resources for Informing CER example

  10. HSRProj

  11. ClinicalTrials

  12. ClinicalTrials.gov – The Results Database • FDAAA 801 (FDA Amendments Act of 2007) • Basic Results no later than one year after completion • Sections include: • Participant Flow • Baseline Characteristics • Outcome Measures & Statistical Analyses • Adverse Events

  13. PubMed Health

  14. PubMed Health • AHRQ (Agency for Healthcare Research & Quality) • DARE (Database of Abstracts of Reviews of Effects) from the Centre for Reviews & Dissemination of the UK National Institute for Health Research • Cochrane Collaboration • Other health technology assessment agencies nationally & internationally

  15. Searching Standards

  16. Community Health data

  17. Health Status Indicators Report – 3141 U.S. counties • Demographics  • Summary Measures of Health  • National Leading Causes of Death  • Measures of Birth and Death  • Relative Health Importance  • Vulnerable Populations  • Environmental Health  • Preventive Services Use  • Risk Factors for Premature Death  • Access to Care 

  18. Patients and Families • Interpreting health information • Providing background information • Providing related information • Seeking information at appropriate literacy/health literacy level • Examples of key resources • MedlinePlus • PubMed Health • Genetic Home Reference

  19. Roles for Librarians • How are you currently playing a role in this arena? • What potential do you see? • What do you need to help you professionally? • What does your institution need? • How can the National Library of Medicine help?

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