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Elizabeth Manero, Patient Representative Topol Board,

Elizabeth Manero, Patient Representative Topol Board, Member Health Education England Patient Advisory Forum. An incremental process. How to realise those benefits for patients?. If it doesn’t work for the patient or carer, it doesn’t work

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Elizabeth Manero, Patient Representative Topol Board,

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  1. Elizabeth Manero, Patient Representative Topol Board, Member Health Education England Patient Advisory Forum

  2. An incremental process

  3. How to realise those benefits for patients? • If it doesn’t work for the patient or carer, it doesn’t work • Patients who are never ‘activated’ must not lose out • More power to the patient means a new relationship with the clinician • Patients/carers will not consent to what they do not trust • Helping patients learn to stay well is helping the NHS to succeed

  4. Avoid ‘modernising’ health inequalities • Digital inequalities can map to health inequalities • Already excluded - 12.6 million are offline now • Build Trust – Work with the people they trust • www.goodthingsfoundation.org Widening Digital Participation in Health Programme • Use what we already know • Don’t forget the Transition Generation

  5. Finding the right solution with the right people • Co-production gives new technology the right pedigree • Existing patients groups can help: • Patient participation groups in GP practices • Members in Foundation Trusts • Service user groups in mental health trusts • Local voluntary sector orgs supporting those with health inequalities • Co-production includes feedback after initiation too

  6. A gift of time? • The relationship with patients will change forever – from ‘being done to’ to ‘doing with’ • The technology journey will progress best if it is a shared journey between the NHS and patients. • The gift of time will open up the way to a holistic approach – parity of esteem, improving patient outcomes and NHS productivity.

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