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NATIONAL CONFERENCE, OSLO, APRIL 5TH AND 6TH, 2011. Marit Følsvik Svindseth PhD clinical medicine MHSc. Data in my study collected in Aalesund Hospital, 2 locked , psychiatric emergency units. Perceived Coercion , Humiliation or Violation of Integrity ?.
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NATIONAL CONFERENCE, OSLO, APRIL 5TH AND 6TH, 2011 Marit FølsvikSvindseth PhDclinicalmedicine MHSc
Data in my study collected inAalesund Hospital, 2 locked, psychiatricemergencyunits
PerceivedCoercion, Humiliation or ViolationofIntegrity? How are theseconceptsrelated and is there a differenceregardingtheirimpactonoutcome?
Background 10 yearsofexperience as chief nurse in a psychiatricemergencyunit. Beforethe chief nursebecame a quasiexpertonadministratingwages, controlling all economicaspectsincludingcontrollingeachindividualemployee ++++++ In otherwords, I spent much time withthepatients
COERCION - DEFINITION • The useof force to persuadepeople to do thingswhichthey are unwilling to do The Cambridge Dictionary • Force is explained as usingphysicalpower, influencing or as giving no choice
HUMILIATION Lindner (2002) states: • Humiliationmeans to be placed, against ones will, in a situationwhere one is forced to feelinferior Statman (2000) states: • To be humiliatedmeans to suffer an actualthreat to or fall in one´sself-esteem • Bothdefinitionstouchpainfulfeelings, ratherthancognitiveinterpretationofsituations
INTEGRITY • The former definitionsofhumiliationtellsusthat • Humiliation ≈ violationofintegrity
Patients´ viewoncoercion • In groupsessions and individualinterviewswithpatients (bothvoluntary and involuntarypatients) I recognizedstatements, repeated by many. • The statementsseemed to have theirorigin in emotions, ratherthancognitiveinterpretationsofthesituationstheydescribed
Patients´ statements Whenaskedabouttheirexperiences in theadmissiionprocess, thepatientsstated: • I wasrelievedto, at last, gettinghelp • I felt I wasworthnothing • I wasnotallowed to give my opinion • Nobodylistened to me • I wasfeeling so small… • Theydidnot let me decideanything • I wasforced to followtheparamedicswithoutextra sets ofclothes • I waspersuaded to the hospital and when I wasinvoluntaryadmitted, I felt so stupid and angryofthosewhopersuaded me.
Interest in coercion • The American Coercion Studies (MacArthur Group) inspiredus to gather data in a systematicway by usingchosenquestions from theAdmissionExperienceSurvey (AES), the Nordic AdmissionInterview (NorAI and theAdmissionExperienceInterview (AEI) • Whenexaminingthe instruments, I foundthatthestatements in thesurveyswereverysimilar to whatthepatientsalreadyhad told me
Questioningthescale as ”coercionscale” • My interpretationofthestatements from thepatientswere: • Theydidnotreportcognitiveinterpretationofthesituations • Theyreported strong feelings and thestatementscoveredmanyofthequestions from thecoercionsurveys
MEASURING COERCION • To me, and my discussion partners, it seemed like most ofthequestions in thecoercionsurveysmeasuredperceivedhumiliationratherthanperceivedcoercion
Setting ofthe study • Aalesund Hospital, twoclosedpsychiatricemergencyunits • Eachunit, eight separate rooms, twoofthe beds (rooms) used for seclusion purposes • Data collected in a period from March 1st, 2005 to October 31st 2006
Exclusioncriteria • Dementia • Organicallybasedconfusion • Manic or hypomanicstates • Poorability to speakNorwegian/English • Dischargewithinthe first 48 hours • Readmissions
The sample Involuntary (voluntary) • 191 (160) admissions • 78 (48) mettheexclusioncriteria • 8 (12) declined to take part • 7 (11) were lost due to administrative reason • 98 (88) patientsincluded • Due to a high numberofvoluntaryadmissionsweonlyincludedonpredefineddaysoftheweek • Total sample: N = 186
Questionsmodified from the AES, NORAI and AEI • Criterias for choosingquestionswerethatitemsshould be anchored in statements from patients, theyshould be short and easilyunderstandable. Theyshould be answered by yes or no. Theywerecalled negative experiences • Coercionmeasured as legal coercion status • Humiliation as reports from patientson a scale from 1 – 10 (as the ”coercionladder”)
Back to my basicassumption • Qualitativeinterviews told me thattheselectedquestionsmeasureperceivedhumiliationratherthanperceivedcoercion • The negative experiencequestionshad a Cronbach`salphaof .74, tellingusthattheinternalconcistency is good but it doesnotsaywhetherwe are mesuringcoercion or humiliation
CORRELATIONS N = 186 * Controlled for coercion ** Controlled for humiliation
Negative experiences are much more correlatedwithperceivedhumiliationthan legal coercion A closerlook at one ofthe negative experiences: ”Notbeenheard” Coercionexplains 4.2% ofthevariancewhile Humiliationexplains 25.3% meaning a small overlap betweencoercion and the variable ”notbeenheard” and a large overlap betweenhumiliation and the same variable
Decisionneeded • What are wemeasuring? • Perceivedcoercion? Humiliation? Violationofintegrity? • Do thepatientsansweraftercognitiveconsiderationsoncoercion? • Or – do theyreport a feeling (emotion)? • Iftheyreport an emotion, whichemotion? • And – are emotionsmasureable?
Concequencesofmeasuringperceivedcoercion • Focusonminimizingcoercion (and this is important due to theimpactontheethicalimplicationsonAutonomy,++++) • increased focus on coercion and – hopefully – a reduction in coercion where a reduction is posssbible • Less focusontheimportantissuesthat are closelyconnectedwithcoercion
Concequencesofmeasuringperceived coercion Otherfields in medicalpractice (like geriatricwards, wardsconcentratingonsubstanceabuse++) maynot be awareoftheimplications negative experiencesmay have ontheirpatients • Impactonself-esteem • The assumedlongdurationofhumiliatingevents
Concequencesofmeasuringhumiliation (violationofintegrity) • Focusonminimizing negative experiencesthatincreaseperceivedhumiliation • The situationsthatincreaseperceivedhumiliation are alsoassociatedwithCoercion (legal status) • Focusonthepatients´ owncopingstrategies • Self-esteemissues • Better treatmentcompliance • Less assymetri in powerstructures
Concequencesofmeasuringhumiliation (violationofintegrity) • A ”side-effect” ofhumiliationfocusmay be less involuntaryadmittedpatients • More ”global” useof a humiliation instrument, notonly in wardswherecoercion is a topic
Recommendations • Develop an instrument wheretheoutcomechanges from PerceivedCoercion to PerceivedHumiliation (ViolationofIntegrity) • Coercionshouldalways be part of studies whereHumiliation (ViolationofIntegrity) is thedependent variable • Discussionsonthe proper waysofmeasuringCoercionshouldcontinue. May be weshould settle onthe legal admission status as coercionmeasure?
Recommendations • Analyze and find which items are best fit to measure coercion • Analyze and find which items are best fit to measure humiliation/violation of integrity • More qualitative studies in order to determinewhatis ”reallymeasured”