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Advocacy Project. Advocacy in Specialist Services. The Advocacy Project?. Winterbourne taught us lessons about the need for good advocacy for people living in specialist services – everyone at Winterbourne had an advocate
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Advocacy Project Advocacy in Specialist Services
The Advocacy Project? • Winterbourne taught us lessons about the need for good advocacy for people living in specialist services – everyone at Winterbourne had an advocate • What are the advocacy arrangements for people living in specialist services across the North East? • What needs to happen to ensure all people living in specialist services have good advocacy support?
Involved in the work Inclusion North were commissioned to lead and deliver the work. • The Advocacy Project Steering Group includes: • Judith Thompson • Neil Harrison – Hartlepool Commissioner • Stan Cooke - Family member • Kellie Woodley– Inclusion North • Barry Ingham – Psychologist NTW • Dave norman – Skills for People – TEWV • Pam Lawrence - NEAC
What we started with.. • Scoping with all PCT Commissioners across the North East • Initial Scoping with LA Commissioners • Advocacy Providers
Feedback Commissioners • Expectation of it being commissioned • Monitoring and quality – unsure • Little strategic influence • Statutory advocacy is available for those who qualify • Confusion of advocacy provision by service providers • No measure of quality
Feedback Advocacy Providers • Statutory – IMHA / IMCA (many people fall outside of this remit) • General case advocacy - being cut and patchy • Coming into the area - no support • Access to advocacy – reliant upon staff, little real presence in services • Delivery of advocacy – lots of organisations, little cohesion, little strategic influence and no money for it • Strategic development – working together • Monitoring – not good enough, past good examples, drop ins, asked to monitor the wrong things • Current approach consistently increases demand
Understanding Advocacy ADVOCATES OFSTED COMPLAINTS C.Q.C. P.A.L.S. SELF LEGAL LINKS SAFEGUARDING PEER CITIZEN L.A.D.O. BROKERAGE B.I.A. PARENT & CARERS M.A.P.P.A P.C.P. R.P.R. QUALITY CHECKERS M.A.R.A.C I.S.D. I.M.H.A. CITIZENS LAY ASSESSORS PEER GROUPS I.M.C.A. CRITICAL FRIEND C.O.P WHISTLEBLOWING
SHA Project - do it and prove it! • Develop and define what good self advocacy looks like in specialist services (people must be heard) • Develop and define what a good family empowerment program would look like (families need to be empowered) • Share the Tees Commissioning Advocacy Framework is in a written report (an approach for good commissioning)
Funding is focused Little investment
Focus our Attention Funding continues
Developing Self Advocacy • Some of what people told us – • It’s a tough place to live – should be a relaxing place • Need to be better supported to have a say • People should be involved in choosing and training staff • People should be given better information
Family Empowerment Some of what people told us • Want help to be more involved • Feel they are not always listened to • More information about how to be involved would help • Basic advocacy skills training • Better facilities for families – a room/flat, able to stay over
Tees Commissioning • A Tees wide approach to commissioning advocacy - hub and spoke • Offering a range of Advocacy – including having a presence in services • This is still being produced with the local commissioners
Some Big Messages • Advocacy is everyone’s job – day to day, ‘looking out for’ • Paid advocacy is important but not enough on its own • People want on going support to gain confidence - it’s hard!! • Families want to have the chance to be involved in ALL areas of care
Profession arrogance – who knows best? • Treating people as equals? • Medical model? • Who is responsible? • Is it too difficult? • Does everyone get the same service?
Stronger advocacy project department of health project Share our work nationally - working in partnership with - • National Forum • National families Forum • Housing and Support Alliance