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KEBAYA Keluarga Besar Waria Yogyakarta

KEBAYA Keluarga Besar Waria Yogyakarta. assisting transvestites living with HIV starting antiretroviral treatment in Yogyakarta, Indonesia. Vinolia Wakijo , Priyadi Prihaswan, Ken Murray. Presentation Structure. KEBAYA HIV and AIDS situations in Yogyakarta Lessons learned Future roles.

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KEBAYA Keluarga Besar Waria Yogyakarta

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  1. KEBAYAKeluargaBesarWaria Yogyakarta assisting transvestites living with HIV starting antiretroviral treatment in Yogyakarta, Indonesia VinoliaWakijo, Priyadi Prihaswan, Ken Murray

  2. Presentation Structure • KEBAYA • HIV and AIDS situations in Yogyakarta • Lessons learned • Future roles

  3. KEBAYA • Stands for KeluargaBesarWaria Yogyakarta • Means Yogyakarta’s Big Transvestite Family

  4. Waria • Wanita (woman) • Pria (man)

  5. KEBAYA • Peer based organisation • Established in December 2006 • A group of dedicated waria/transvestites • Runs safe accommodation for waria living with HIV to commence treatments • Acts as a site for VCT for HIV testing mobile clinics • Relies on donations

  6. Kebaya Safe Accommodation • Two bedroom house • Members/volunteers assist clients with food, support in managing ART adherence, side effects and doctors’ appointments • Self referred and referred from the local HIV hospital clinics

  7. Context • Waria are marginalised • Estranged from their family • Approximately 75% of the 500 waria reached by KEBAYA outreach program are sex workers • Waria is an important population to target in treatment as prevention program

  8. Yogyakarta, Indonesia

  9. Access to ARV in Indonesia • Available with subsidy in 2006 • Limited ARV combination options • High level of adherence is required to prevent resistance • Stigma and discrimination

  10. Overview • 59 waria (10% of all people with HIV accessing treatment in Yogyakarta) have utilised the service • 18 have passed away • 7 are lost to follow up • 34 are confirmed continuing ARV • Currently 2 people are staying at KEBAYA • KartuJaminanKesehatanSosial

  11. Group discussion • With 12 waria and MSM with HIV • Current and past clients • 28 – 54 years old • Interview with an HIV consultant

  12. Lessons Learned • Trust “….in here I know that I will be well cared for….” (Waria, 32 yrs) • Emotional support “….it feels like living with a family. Vinolia is just like my mother…..” (Waria, 28 yrs)

  13. Managing side effect “…I still cannot go home because I still have rash on my hands. I am not out to my family…” (MSM, 47yrs) • Managing adherence “I was always reminded to take my medications” (Waria, 53 yrs) • Doctors’ appointment “…they look after you very well and would take you to the doctor’s appointment...” (Waria, 44 yrs)

  14. Challenges • Medical complexity • Working relationship with local Ministry of Social Welfare • Moving out • Life after KEBAYA • Sustainable income for organisation

  15. The future • To continue current work • To support Strategic Use of Antiretrovirals to help end the HIV epidemic (WHO) “KEBAYA has become the meeting point for Waria and MSM. It will play an important role to reach priority populations for HIV testing, educate them about treatments and monitor adherence” (HIV consultant)

  16. Acknowledgement • Group discussion participants • Ken Murray • Dr Yanri Subronto • KEBAYA’s supporters

  17. Terimakasih - Thank you

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