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Child Death Review The State of the Nation and The CDR Case Reporting System. Improving our understanding of why children die And taking action to prevent child deaths. Child Death Review has Evolved in past 10 years from
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Child Death Review The State of the Nation and The CDR Case Reporting System
Improving our understanding of why children die And taking action to prevent child deaths
Child Death Review has Evolved in past 10 years from An Investigative Focus: better identifying child abuse fatalities To a Prevention Focus: understanding the risk factors in all child deaths
Purpose of CDR by State Prevention: At minimum, external causes Criminal justice: Child abuse and neglect In Transition
The Scope of the Review • Half review deaths to all causes. • Five review only maltreatment deaths. • 48 states review deaths through at least age 17, one state to age 15 and one state even reviews up to age 24 (New Mexico). • States vary greatly on time frames for the review.
Supporting Legislation • CDR is mandated or enabled by law in 45 states. • Eleven states in past 3 years. • Laws usually address: • State and local team roles • Type of deaths reviewed • Membership on teams • Confidentiality • Access to Records • Reporting • Agency authority
Where’s the Money in the States • CDR has never been heavily funded, and relies on volunteer efforts. • Funding ranges from a high of $850,00 to nothing. MCH Title V directly funds 8 programs, state general funds pay for 7 programs, and others find funds from multiple sources. Only 4 states report that they fund local teams.
Models Vary • State and Local Teams: Local teams conduct intensive case reviews and state boards review findings of local teams and/or review cases. (37) • State-only teams conduct case reviews of selected cases. (12) • Local teams review cases independently without any state-supported program or board. (2) Three years ago 7 states had no state-level support.
The Objectives of Child Death Review • Accurate identification and uniform reporting on every child death. • Improved investigative systems. • Improved services for families and community. • Improved communication and linkages among agencies. • Understanding of risk and protective factors in child deaths. • Changes in legislation, policy and practice, to prevent deaths and improve child health and safety.
Uncovering the Layers The Death Event
Coroner Law Enforcement Social Services EMS Public Health DA/PA Education Health care Fire Juvenile Court Mental Health Advocates Ad hoc Child Advocates Clergy Funeral Home Team Members
State Actions • Sate suicide Prevention Plan • Strengthened graduated licensing • 1 million trigger locks purchased and distributed by state police. • Truck bed legislation. • Safe Sleep funding and campaign. • Major policy and practice changes at CPS. • New birth match project. • Abandoned new born program
Reports of Findings • Forty one states have a case report tool, 17 states have legislation that requires a report. • 33 states publish an annual report with findings and recommendations.
How do States Use their CDR Data? • Local teams present findings to community groups and to push for local interventions. • State teams review local findings to identify trends, major risk factors and to develop recommendations. • Teams use data as a quality assurance tool for their reviews. • State teams use findings to develop action plans based on their recommendations. • National groups use state and local CDR findings to advocate for national policy and practice changes. • Local teams and states use their reports to keep or increase CDR funding!!!
Child Death Review Case Reporting System 30 person work group of 18 states over two years, chaired by Neil Maniar of Massachusetts Analyzed 32 state case report forms. Developed standard data elements, data dictionary and 32 standardized reports. Software developed by Michigan Public Health Institute Project funded by Maternal and Child Health Bureau, HRSA, HHS
The Center for Child Death Review is a program of the Michigan Public Health Institute For more information, call 1-800-656-2434. www.childdeathreview.org The Center for Child Death Review is supported in part by Grant No. 1 U93 MC 00225-01 from the Maternal and Child Health Bureau (Title V, Social Security Act), Health Resources and Services Administration, Department of Health and Human Services.