Health and social care integration: 5 asks from disabled people Pam Duncan, Policy Officer, ILiS

1. Health and social care integration: 5 asks from disabled people Pam Duncan, Policy Officer, ILiS

2. The next 15 minutes: • Independent living and the integration of health and social care • Disabled people, their influence & coproduction • Influencing the integration of health and social care • The 5 asks of disabled people

3. Independent living “Independent living means disabled people of all ages having the same freedom, choice, dignity and control as other citizens at home, at work and in the community. It does not mean living by yourself or fending for yourself. It means the right to practical assistance and support to participate in society and live an ordinary life”.

4. History of the Independent Living Movement (ILM) It’s our world too About Scotland’s disabled people’s Independent Living Movement • It is important that the voices of disabled people are heard and can influence • Disabled People’s Organisations can support this • Coproduction is a way of doing this

5. Coproduction toolkit http://www.ilis.co.uk/co-production-toolkit/

6. Integration of health and social care • an opportunity to progress independent living, citizenship and human rights • 5 ‘asks’ : the things disabled people would like the Government to think about when planning the integration of health and social care

7. Joined up health and social care must have goals that support independent living, citizenship and human rights • plans are too much about health and organisations and not about Independent Living • This means all the support needed for Independent Living is sometimes missed • health and social care services should use the values of human rights, independent living and citizenship • This would help disabled people to stay well and would cost less money over a long period of time

8. Disabled people must be supported to be equal partners in making decisions about the joining of health and social care • This is coproduction • The ILM should be involved in coproduction as the ILM supports and represents disabled people • They are ready, willing and able • Community Health Partnerships should involve and support disabled people to be involved in their work. This will help to plan and deliver the best services that better support Independent Living • Disabled people must have support for coproduction

9. It is important that coproduction is used to decide how the money available for joined up health and social care services is used • There will be some questions to think about and decisions to make, when discussing the joining up of health and social care services, including: • What is health care? • What is social care? • What about services that people have to pay for? • Will saving money in one area mean more costs in another area? • Will changes made in one area affect services in another area? • New systems developed around these, must have the values of independent living • They must not be used to limit how much support people get

10. It is important to hear the views of as many people as possible not just the views of older people • Older people often start to use health and social care systems because they become disabled or ill • But their views and goals may be different from younger disabled people • It is important to get the views of as many people as possible, including younger disabled people, when designing new services • This will mean new services and systems can be better from the start and stay better for the future

11. SDS must work together with joined up health and social care services: the new SDS Bill should be changed to include health funded support in the community • The Scottish Government supports the principles of Independent Living, they want more people to have SDS • They think SDS users and professionals should be equal partners – this idea must be included in the plans for joining up health and social care • The SDS Bill does not include community health care and so some people with health needs may not be able to have community health care using SDS • The SDS Bill should include support in the community for people who leave hospital and need support in their home. This means they will be able to choose how money is used to support them to live in the community when they go back to live at home

12. Independent Living in Scotland www.ilis.co.uk Inclusion Scotland www.inclusionscotland.org Scottish Disability Equality Forum http://www.sdef.org.uk/ Self Directed Support Scotland http://www.sdsscotland.org.uk/