Presentation Transcript

1. Deaf Children with Disabilities - Finding available resources Sheri Cook
2. Objectives: You will learn about… My personal experience working with deaf children with multiple disabilities What the latest research says about deaf and hard of hearing children with additional disabilities About helpful resources available

3. My experience working with deaf and hard of hearing children with multiple disabilities

4. I Only Have a Degree in Deaf Education! Graduated college in the spring of 1993 Started teaching at WSD in the fall of 1993 Adaptive Education Department 4 students, 3 aides!!!
5. CPI, Physical Management classes, Time-out Room ED, BD, LD, ADD, ADHD, OCD, PDD… Tourette’s Syndrome Asperger’s Syndrome Counselors, Social Workers, Foster parents, O.T., P.T., Speech and language therapists, paraprofessionals, educational interpreters, doctors…
6. What does it mean to be deaf or hard of hearing with additional disabilities or to be Deaf-Plus?
7. Who are deaf children with disabilities? A broad interpretation of the term "deaf with disabilities" implies a hearing loss combined with a disability generally needing services beyond those provided for a child with only a hearing loss. Examples of additional disabilities may include: Intellectual/cognitive disabilities Emotional and behavioral disabilities Learning disabilities ADD/ADHD Visual impairment Cerebral palsy Autism Orthopedic involvement, or Other physical disabilities. This definition, however, does not describe any general characteristics of deaf children with disabilities http://www.gallaudet.edu/clerc_center/information_and_resources/info_to_go/educate_children_(3_to_21)/students_with_disabilities.html

8. Have you worked with deaf or hard of hearing with additional disabilities?What kind of disabilities?

9. How many deaf children have additional disabilities?

10. By the Numbers (Gallaudet Research Institute, 2008) 39.3%: Number of Deaf with one or more disability
11. How many deaf children have additional disabilities? It is hard to count deaf children with disabilities since many students attend schools without programs for deaf children and may be overlooked in demographic counts. However, estimates are that from 20% to 50% of all deaf and hard of hearing children have accompanying disabilities. Statistics collected by the Center for Assessment and Demographic Studies of the Gallaudet Research Institute support this.

12. What are the educational needs of deaf children with disabilities?

13. The needs of children with disabilities vary greatly. They have different accompanying disabilities, function at different levels, and have different ways of learning. Some factors affecting each child's needs include: The configuration of the hearing loss The type and severity of the additional disability The age of onset of each disability The age when the child starts receiving appropriate educational interventions are provided http://www.gallaudet.edu/clerc_center/information_and_resources/info_to_go/educate_children_(3_to_21)/students_with_disabilities.html

14. What does research say?

15. NOT MUCH!!!

16. Families and professionals are challenged by the lack of information and resources for supporting deaf and hard of hearing children with other disabilities.
17. For example… “The research on young children with dual diagnosis of hearing loss and autism spectrum disorder is meager and scattered.” (Myck-Wayne, Robinson and Henson, 2011)
18. “There’s a surge in research, resources, and information available for hearing children with Autism Spectrum Disorder (ASD), information to help parents, educators, and professionals working with children who are deaf and hard of hearing and have ASD continues to be scarce and often nonexistent.” (Szymanski, Odyssey, 2012)
19. What is Autism Spectrum Disorder? A group of developmental disabilities that cause severe problems with … Socialization, Behavior, And communication
20. ASD Autistic Disorder Pervasive Developmental Disorder Asperger’s Syndrome

21. What is known?

22. “1 in 110 children is diagnosed with ASD and the rate of this diagnosis is increasing 10%-17% each year.” (Autism Society of America, 2010)
23. “This increase has also been observed in children who are deaf and hard of hearing, with numbers growing from 1-81 to 1-59. (Gallaudet Research Institute, 2010)
24. “Children who have hearing loss and ASD are diagnosed later than those who have ASD but are hearing.” (Roper, et al. 2003)
25. Age of Diagnosis 3 years – Hearing 5 ½ years – Deaf and Hard of Hearing (Szymanski, Odyssey, 2012)

26. WHY?

27. “It’s harder to diagnose ASD in deaf and hard of hearing children because symptoms of hearing loss may appear similar to those of ASD and vise versa.” (Beals, 2004) Example: Autism screening- Not responding to one’s name; Cannot hear, cannot socialize
28. Deaf and hard of hearing children with other disabilities are often places in inappropriate educational settings with inappropriate interventions. (Guardino, 2008)

29. What materials and strategies are used with deaf children with disabilities?

30. What materials and strategies are used with deaf children with disabilities? No single specific educational technique is appropriate for all deaf children with disabilities since each student has unique needs. Characteristics of successful programs include: A high level of structure Specific, clearly stated objectives A focus on the individual needs of each child Instruction that is step-by-step in nature. Practical experiences in natural environments http://www.gallaudet.edu/clerc_center/
31. What materials and strategies are used with deaf children with disabilities? Consistent routines Age-appropriate materials are important A focus on motivating the child Provision of successful experiences An emphasis on the student's skills in given situations, not on his or her limitations Over-learning (going over a skill after it seems to be mastered) is good and much repetition may be necessary. Planning for the transfer of instruction to real life situations http://www.gallaudet.edu/clerc_center/
32. Since there’s not enough research pointing to effective and available interventions for deaf and hard of hearing children, what can be done?
33. Parent-Professional Collaboration “Parents have a vital role to play in helping professionals identify the needs of their unique children and assisting them in evaluating the effectiveness of implemented interventions.” Research shows that involving the parents into the intervention services leads to positive outcomes for both the family and the child. (Myck-Wayne, Robinson and Henson, 2011)

34. What else can you do…

35. Find support…

36. What helped me?

37. Experienced teachers Great team work Research Workshops

38. How can I help you?

39. Gallaudet University Regional Center Outreach center located in one of six regions (Midwest, Northeast, Southeast, Southwest, West and Pacific)
40. What is a GURC? Addresses the educational, transition, and professional development needs of deaf and hard of hearing people from birth through adulthood, their families, and the professionals who work with them. Brings the resources of the world’s only liberal arts university for deaf and hard of hearing people – Gallaudet University and Laurent Clerc National Deaf Education Center to the GURC.
41. What is a GURC? In partnership with Gallaudet University, GURC… Provides coordinationof workshops, training opportunities and extension courses available through the Gallaudet University College of Professional Studies and Outreach and the Laurent Clerc National Deaf Education Center.
42. What is a GURC? Promote Gallaudet University to potential students and families. Assist students and families with the admissions process. Follow-up with students from the region after they have enrolled at Gallaudet to support their retention. Continue to create new avenues for supporting Gallaudet University recruitment and retention.
43. What is GURC? Every spring, Gallaudet University hosts the National Academic Bowl for high school teams. High school teams compete against each other to answer questions on a wide variety of academic subjects.
44. What is a GURC? Welcomes opportunities to work collaboratively with: Schools and programs for deaf/HH students Interpreter training programs Post secondary education programs Professional agencies and organizations Parent groups
45. www.jalc.edu/gurc Deaf friendly website!
46. Facebook Page Gallaudet University Regional Center of the Midwest Click here
47. Please sign up to receive our quarterly Electronic Newsletter.* share information and resources* workshops* conferences* other events* online courses and programs* materials and products
48. What information, training and resources are available?
49. Online Graduate Certificate Program in Teaching Deaf Students with Disabilities! 21-credits The program focuses on working with the whole child, the family, and other professionals. The program is de-signed to allow educators to improve their knowledge and skills in working with deaf students who have disabilities.
50. What courses are required? Summer: EDU 771 Trends in Special Education EDU 775 Language and Literacy Development for Deaf Students with Disabilities EDU 777 Differentiating Instruction in the Content Areas Fall: EDU 776 Teaching Functional Curriculum EDU 779 Assessment of Deaf Students with Disabilities Spring: EDU 772 Classroom Management EDU 773 Home-School Continuum: Collaboration with Families, Professionals, and Paraeducators Additional optional courses may be offered as special topics. Recent offerings have including working with deaf students with autism.
51. Online Graduate Certificate Programs Deaf History Leadership Management Online Graduate Certificate Program: Deaf Students with Disabilities  Deaf and Hard of Hearing Infants, Toddlers, and Families: Collaboration and Leadership Program Interdisciplinary Graduate Certificate Programs http://www.gallaudet.edu/gspp_certificates.xml
52. Online Courses Check and see what courses you can take online to improve your skills at … http://www.gallaudet.edu/online_programs.html
53. Gallaudet University Professional Studies Course Descriptions http://www.gallaudet.edu/Catalog/Professional_Studies/PST_Courses.html
54. Specific courses on multiple disabilities PST 696 Strategies for Teaching Deaf Students with Multiple Disabilities (1) PST 720 Prevention and Management of Problem Behaviors (1)
55. Workshops available this fall in IL “Deaf Children with Multiple Disabilities” by Dr. RaschelleTheoharis from Gallaudet University 8:30 am – 2:30 pm $50.00 November 6, 2012 Near Chicago, IL (exact location TBA)
56. The Laurent Clerc National Deaf Education Center at Gallaudet University provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Their mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States. www.gallaudet.edu/clerc_center.html
57. Info to Go(formally known as the National Deaf Education Network Clearinghouse) Info to Go Topics: About Info to Go Help for Babies (0 to 3) Educate Children (3 to 21) Transition to Adulthood Hearing Loss Information Language and Literacy Hearing & Communication Technology Laws Resources
58. Info to Go is one of six national clearinghouses, "Clearinghouses in Collaboration," that provide information on disability-related issues. The other clearinghouses are linked below. Clicking on any of these links will take you out of the Clerc Center website. The National Information Clearinghouse on Children Who Are Deaf-Blind (http://nationaldb.org/) Educational Resources Information Center (ERIC) (http://www.eric.ed.gov/) National Dissemination Center for Children with Disabilities (http://nichcy.org/) The George Washington HEATH Resource Center (http://www.heath.gwu.edu/) National Clearinghouse for Professions in Special Education http://www.cec.sped.org/Content/NavigationMenu/ProfessionalDevelopment/CareerCenter/default.htm
59. Training & Technical Assistance The Laurent Clerc National Deaf Education Center offers technical assistance and professional development workshops to families, educators, and other professionals working with deaf and hard of hearing children
60. WEBINARS The Clerc Center webinars are a convenient way to meet professional development requirements as well as supply families with needed resources.
61. Webinars Sharing Autism Research on Deaf or Hard of Hearing Students (http://clerccenter2.gallaudet.edu/newsandnotables/?id=2828) Dr. Christen Szymanski
62. Presenter Information: Dr. Christen Szymanski is a recognized leader and researcher in the field of autism and hearing loss. She has research and clinical experience involving diagnostic practices and intervention implementations for children with both hearing loss and autism.
63. Clerc Center Goals and Objectives 2009-2012 Goal One: Students will reach their full potential linguistically and academically from birth through . Goal Two:The Clerc Center will provide leadership in the identification, evaluation, and dissemination of evidence-based instructional practices, strategies, and resources for deaf and hard of hearing students with disabilities through a national collaborative project with schools and programs. Goal Three: The Clerc Center will identify and disseminate resources to ensure that all deaf and hard of hearing children and their families have early and ongoing access to information that supports the development of linguistic competence.
64. Students with Disabilities Action Plan The Students with Disabilities action plan team is working towards using established criteria to select at least five evidence-based instructional practices, strategies, and resources for deaf and hard of hearing students with disabilities through a national collaboration with schools and programs. The goal is to disseminated the selected evidence-based strategies, curriculum, and materials for deaf and hard of hearing students with disabilities through publications, media, and trainings by 2012.
65. Gallaudet and the Clerc Center are currently discussing offering a 2 day conference related to Autism and Deaf children who are on the Autism spectrum. They hope to have this conference in the 2012 -2013 academic year.   This conference will be announced on our website and E-Newsletter
66. Odysseyhttp://www.gallaudet.edu/clerc_center.html 2008 Issue Autism 2010 Issue Students with Diverse Needs
67. 2012 – Research to Practice Managing Behavior by Managing the Classroom: Making Learning Accessible for Deaf and Hard of Hearing Students with Autism Spectrum DisordersBy Christen A. Szymanski
68. The American Annals of the Deaf is a professional journal dedicated to quality in education and related services for deaf or hard of hearing children and adults http://gupress.gallaudet.edu/annals/
69. Perigoe, C. (editor) (2004). Multiple Challenges, Multiple solutions: Children with Hearing Loss and Special Needs. The Volta Review, 104, (5). Gallaudet Research Institute (2006-2007). Regional and National Summary Report Data form the 2006-2007 Annual Survey of Deaf and Hard of Hearing Children and Youth. Washington D.C.: GRI, Gallaudet University. Jones, T. & Jones, J. (2003)(2006). Educating Young Children with Multiple Disabilities. In Bodner-Johnson & M. Sass-Lehrer (Eds.), The Young Deaf of Hard of Hearing Child (pp. 297-329). Baltimore: Brookes Publishing Co. Luterman, D. (2004). Counseling Families of Children with Hearing Loss and Special Needs. The Volta Review, 104(4) (pp.215-220).
70. www.cec.sped.org The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. Services Provided Professional development opportunities and resources Journals and newsletters with information on new research findings, classroom practices that work, federal legislation, and policies Conventions and conferences Special education publications
71. Publications Communication Disorder Quarterly Journals of Emotional and Behavioral Disorders Journals of Learning Disabilities Journals of Positive Behavior Interventions Journals of Autism and other Developmental Disabilities Intervention in School and Clinic Career Development for Exceptional Individuals Topics in Early Childhood Special Education

72. Additional resources…

73. Described and Captioned Media Program

    www.dcmp.org
74. “The ultimate goal of the DCMP is for accessible media to be an integral tool in the teaching and learning process for all stakeholders in the educational community, including students, educators and other school personnel, parents, service providers, businesses, and agencies.”
75. The Library Free-loan described and captioned educational media is available to students who are deaf, blind, hard of hearing, visually impaired, or deaf-blind. With over 4,000 titles (and growing!) available for viewing, the DCMP is continuing to provide equal accessibility to these students and the professionals who serve them The Clearinghouse The DCMP offers a clearinghouse of information related to education, accessibility, deafness, blindness, and other related topics. This clearinghouse is available to everyone. Read about what people are saying about the DCMP. Learn about captioning, description, laws pertaining to accessibility, assistive technology, and an array of other subjects – all at your fingertips. Start browsing and start learning
76. The Gateway Internet resources related to accessibility are at your fingertips. The DCMP would like to introduce its gateway, which will allow you to selectively search across our entire clearinghouse of accessibility-related articles. The DCMP gateway will search the following partner sites (links open in new windows): National Association of the Deaf (NAD) http://www.nad.org/ Deaf Education (DeafEd) http://www.deafed.net/ National Center for Accessible Media (NCAM) http://ncam.wgbh.org/ Center for Applied Special Technology (CAST) http://www.cast.org/ American Foundation for the Blind (AFB) http://www.afb.org/ The National Consortium on Deaf-Blindness (DB-LINK) http://www.dblink.org/ National Dissemination Center for Children with Disabilities (NICHCY) http://www.nichcy.org/ Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) http://www.hknc.org/ PEPNethttp://www.pepnet.org/

77. Media Library

78. Media Library DCMP/Collaborators DCMP Website DCMP Articles DCMP Media Media for Purchase
79. Kentucky School for the Deaf "KSD is mandated by state law House Bill 237 (1998) to serve as a statewide educational resource center on deafness. " http://www.ksd.k12.ky.us/Outreach/outreach.html
80. http://www.ksd.k12.ky.us/Outreach/outreach.html
81. Consultation and Technical Assistance ¨ KSD Based Evaluations ¨ Educational Programming ¨ Classroom Adaptations ¨ Interpreting Information & Resources ¨ Appropriate Inclusionary Practices ¨ Audiological Information ¨ Functional Listening Assessment ¨ Classroom Acoustic Evaluations ¨ Cochlear Implant Support ¨ Assistive Listening Devices ¨ Family Education ¨ Sign Language Resources ¨ Support for Families ¨and more...

82. Statewide Support Services

83. Evaluation Service Evaluations are provided at no cost at KSD For an appointment, contact Kathy Duncan at Kathy.Duncan@ksd.kyschools.us
84. Specialized Evaluation Team Professionals who have extensive experience working with deaf & hard of hearing students. · Audiologist · School Psychologists · Speech Language Pathologists http://www.ksd.k12.ky.us/content_page.aspx?cid=38
85. Specialized Evaluation Team The evaluation is administered in the language & communication mode of the child and may include:* Audiological Evaluation* Developmental Assessment* Adaptive Functioning* Cognitive Functioning* Academic Achievement* Social-emotional Functioning* Social/Developmental History* Speech Language Evaluation http://www.ksd.k12.ky.us/content_page.aspx?cid=38
86. Specialized Evaluation Team The local school district and parents are provided with an integrated psycho-educational report. The report includes recommendations based on the evaluation results. These recommendations are offered to the Admissions and Release Committee (ARC) for consideration in developing the student’s educational program and making placement decisions. http://www.ksd.k12.ky.us/content_page.aspx?cid=38
87. Regional Sites
88. Statewide Family Support Center Serving Kentucky’s Families of Children Who are Deaf and Hard of Hearing The Statewide Family Support Center (SFSC) is a resource for every family in Kentucky with a child who is deaf or hard of hearing. This unique center offers services that will enable you to better meet the needs of your Deaf or hard of hearing child
89. Statewide Family Support Center Serving Kentucky’s Families of Children Who are Deaf and Hard of Hearing The SFSC promotes or provides: ¨ Family involvement in the child’s education ¨ Networking with other families ¨ Resources, referrals, information ¨ Workshops on a variety of topics, ¨ Early intervention services in Central Kentucky ¨ Information for professionals and service providers ¨ Family Education in Central Kentucky
90. The SFSC houses the Instructional Materials Resource Center (IMRC), a free-loan lending library for families and professionals. Also, information on the Described and Captioned Media Program (www.dcmp.org)which has free-loan educational media that is described, captioned, and available to families and professionals on the Internet and through the U.S. mail. SFSC provides a bi-monthly newsletter, and a Family Learning Vacation weekend.
91. Family Support Specialists Linda Cannon859-936-6722Linda.Cannon@ksd.kyschools.us Jackie Day859-936-6732Jacqueline.Day@ksd.kyschools.us
92. Statewide Family Support Center Newsletter http://ksd.kyschools.us/userfiles/7/SchoolDocs/spring%202011-12%20newsletter%202.pdf
93. Family Learning Vacation The goal of Family Learning Vacation is for families with deaf and hard of hearing children to have a fun weekend together AND provide information to the families so they may be the best possible advocates for their children.
94. Independent Living Centers in KY Disability Resources Initiative Gay Pannell 624 Eastwood Avenue Bowling Green, KY 42103 (270) 796-5992 or (877) 437-5045 TTY: (800) 648-6057 FAX: (270) 796-6630 EMAIL: initiative@dri-ky.org Pathfinders for Independent Living, Inc.Sandra Goodwyn105 East Mound Street Harlan, KY 40831 (606) 573-5777 or (877) 340-7284 TTY: (606) 573-5777 FAX: (606) 573-5739 EMAIL: pathfinders@harlanonline.net Independence Place, Inc.Pamela Roark-Glisson1093 South Broadway, Suite 1218 Lexington, KY 40504(859) 266-2807 or (877) 266-2807 TTY: (800) 648-6056 FAX: (859) 335-0627EMAIL: info@independenceplaceky.org Center for Accessible Living (CAL) Jan Day 305 West Broadway, Suite 200Louisville, KY 40202(502) 589-6620 or (888) 813-8497 TTY: (502) 589-6690FAX: (502) 589-3980EMAIL: Info@calky.org Center for Accessible Living (Satellite) Jeanne Gallimore1051 North 16th Street, Suite CMurray, KY 42071(270) 753-7676 or (888) 261-6194TTY: (270) 767-0549FAX: (270) 753-7729 EMAIL: Info@calky.org
95. www.education.ky.gov/KDE/ Kentucky Accessible Materials Database (KAMD) provides K-12 Kentucky public schools a way to find out what instructional materials are available in digital format (children with blindness, visual disability, or physical limitations) Low Incidence Page. This page contains information related to students with low incidence disabilities including autism spectrum disorders, multiple disabilities, orthopedic impairments, other health impairments, and traumatic brain injuries. Information on Transition, Parent Involvement, Vocational Training and Employment Resources, and more
96. RESOURCES TOPICS CHAPTERS http://www.handsandvoices.org

97. http://www.deafchildren.org/

98. Deaf Autism AmericaDAA RosangelaJaech and Stefanie Ellis-Gonzales, both deaf mothers of deaf children with autism, co-founded the first Autreat for families of deaf children with autism, which was held at Camp Lakodia, South Dakota in April of 2006. In 2011, DAA became affiliated with ASDC
99. Deaf Autism AmericaDAA Get Involved! Deaf Autism America strives to create a large referral and information network. We are very interested in recruiting families and professionals involved with deaf children with autism with the goal to form a larger, inclusive group of persons interested in learning and sharing experiences, and participating in future conferences. If you have an interest in deaf autism, and would like to be actively involved in this new organization, we wholeheartedly welcome you! Interested parties should contact RosangelaJaech at deafautism@hotmail.com
100. http://www.rit.edu/ntid/deafplus/ Watch the Personal Perspectives videos from the students, instructors and counselors Check out the Resources available
101. ILLINOIS SERVICE RESOURCE CENTER ISRC provides training, onsite assistance and resources for parents and educators of students who are deaf or hard of hearing.ISRC team members visit homes and schools to work with families and educators in developing positive behavior support plans for DHH students in need of intensive level supports.ISRC team members work with DHH programs and classrooms to develop positive behavior support plans that teach appropriate expected behaviors for all students. www.isrc.us
102. DHH Behavior Support Teams For Programs/Schools Free Services for Families Downloads for Parents, Educators, Behavior Teams and Downloads in Spanish Free Lending Library Training….
103. TrainingISRC E-Learning Academy (Free CPDUs) Module 1 Classroom Accommodations for DHH Module 2: Autism Spectrum Disorders and Deafness Module 3: Creating and Maintaining the Exemplar Classroom Module 4: Bipolar Module 5: Borderline Personality Disorder Module 6: Conduct or Oppositional Defiant Disorders Module 7: Connecting the Dots: Foundations and Evaluation (DOTS) Module 8: Coaching Module 9: Positive Behavior Support Plans (FBA/BIP) Module 10: Attention Deficit Hyperactivity Disorder (ADHD) Module 11: Practice Working with Data for FBA and BIP Development Module 12: Data Collection in the Classroom Module 13: Mining For Gold (Data Based Decision Making) Module 14: DHH Sensitive Assessment and Intervention Video, PowerPoint, Activities, Checklist, Quiz, Reflection and Evaluation
104. Mental Health ServicesFor Deaf Persons:A Resource Directory Listing of Programs and Providers for both the U.S. and Canada. http://research.gallaudet.edu/resources/mhd/
105. THANK YOU!Let us bring the resources from Gallaudet to you!Contact us at: Misti Harrison Coordinator Gallaudet University Regional Center at John A. Logan College 700 Logan College Road Carterville, IL 62918 mistiharrison@jalc.edu 518-565-0055 (VP) Sheri Cook Director Gallaudet University Regional Center at John A. Logan College 700 Logan College Road Carterville, IL 62918 shericook@jalc.edu 518-565-0054 (VP)
106. References American Annuals of the Deaf, Fall 2011, Volume 156, Number 4 Odyssey, 2008 Odyessy, 2012 Gallaudet Research Institute Laurent Clerc National Deaf Education Center