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Personalisation and BME communities Raza Griffiths, PowerUp ! Co-ordinator & Amber Chidakashi , PowerUp ! Advisor e: raza.griffiths@scie.org.uk m: 07737647445. awareness raising events networking and information sharing documenting emerging issues help with media liaison.
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Personalisation and BME communities Raza Griffiths, PowerUp! Co-ordinator & Amber Chidakashi, PowerUp! Advisor e: raza.griffiths@scie.org.uk m: 07737647445
awareness raising events networking and information sharing documenting emerging issues help with media liaison what is PowerUp!? - a service user led mental health personalisation project for London’s BME and LGBT communities which offers: project working with London’s BME and LGBT communities through: and LGBT communities through:
personalisation gives greater choice and control to people in the way they meet their care needs and offers them the opportunity of being in the driving seat. Personalisation sees people holistically in terms of their whole life, helping people develop their interests and strengths rather than seeing their mental health needs in isolation. More than that, the vision of personalisation is about having a life not a service. however realising the vision is a work in progress! personalisation in a nutshell
the personalisation ‘doughnut’ how accessible are sources of information and advocacy, transport, leisure, education, housing, health and opportunities for employment ? disability. enabling people to stay living independently in their own homes, and re-enabling them after period of distress enabling people to make their own decisions about their care and support to lead a full and independent life e.g. via Personal Budget support from friends and neighbours as well as wider community networks . Includes volunteering, peer support, timebanking
complete a Personal Needs Questionnaire develop a Support Plan get Support Plan agreed spend the personal budget (indicative budget) buy in support services live according to the budget review the plan and budget process of getting more choice and control through a personal budget
how successful are personal budgets? • 68% of recipients say their quality of life has improved since getting a PB (In Control) • better outcomes for people with mental health needs who took a Budget and slight cost saving (IBSEN) • lower uptake in mental health than other categories like learning disabilities – why?
empowers rather than stigmatises by focusing on peoples aspirations not their mental health label a chance to be really creative in meeting aspirations and needs! heightened emphasis on co-producing with communities at all stages personalisation - potential benefits for BME communities
personalisation - potential benefits for BME communities (cont’d) • can access more culturally appropriate support • more opportunities for small BME micro-social enterprises • more opportunities for BME peer support
what needs to be done to make the greater choice and control agenda a reality for BME communities? N.B many initiatives have failed to tackle the mental health inequalities faced by BME communities, as acknowledged by No Health Without Mental Health(2010)
for personalisation to work for BME communities • better knowledge around entitlements • more accessible process around Budgets • support for service users with financial arrangements of Budgets if needed • more resources to help peer support develop
what we need for personalisation to work for BME communities (cont’d) • a flourishing BME voluntary sector despite cuts • services continue to engage with service users and communities despite cuts • challenge culture of deference to professionals • reduced bureaucracy in setting up small BME community based support provision • Better understanding and respect of different value bases of BME communities
what we need for personalisation to work for BME communities (cont’d) • better integration between systems and funding streams • professionals accept being gate keepers and tackle racism and stereotypical thinking about BME communities • personal budget should offer real choice not just tokenism • good commissioning which understands local needs • less compulsory and inappropriate treatment which goes against idea of choice
are there any areas of the personalisation agenda you’d like to explore in more detail at a later date? please fill out the evaluation form with your ideas