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Sickle Cell Disease

Sickle Cell Disease. Project Title: Building Sickle Cell Disease and Leadership Capacity of Nurses in Nigeria. Name of Proposers : Grace Ogiehor-Enoma, RN, MSN, MPH, CNA, BC; Victoria Odesina, CNM, MS, APRN, APNG, CCRP & Sandra Anyoha, RN, MSN, MPH.

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Sickle Cell Disease

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  1. Sickle Cell Disease Project Title:Building Sickle Cell Disease and Leadership Capacity of Nurses in Nigeria

  2. Name of Proposers:Grace Ogiehor-Enoma, RN, MSN, MPH, CNA, BC;Victoria Odesina, CNM, MS, APRN, APNG, CCRP & Sandra Anyoha, RN, MSN, MPH

  3. Target Sector • Practicing nurses and midwives • who are in clinical, education and supervisory positions. • The benefit of this project will impact all age groups of Nigerians.

  4. Project objective, rationale, and expected contribution or impact to national development: 1) Sickle Cell Disease (SCD) knowledge and skills of nurses in Nigeria 2) leadership knowledge and skills of these nurses in healthcare advocacy, research, and policy development.

  5. Why human capacity building? • According to the WHO report of December 2005, each year 200,000 infants are born in Africa with major hemoglobinopathies out of the 300,000 worldwide. • The prevalence of Sickle Cell Trait (SCT) and SCD is between 10%-40% in Africa and Nigeria has a higher prevalence rate, 15%-30%. • In spite of the high prevalence rate of SCD in Nigeria, the health care management, support, and available resources are inadequate.

  6. Why Nursing capacity building? Nurses who make up about 80% of the total work force in the Health Sector have been found to be in need of advanced and improved forms of preventing, treating and rehabilitating People Living with the SCD. With Resolution WH57.13, the WHO Health Assembly has encouraged responses to the action on genomics and world health,

  7. Why Nursing capacity building? • the Secretariat’s suggestions for the control of genetic diseases. • Sickle cell anemia has been added to the list of public health priorities by the Assembly of African Union and there is a call to focus on the need to address sickle cell-related issues at the local, state, national and international levels.

  8. Partners/collaborators • The Nigerian Nurses Association of USA, Inc. (NNAUSA), • The Citizens for Quality Sickle Cell Care, inc (CQSCC), • Sickle Cell Support and Assisted Foundation (SCSAF) , • Faith Foundation for Disease Prevention of National Significance (FFFDP) and • The University of Connecticut Health Center (UCHC) School of Medicine, USA

  9. Consultation • Nursing and Midwifery Council of Nigeria and • Nurses Across the Borders Humanitarian Initiative

  10. Program Plan: • Train the trainer effort • The creation of Sickle Cell Disease Nursing Coordination Councils using the National Association of Nigerian Nurses and Midwives (NANNM) State Secretariats) • Use the six geographical zones

  11. Project Evaluation: The impact of the project on the participants will be evaluated immediately and six month after the workshopsin each zone. The project will last for a period of 24 months.

  12. Impact Educated, Motivated, and Committed Nurses who will mobilize others against sickle cell disease

  13. Financial gain

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