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House of Hope Brasov, Romania

House of Hope Brasov, Romania. Dr. Delia Birtar, Paediatric Project Coordinator. Begin n ings. First steps April 1992 , Hospice 'Casa Sperantei' Brasov was founded as a Romanian-British charity -home care team for adults.

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House of Hope Brasov, Romania

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  1. House of Hope Brasov, Romania Dr. Delia Birtar, Paediatric Project Coordinator

  2. Beginnings First steps • April 1992, Hospice 'Casa Sperantei' Brasov was founded as a Romanian-British charity -home care team for adults. • March 1996 The first PPC for children from Romania started as a home care servicewith a nurse and a doctor.

  3. A big development was in 2002 when we opened the new building

  4. House of Hope Brasov, Romania Adults complex services Children PC department • Home-care • In-patients unit with 6 beds • Day center • Rehabilitation service • Out-patient clinic • Hospital consultations • Study center

  5. Paediatric Team • Doctor: 1 • Nurses • 5 in-patient • 2 for HC • Nurse-assistants: 5 • Social workers: 2 • Psychologist: 1/2 • Play therapist: 1 • Physiotherapist: 1 • Driver • Spiritual coordinator: 4h/week • Volunteers

  6. Patient eligibility criteria • Age: 0-18 years • Diseases: all the diseases who fall in the 4 ACT categories • Life expectancy: not likely to reach adulthood • Referred by: • Physicians –most of them from the children hospital, but also from family doctors • Community, children‘s institutions • Family self referral

  7. Patients 2011House of Hope Brasov, Romania • N=142 • Age groups • 0-4 39 • 5-11 45 • 12-18 37 • >18 y 21 • Death: 2011 - 7 death • Place of death: a study over 12 years showed that about 80% patients died at home

  8. FundingFrom totally supported from U.K. to mainly self supported 2011 • External funding: Hospices of Hope U.K. 12% in 2011 • Local funding 88% in 2011 • grants • Public funds: health insurance, social subvention from the town hall • Fund raising events, campaigns and stands

  9. FundingFrom totally supported from U.K. to mainly self supported The local funds grew up dramatically after 2006 Dedicated fund-raising team Campaigns not only events 2% from taxes (the fiscal code allows the employees to redirect 2% of the taxes to NGOs) The good reputation built in time The public awareness's built in time The volunteers department

  10. PPC Services in Romania Hospice of Hope

  11. The national role of Hospice “Casa Sperantei • To offer a valid and complex model of care for a neglected category of patients • To set and maintain standards of care in cooperation with Health and Child Protection Authorities • To provide theoretical and practical teaching in palliative care • To promote the concept of palliative care for children on a national level through education and lobby • To act as a national resource and training center in palliative care

  12. The international outreach Education, tutoring, organizational help: Moldova Bosnia Serbia Albania Greece Bulgaria Georgia, Tajikistan etc,

  13. Organizational issues PPC for children – independent service or part of an adults-children service??? Advantages Disadvantages Stronger lobby, advocacy Children exposed to media Common management Not always similar problem Common administrative expenses Distributions of funds Larger community recognition Confusion of the scope of care Learning from adults experience Overlapping the experience Facilities for education, research Priorities for adults research … …

  14. “ When the time has come for an idea nothing can stop it” When God likes someone’s ways He will make Even his enemies into his friends

  15. Thank you www.hospice.ro

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