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The Northwest Tribal BRFSS Project

The Northwest Tribal BRFSS Project. A Project Funded by the Centers for Disease Control and Prevention. Background – BRFSS. Purpose: To assess the extent, types, and patterns of health risk behaviors present among northwest tribal peoples

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The Northwest Tribal BRFSS Project

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  1. The Northwest Tribal BRFSS Project A Project Funded by the Centers for Disease Control and Prevention

  2. Background – BRFSS • Purpose: To assess the extent, types, and patterns of health risk behaviors present among northwest tribal peoples • In 1984, the Centers for Disease Control and Prevention established the BRFSS to monitor health risk behaviors • Tribes throughout the United States have conducted these surveys

  3. Background – BRFSS • The basic philosophy of the BRFSS is to collect data that would be useful for planning, initiating, monitoring, and evaluating health promotion and disease prevention programs

  4. Study Design and Approvals • Research Protocol and Informed Consent Forms written and finalized • Randomization and recruitment of tribes with population size over 1,000, minimum of 2 tribes per state • Tribal Council and Health Board presentations and approvals. • (Portland Area and National) IHS Institutional Review Board and CDC IRB approvals.

  5. A I / A N P o p u l a t i o n 0 % - 0 . 2 % 0 . 2 % - 0 . 5 % 0 2 0 0 0 2 0 0 4 0 0 M i l e s Participating Northwest Tribes Lummi Nation Makah Tribe Nez Perce Tribe . 5 % - 1 . 7 % Nisqually Tribe 1 . 7 % - 3 . 8 % 3 . 8 % - 1 4 . 1 % N o D a t a Shoshone-Bannock Tribes N Klamath, Modoc, & Yahooskin Walla Walla, Cayuse, & Umatilla

  6. Study Methods and Design • Development of materials: • Training Manuals, • Confidentiality Statements, • Questionnaire*, • Call Back Tags, • Vouchers, • Data Base, • Health Education Campaign, • Resource List* • Pre-testing of questionnaire

  7. Basic Demographic Health Status and Health Care Utilization Exercise and Physical Activity Hypertension Awareness Cholesterol Awareness Asthma Diabetes Arthritis Tobacco Use Alcohol Consumption Demographics Disability BRFSS Questionnaire Modules

  8. Contraceptive Use Prostate Cancer Screening Colorectal Cancer Screening Breast and Cervical Cancer Screening Oral Health Cardiovascular Disease Diet and Nutrition Mental Health Household Income Level Drinking Water* Drug Use* BRFSS Questionnaire Modules

  9. BRFSS Project Personnel • Identification of a site coordinator • Advertising, hiring, and training of interviewers and data entry personnel

  10. CTUIR BRFSS Personnel Fawn HastyRhonda Scott Joey Simpson Stan Fetterhoff Carmen Wilson Dave River

  11. Klamath BRFSS Personnel Calvin Hill Bucky Hobbs Alana Lang Candi Kirk Orin Kirk Joelene MortensenRich Rose Debra Quijada Beverly Lang

  12. Lummi BRFSS Personnel Jean Cultee Judy Hottowe Regina James William John Kathleen Charles

  13. Makah BRFSS Personnel Chris Jimmicum Marie Butterfield Andrew Winck Rosina DePoe Ryland Bowechop Evelyn Greene Colleen Pendleton

  14. Nisqually BRFSS Personnel Tom Jones Jack Simmons Lila Lopeman Raymond Sanchez, Jr Marian Smith Lisa Sanders Kitten Leschi Patricia McCloud

  15. Nez Perce BRFSS Personnel Virginia Feeley Lorena Rogers Frank Henry Leroy Seth Freida Ellenwood Pete Wilson Richard Zender Laura Lozon

  16. Shoshone-Bannock BRFSS Staff Shirley Alvarez Inez Wenee Candace Yokoyama Sheryl Slim Jim Cutler Nellie Broncho Sheila Taggart Burdett Osborne

  17. Study Methods and Design • Random selection of participants from the tribal enrollment list of tribal members (or service users) 18 years of age or older • One week Interviewer and one day data entry training • On-going follow-up and quality assurance (daily, weekly f/u)

  18. Study Methods and Design • Face-to-face interviews of at least 300 tribal members or service users, each interview lasting approximately 30 minutes to complete • Data entry and file transmission using SURVEY and Hotmail • Data editing, recoding, and statistical analyses using SPSS

  19. Privacy and Confidentiality

  20. Privacy and Confidentiality • Each site coordinator and interviewer signed confidentiality statements during training • Each respondent was informed they were free to decline participation and/or refuse to answer any question(s) when completing the informed consent form and during the interview • No personally identifying information was collected, each questionnaire was assigned a unique number

  21. Privacy and Confidentiality • Any documents with information were handled in sealed envelopes and turned in to appropriate people as soon as possible • Completed questionnaires and informed consent forms kept in locked file cabinet • Only site coordinator had access to list of randomly selected individuals. All tracking forms shredded. • No individual identified on any report (group results only)

  22. Community Capacity Building

  23. Community Capacity Building • Computer systems, printers, and software programs to each participating tribe • Software includes MS Office Professional 2000, SURVEY, and SPSS • Interviewer training for tribal members, community open forums • Data entry and computer training for tribal members (SURVEY, internet), database for mailing lists • Computer training for site coordinators including SURVEY, PowerPoint, and SPSS

  24. Community Capacity Building • For tribes to fully ‘own’ the data, Epi101 training (numerator, denominator, confidence intervals, etc.) • Data for Decision Making (CDC) • RPMS data analysis (queries) • 5- to 10- year health plans • Trend data analyses (2 sites) • Reference materials (volumes, manuals, books)

  25. For more information: Francine C. RomeroEpidemiologist Telephone: 605/ 721-1922 E-mail: epiromero@aatchb.org

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