SB 468 Self-Determination

1. SB 468 Self-Determination Gabriel Rogin Executive Director, Area Board 5 State Council on Developmental Disabilities gabriel.rogin@scdd.ca.gov

2. What is SCDD? • Independent State agency • Established by: • Federal & State law • Composed of: • State Council • 31 Governor-appointed members • 13 Area Boards (Regional Offices) • Located throughout California

3. Our Goals • Independence • To have control of your life; make your own decisions and choices • Productivity • To work or make other contributions to a household or community • Integration • Right to the same opportunities, services, community resources as all other Americans • Inclusion • To fully participate, be welcome in social, educational, work and community life

4. What is Self-Determination “Self-Determination” means a voluntary delivery system consisting of a defined and comprehensive mix of services and supports, selected and directed by a participant through person-centered planning, in order to meet the objectives in his or her IPP. Self-Determination services and supports are designed to assist the participant to achieve personally defined outcomes in community settings that promote inclusion.

5. Background • Increased choice, flexibility and control • Increased access for underserved communities • Reduced bureaucracy/Increased transparency • 29 other states have SD in place • California pilots demonstrated increased: • satisfaction • innovation • cost-effectiveness

6. Implementation • Contingent upon federal waiver • Phased in over 3 years (2500 participants statewide, including existing pilots) • Nearly all individuals with IPP through regional centers can eventually participate • Voluntary – Enter/Exit at almost any time

7. Individual Budgets • Remains within IPP process • Previous 12 months of POS expenditures • I.D. Team can make changes to budget, if necessary • Uniform budget categories • New or generic services, hiring workers, etc. • Only services eligible for Federal Financial Participation

8. Proposed Services Advocacy Services Behavioral Intervention Services Communication Support Community Integration and Employment Supports Community Living Supports Crisis Intervention and Support Dental Services Environmental Accessibility Adaptations Family Assistance and Supports Financial Management Service Home Health Aide Homemaker Housing Access Supports Independent Facilitator Individual Training and Education Integrative Therapies Lenses and Frames Live-In Caregiver Nutritional Consultation Optometric/Optician Services Participant-directed Goods and Services Personal Emergency Response System Psychology Services Respite Skilled Nursing Specialized Medical Equipment and Supplies Specialized Therapeutic Services Speech, Hearing and Language Services Technology Training and Counseling Services for Unpaid Caregivers Transition/Set-Up Expenses Transportation Vehicle Modifications and Adaptations

9. Independent Facilitators • Selected and paid for by participant • Can’t provide other services • Assist in IPP development, including the identification of service providers • Regional center case manager is an option

10. Financial Management Service • Vendored by regional centers – paid for by individual budget (except background checks) • Manage/direct funds • Ensure that funds are not overspent • Accounting/taxes/employment laws • Verify service provider qualifications • Monthly budget updates

11. Oversight • Background checks required for non-vendors • Oversight locally and statewide (State Council, Disability Rights California and community) • DDS reports to legislature

12. Local Advisory Committees • One for each Regional Center • Monitors the SD Program • Makes recommendations • Area Board and RC each appoints half

13. Five Questions to Ask Yourself 1. Do you have a complicated set of services?

14. Five Questions to Ask Yourself 2. Have you had a lot of denials, conflicts with RC or fair hearings?

15. Five Questions to Ask Yourself 3. Have you lost services due to budget cuts and changes to the Lanterman Act?

16. Five Questions to Ask Yourself 4. Do you need or want unique services not typically offered by Regional Centers?

17. Five Questions to Ask Yourself 5. Do you want to start a business, get good work training or get a good paying job?

18. And Finally… Are you READY to take on the RESPONSIBILITY?? ???

19. What to do now • Think strategically • Ask for all of the services you need now • Go to fair hearing when denied • Learn and share what you know Dear Regional Center, I need X,Y and Z services. Yours Sincerely,

20. Common Questions • Can I move money around in my budget? Only 10% from one category to another. • What happens if I move to a different regional center? You can stay in Self-Determination.

21. Common Questions, cont’d • What if I want to leave the Self-Determination Program or I become ineligible for some reason? You can go back to traditional services. • If I leave Self-Determination by choice can I return? Yes but you must wait 12 months.

22. Common Questions, cont’d • What if I disagree with regional center about my eligibility or the amount of money in my budget? You can appeal the decision.

23. Additional Questions • What orientation/training for will be available for participants? • How will regional center caseload size impact service planning and delivery? • Will Self-Determination increase access for underserved communities?

24. Disability Rights California: www.disabilityrightsca.org The Center for Self-Determination: www.centerforself-determination.com Senate Bill 468: www.leginfo.ca.gov The Autism Society of Los Angeles: www.autismla.org Resources