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PARENTS WITH DISABILITIES

PARENTS WITH DISABILITIES. What UCEDDs Can Do to help. PRESERVICE PREPARATION. Integrate information into every discussion of families and disability in any class

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PARENTS WITH DISABILITIES

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  1. PARENTS WITH DISABILITIES What UCEDDs Can Do to help

  2. PRESERVICE PREPARATION Integrate information into every discussion of families and disability in any class Future teachers need to realize that parents with disabilities may have had difficult school experiences and need sensitive outreach Social workers need information about disability culture, including concepts like least dangerous assumption, dignity of risk, self-determination Health professionals need accurate information, as they may be the first people parents encounter

  3. SERVICE—Community Education • WEBINARS about serving parents with disabilities • SABE/Autism Now (CDCI—VT) • Continuing Education for Nurses (CDCI—VT) • Family Support 360 Projects (CDCI—VT) • AAIDD (Kennedy Krieger—MD)

  4. SERVICE—Community Education • PARENT TRAINING • PACT at Kennedy Krieger (MD)—Center based program for parents and their children, Growing Together. • Building Foundations—training (Kennedy Krieger) • Assisting Prevent Child Abuse VT in adapting Nurturing Parent Program (CDCI—VT) • Safe Care, Curriculum developed by John Lutzger, GA State • Step by Step Child Care; Family Game—materials by Maurice Feldman • Health and Wellness, Alexander Tymchuk • Supporting Families When Parents Have Disabilities, Cathy Haarstad, ND UCEDD

  5. SERVICES—Community Education • TRAINING FOR COMMUNITY PROFESSIONALS • Workshops for Child Protection workers (CDCI, Kennedy Krieger, Minnesota) • Workshops for Developmental Services (CDCI, Kennedy Krieger, Minnesota) • Training for Communication Support Specialists (CDCI) • Training for Parenting Assessment Team (CDCI) • TASH Tech on Supporting Parents with Disabilities (Kennedy Krieger and CDCI) • Training for South Dakota on Supporting Parents with Disabilities (CDCI)

  6. SERVICES—Community Education • TRAININGS FOR COMMUNITY PROFESSIONALS STILL NEEDED: • for public defenders • for guardians ad litem • for judges • for home visitors • for doctors and nurses, especially in maternity wards • Others??

  7. SERVICES—Technical Assistance Consultation to lawyers: Competence-Based Parenting Assessments, Sage Haven Center (with t.a. from CDCI, VT) Expert witness testimony in court VermontCommunication Support Project (now located at DRVT)

  8. SERVICES—Direct Services • Family Support 360 Projects • Paul V. Sherlock Center, Rhode Island (John Susa) • Green Mountain Family Support Project, CDCI—VT)

  9. RESEARCH Research on parents with disabilities and child welfare laws (Elizabeth Lightfoot and Traci LaLiberte, University of Minnesota), Guide to Creating Legislative Change, (influential in creating model legislation in Idaho) Demographic research on parents with disabilities (University of Minnesota) Assistance with National Council on Disabilities 2012 report, Rocking the Cradle: Ensuring the Rights of Parents with Disabilities (Robyn Powell), with interviews from Elizabeth Lightfoot (UMN), Bernadette Irwin (Kennedy Krieger), Susan Yuan (CDCI—VT)

  10. RESEARCH Forensic evaluations (Competence-Based Parenting Assessments) Meta-analysis of 10 years of data from over 60 parenting assessments (underway) (Sage Haven and CDCI) Other?? (So much more…)

  11. INFORMATION DISSEMINATION Creation of new international organization, TASP, The Association for Successful Parenting: Enhancing the Lives of Families when Parents Have Learning Difficulties (founding board members from Kennedy Krieger, Sherlock Center, CDCI, Minnesota, ND UCEDD TASP Conferences (with organization and assistance from UCEDDs above, but particularly by Kennedy Krieger center) Numerous conference presentations: AAIDD, AUCD, TASH, SABE and regional conferences in Canada, Connecticut, Massachusetts, Oklahoma

  12. INFORMATION DISSEMINATION Information assisted changes in public policy in CAPTA Reauthorization (CDCI) Information assisted changes in Idaho Child Welfare law (Minnesota) Information assisted changes in Vermont regulations for Child Welfare, and mandated a legislative study Information assisted in the preparation of National Council on Disability Report

  13. WHAT HAVE YOU BEEN DOING?? Please fill in information we have missed on your work with parents with disabilities!

  14. WHAT ELSE CAN UCEDDS DO?? Please add to the agenda for this work!

  15. LEARN MORE ABOUT TASP Please list your e-mail to get more information.

  16. ATTEND THE NEXT TASP CONFERENCE! OCTOBER 1-3, 2013 Mystic, Connecticut

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