Sharon Cansdale GSF Facilitator

1. Gold Standards Framework in care homes Sharon Cansdale GSF Facilitator

2. Key Factors with end of life care of elderly • Multiple co-morbidities. • Increasing memory loss/dementia. • Difficulty predicting prognosis • Difficulty predicting dying phase • Complex social/health factors • Need protection from over intervention; trolley deaths, DNAR.

3. Context in care homes • Half a million people live in care homes-about 1% of the population. • Approx 20% people die in care homes 86% all deaths over 60 - 51% in people over 80 • For every NHS bed there are 3 care home beds • The sector employs about 1.2 million people • Education alone in care homes does not work – needs change management skills to embed new system plus supported learning (Froggatt et al)

4. Key Challenges • Crises out of hours • Residents being sent into hospital without a visit. 999 • Drugs and equipment availability • Residents/family expectation • Access to education and training • Clarity of what CH can offer • Lack of confidence

5. DH End of Life Care StrategyJuly 08 ‘Inadequate training of staff at all levels within care homes, sheltered housing and extra care housing sector…is considered to be the single most important factor’ • Factors leading to suboptimal care; • Lack of ACP • Inadequate recognition and holistic assessment • Death Concerns • Impact on other residents • Inadequate access to NHS services • Inadequate medicine reviews • Training

6. The GSF Care Homes Training Programme Goals 1. To improve the quality of end of life care 2. To improve collaborationwith primary care and palliative care specialists 3. To reduce hospitalisation- and enable more to live and die at home

7. What is the Gold Standards Framework? • System of care that promotes one GOLD standard of care for ALL people nearing the end of their life • Modified version of primary care Gold Standards Framework (GSF) • 4 main aims • 1. Improve quality of care for patients nearing the end of their lives • 2. Improve the coordination and collaboration with GP’s and Primary Health Care Teams • 3. To reduce the numbers admitted to hospital in the last stages of life • 4. To share learning with key suggestions in improving end- of-life care in care homes

8. C1 Communication Supportive Care Register, MDT Meetings, information Advanced care planning (ACP) e.g. Preferred priorities of care (PPC) C2 Co-ordination Identified co-ordinator for GSF, key worker for patient C3 Control of Symptoms Assessment tools, guidelines, Specialist Palliative Care Team (SPCT) C4 Continuity Handover form, Out Of Hours protocol, liaison C5 Continued Learning Learning about conditions seen, audit, Significant Event Analysis, reflective practice C6 Carer Support Practical, emotional, bereavement C7 Care in dying phase Liverpool Care Pathway for the Dying Patient (LCP) GSF: The 7 Key Tasks (7 Cs)

9. 3 stage training programmePreparation, training, consolidation + accreditation      Final Appraisal GSFCH Accreditation Workshop 3 Workshop 4 Awareness Raising Meeting Enrolment of Care Homes Local Coordinators Meetings Workshop 2 Workshop 1 ADA Before Ongoing ADA ADA After

10. Getting going Coding, Register Review Meeting, Coordinator Role Moving on Advanced care Planning Assessment of symptoms Out of hours continuity 3. Gaining Speed Education and reflection Carers, family, residents and staff support including Bereavement 3. Care in Final days 4. Cruising Sustaining Embedding Extending - accreditation Training workshops Four Gears

11. GSF Coding of Residents in the Care Home A B C D

12. Benefits for residents and relatives • Better care toward the end of life • A better death in accordance with their and their families wishes • Fewer crisis or hospital admission • Encourages proactive care with better advanced care planning • Better symptom control • Attention to psychological, social and spiritual needs • Earlier discussion, more information and greater support given to family • Access to effective out of hours care

13. Benefits for Care Home • Improve care for residents • Improves job satisfaction, clinical skills and knowledge • Greater confidence when dealing with other health professionals • Fewer residents going to hospital in last stages • Receive training, support and resources • Improve teamwork, both in practice and across teams • Raise the profile of care home for palliative care in area

14. 20 Key standards- Accreditation checklist Leadership + support Team-working Documentation Planning meetings GP Collaboration Advance Care Planning Symptom control Reduce hospitalisation DNAR +VoD policies Out of hours continuity Anticipatory prescribing Reflective practice+ audit Education + training Relatives Care in final days Bereavement Dignity Dementia Spiritual care Sustainability

15. Successes using GSF • 1 Attitude awareness and approach – • Better quality of care perceived • Greater confidence and job satisfaction • Immeasurable benefits – communication, teamwork, roles respected. • Focus and proactive approach. • Patterns of working, structure/processes • Better organisation and consistency of standards, even under stress • Fewer people slipping through the net – raising the baseline • Better communication within and between teams, co-working with specialists • Better recording, tracking of patients and organisation of care • Patient Outcomes • Reduced crises/hospital admission/length of stay • More residents dying in place of their choosing • More recorded advanced care planning discussions

16. For more information on GSF • National GSF centre – Walsall Judy Simkins GSF administrator. judysimkins@wallsall.nhs.uk Tel 01922 604666 Website. www.goldstandardsframework.nhs.uk NHS End of Life Care Programme www.endoflifecare.nhs.uk