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Patients and the Web Better NHS services with linked data

Patients and the Web Better NHS services with linked data. Frank Sullivan NHSTayside Prof. of R&D in Primary Care Health Informatics Centre Dundee. Dundee. Edinburgh. Outline of talk. How are health data linked in Scotland? What services does that enable? Do patients benefit

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Patients and the Web Better NHS services with linked data

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  1. Patients and the Web Better NHS services with linked data Frank Sullivan NHSTayside Prof. of R&D in Primary Care Health Informatics Centre Dundee

  2. Dundee Edinburgh

  3. Outline of talk • How are health data linked in Scotland? • What services does that enable? • Do patients benefit • Making access easier • Multi-agent systems

  4. 64% of adults access the Internet Adults who have used the Internet in the 3 months prior to interview in October 2005 (GB )National Statistics Omnibus Survey 2005

  5. How often, if at all, do you personally use the internet?

  6. Health Use Internet • Have used for this purpose • Health-related information 34% • Is there anything which you havepersonally never used the internet to do but which you would like to? • Get medical information/advice 7% MORI 2005

  7. GP Lab Data Screening Opticians HospitalSMR Investigations PAMS Eye van Pharmacy Data, Data everywhere

  8. Community Health Number 07 10 6402 50 Serial No DOB Sex Check

  9. Linking Data for Seamless Care Opticians Lab Data PAMS CHNo Pharmacy Hospital Eye Van Screening Investigations

  10. Remote Interrogation GENIE Generic Import and Export Erroneous Data Data In Standard Format == ‘Clean’ Data Previous Export Data For Export Regional repository GP Clinical Systems Currently operational in Tayside, Glasgow and Lothian

  11. NHSTayside ICT DepartmentCommunications Infrastructure Health Board Sites Acute Trust Sites 5 Sites 300 Clients 3 Hospitals 3000 Clients Primary Care Trust Sites 20 Hospitals 700 Clients NHS Tayside I & CT Department 76 General Practices 1000 Networked PCs Local Authority Perth & Kinross Angus Dundee North-East Fife Firewall Other Trusts & Boards Firewall SchlumbergerSema Mainframe Services NHSNet The Internet

  12. Web Services • a standard means of interoperating between different software applications, running on a variety of platforms and/or frameworks.

  13. Patient Summary for clinicians

  14. Summary for patients • NHSTayside IT for managed clinical networks • DARTS • HEARTS

  15. Available results reduce visits

  16. How easy or difficult is it for you to get access to the internet?

  17. Health Use Internet • Have used for this purpose • Health-related information 34% • Is there anything which you havepersonally never used the internet to do but which you would like to? • Get medical information/advice 7% MORI 2005

  18. Seniors Seeking Health Information Need Help Crossing "Digital Divide" Voelker R JAMA. 2005;293:1310-1312.

  19. Multi-agent Systems in Development • Patients’ electronic rights represented and protected by their agents • Agents interacting on behalf of patients with electronic systems including web services, databases, and agents representing other individuals, organisations and functions. trials Data? collator GP surgery Anonymised Data? History patient agent Access? hospital audit + regs Logs Suitable? Web service: Trials list Trials other stakeholders…

  20. Record linked data and the web enables the Information Revolution in health care Ferguson T, Inverting the power Pyramid, Consumer Health informatics, Healthcare Forum, 1995

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