Utah Developmental Disabilities Council 1971 - 2011

1. Utah Developmental Disabilities Council1971 - 2011 Looking Back, Moving Forward: 40 Years of Advocacy

2. 2011 Council Members • Adina Zahradnikova Director of the Disability Law Center • Amy Thompson Weyrich Citizen Family Member: Salt Lake City • Andrew Riggle Citizen Member: Salt Lake City • Bill Young Director of the Utah Statewide Independent Living Council

3. 2011 Council Members • Bryce Fifield, PhD: Director of the Center for People with Disabilities - Logan • Clarissa Crisp: Family Citizen Member - Herriman • Deborah Bowman Family Citizen Member – North Salt Lake • Don Uchida: Director of Vocation Rehabilitation • Eder Soriano: Citizen Member - Ogden

4. 2011 Council Members • Elsie Dee: Citizen Family Member – Montezuma Creek • Eric Stoker: Citizen Member – West Jordan • Holly Williams: Children with Special Health Care Needs • James O’Neill: Citizen Member – Park City • Jane Tuttle: Citizen Family Member – West Valley City • Jeanie Pettit: Director of West Jordan Care Center

5. 2011 Council Members • Jennie Gibson: Assoc. Director of the Utah Parent Center • Jennifer Kuhn: Citizen Family Member - Lehi • Kristen Hone: Citizen Member – West Jordan • Lee Stephens: Treasurer, Citizen Member - Bountiful • Glenna Gallo / Christene Timothy: Department of Education

6. 2011 Council Members • Lenny Jones: Citizen Member - Provo • Nels Holmgren: Director of the Division of Aging • Nevah Stevenson: Citizen Family Member - Draper • Reed Hahne: Citizen Member - Orem • Rep. Paul Ray: Legislative Member - Clearfield • Paul Smith: Interim Director of the Division of Services for People with Disabilities

7. 2011 Council Members • Robert Bucciere: Neurobehavior H.O.M.E. Program at the University of Utah • Sen. Pat Jones: Legislative Member - Salt Lake City • Sherri Dial: Chairperson, Citizen Family Member – Santa Clara • Suzanne Smith Utah Down Syndrome Foundation • Tom Brownlee: Citizen Member – Eaglemountain

8. 2011 Council Members • Tonya Hales / Glen Larsen: Medicaid • Trevor Spackman : Citizen Family Member – Sandy • Troy Justesen: Citizen – Orangeville • Valarie Tanner: Citizen Member - Vernal

9. Current Council Staff • Claire Mantonya: Executive Director • Frank Long: Contracts and Finance • Bonnie Martineau: Administrative Assistant • Mark Smith: Access Utah: Information Specialist

10. The Purpose of the Council… …is to provide an advocacy voice, …promote the development of services and supports within the community, …and to support changes to the system that will better support people and families in community settings.

11. The Mission of the Utah DD Council….. .is to be the state’s leading source of critical, innovative, and progressive information, …advocacy, leadership and collaboration …to enhance the lives of individuals with developmental disabilities.

12. Changes Promoted Through the Work of the Council  Living Arrangements  Our community has gone from living in large congregant settings to much smaller individualized homes – to even owning one’s own home!

13.  Living Arrangements Projects • Weber County Arc: Alternative Living and Training Arrangement • Trail, Inc.: Nephi – Planning for Community-Based Housing for Persons in Three Central Utah Towns • Columbus Community Center: Supervised Apartment Living for DD Adults

14.  Living Arrangements Projects • Project TRI: Transition to Residential Independence – Utah County • Washington County Arc: Supervised Apartments for St. George • University of Utah: Residential Curriculum for Individuals Who are Profoundly, Severely, & Moderately Handicapped (Note – language has certainly changed over the years, too!)

15.  Living Arrangements Projects • Moab Regional Council Project: Residential Services, Inc. • Association for Independent Living: Critical Housing Needs and Access Program • Transitional Living Center: Salt Lake City • Genesis Services • Assist, Inc. : Accessibility Guidelines • HomeChoice Loan Program

16. Educational Opportunities Funded by the Council… Expanded Programming For All Ages!  Early Intervention • Primary Children’s Infant Stimulation Project • State Training School: Activity Therapy Centers • Provo School District : Diagnosis, evaluation, therapy, & training for pre-school children • Salem – Mt. Loafer Elementary School’s Inclusion Project • Wendover Head Start

17.  Recreation: After School/Summer/Other • United Cerebral Palsy: recreation & leisure events in the community • Wasatch School District & Arc: summer recreation • Five County TMR Group Home: Cedar City recreation project

18.  Recreation: After School/Summer/Other • Columbus Community Center: Therapeutic Recreation Skills • Four-County Parents Group (Southwest Utah): Physical Education Skills • Consortium of Groups in Price: Handicapped Swimming Project • TRAILS: Teaching Recreation & Independent Living Skills U of U Department of Recreation and Leisure, College of Health

19.  Recreation: After School/Summer/Other • YWCA: Therapeutic Recreation • Active Re-entry: Eastern Utah Accessible Recreation Guide • BEST BUDDIES: Chapters started around the state • Utah Schools for the Deaf & Blind: Family Camps • Millard County Family Council: Summer Enrichment

20. Council Funded  Therapy/Behavior Demonstration Projects • Multiple Handicapped Training Center: social & family counseling, recreation, and occupational therapy • Utah Arc: Human Sexuality Training system for parents of MR • Utah Division of Health: Nurse Training • Division of Health, Handicapped Children’s Services: Developmental Physical Therapy Services in Rural Utah

21.  Therapy/Behavior Demonstration Projects • Copper Mountain Mental Health: services to DD Children and Families • Children’s Behavior Therapy Unit: Salt Lake Mental Health • Epilepsy Association of Utah • Children’s Behavior Therapy (1981): Utah Children’s Autism Project

22.  Therapy/Behavior Demonstration Projects • Project Turn: Behavior Management and Home-Based Instructions for Parents with Autistic Children • Children’s Behavior Therapy Unit (CBTU): Peer Support

23. Council Funded Parent Education • Mental Retardation Association of Utah (MRAU): Statewide advocacy demonstrating both rural and urban areas • Epilepsy Association of Utah: Statewide epilepsy education aiding parents • Exception Child Center: Utah State Center for Persons with Disabilities – Parent Education

24. Council Funded Parent Education • New Hats: Parent Education • Avatar – Ogden: Support Training for Parents with DD • Utah Tourette Syndrome Association: Educational Strategies Workshop for Teachers and Parents

25. Council Funded Transportation/Demonstration Projects • T.H.E. VAN, Inc.: Transportation of Handicapped in Salt Lake County • Uinta Basin Transit Authority: Bus service between Duchesne and Vernal (started May 2011!)

26. Council Funded  Respite Demonstration Projects • USU: Respite Training in Rural Areas • Utah County Arc: Utah County Respite Care • Bear River Mental Health Services: Respite Care and Family Support Program • South Sanpete School District: Respite Care: A Team Approach • DSPD: Respite fund training for parents

27. Council Funded Respite Projects • U of U: Gerontology Center – Needs Assessment of Aged Caregivers of Aged DD/MR Persons • Division of Health: High Risk Register • Newborn Screening Questionnaire

28. Council Funded Person-centered Services Demonstration Projects • San Juan Vocational Transition Center • DSPD: Older Adult Project, Client-Centered Services • Utah Independent Living Center: Social Skills Development through Leisure Education • OPTIONS for Independence:CreatAbility Players

29. Council Funded Person-centered Services Demonstration Projects • Asian Association of Utah: English as a Second Language Program for Disabled Adults

30. Council Funded Training Professionals Projects • U of U School of Medicine: Development of Disabled Patient Curriculum Component for Physician Assistants in Utah • Salt Lake Rape Crisis Center: Victims with Disabilities • Utah Head Injury Association: Traumatic Head Injury Prevention Education

31. Council Funded Training Professionals Projects • Newborn Hearing Screening in Utah’s Small and Rural Hospitals • Weber State: Dental Hygiene Program • USU Center for Persons with Disabilities: Statewide Information and Referral Project – ACCESS UTAH

32.  Council Funded  Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects • Alpine School District: sheltered workshop • Weber Vocational Workshop • Box Elder County School District & Brigham City Adult Day Care & Learning Center • Utah Alliance for the Mentally Ill: ALLIANCE HOUSE

33.  Council Funded  Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects • Cache Industries: Supported Employment • Utah Arc: Transitional Family to Family • Millard School District: Transition Project • Easter Seals: Job Start • Family Support and Treatment Center: Child Abuse Prevention and Recognition in Day Care Settings

34.  Council Funded  Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects • Brain Injury Association of Utah: Return to Work • Community Employment Placement Program (Vernal): Training Able Young Adults for White Collar Work • Volunteer Center of the Greater Salt Lake Area: Opportunities for People with Disabilities to Volunteer

35.  Council Funded  Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects • Salt Lake Community College: TEAMWORK / Employment • Utah Assistive Technology Program • Utah Works

36.  Council Funded  Developing Leadership and Advocacy Skillsfor Family and Individuals • Legislative Coalition for People with Disabilities (LCPD) • Partners-In-Policy Making • People First • The Grassroots Advocacy Partnership (GAP) • Disability Community Alliance

37.  Council Funded  Developing Leadership and Advocacy Skillsfor Family and Individuals • Legal Services for the Developmentally Disabled, Inc. (Disability Law Center): Legal Advocacy • Tooele County Arc • Salt Lake County Arc: People First • Utah Arc: Volunteer Advocacy for Residents of ICF/IDs

38.  Council Funded  Developing Leadership and Advocacy Skillsfor Family and Individuals • Work Activity Center: Parent Education Project • Utah Navajo Development Council: Blanding • Mental Retardation Association of Utah (MRAU): Advocacy • 1989 – USU – Director of the LCPD: Marilyn Call

39.  Council Funded  Developing Leadership and Advocacy Skillsfor Family and Individuals • Uintah Basin Disabilities Council: Vernal • Utah Parent Center: HOPE – A Parent to Parent Network • Disability Law Center: Parent Guide to Inclusion and IDEA • Native American Self-Advocacy Project

40. 2011 Marks the 40th Year of the DD Council in Utah. A small group of dedicated people have changed countless lives of families and individuals with disabilities forever…

41. When we look back on the progress we have made since 1971…. What will move us forward into the next 40 years? What will people with disabilities lives look like in 2051?

42. Let’s move forward together to make things happen!  