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Health Literacy for the Consumer Mary Klatt, M.A.L.S. What we will cover What is “Health Information?” Where can the public get health information Types of questions Ethical & legal aspects Core print collection, weeding Core websites Evaluating Internet resources Health-E Illinois
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Health Literacy for the Consumer Mary Klatt, M.A.L.S. Loyola University Health Science s Library
What we will cover • What is “Health Information?” • Where can the public get health information • Types of questions • Ethical & legal aspects • Core print collection, weeding • Core websites • Evaluating Internet resources • Health-E Illinois Loyola University Health Science s Library
Goals Participants will be able: • To identify primary consumer health resources • To locate information on diseases, drugs, and other medical topics. Be introduced to basic print and Internet websites • To evaluate websites that contain health information • To find services and providers in the state of Illinois by disease, condition or location Loyola University Health Science s Library
Health Information… what does that mean? Loyola University Health Science s Library
Health Information means… KNOWLEDGE • Warning signs • Do I need to see a doctor? • How can the doctor help me? Loyola University Health Science s Library
Health Information means… EMPOWERMENT • Medication: • Why am I taking this? • How will this help me? Loyola University Health Science s Library
Health Information means… INVOLVEMENT • I have a say in my healthcare • I can help keep myself safe from medical error. • I can make informed decisions Loyola University Health Science s Library
Definitions • Consumer Health Information “Information on health and medical topics provided in response to requests from the general public, including patients and their families.” • Patient Education “…a planned activity, initiated by the health care professional, whose aim is to impart knowledge, attitudes and skills with the specific goal of changing behavior, increasing compliance with therapy and, thereby, improving health.” http://caphis.mlanet.org/resources/caphis_statement.html Loyola University Health Science s Library
Definitions • Health Information literacy “The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.[‘ http://www.healthypeople.gov/Document/HTML/Volume1/07Ed.htm Loyola University Health Science s Library
Types of Questions I need information on: • A disease or condition • Medical tests / Medical procedures • Medication/drug information • Utilization of health care services • Newspaper article or report (television, radio) Loyola University Health Science s Library
Where can I get health information? • Doctor • Nurse • Clinic Loyola University Health Science s Library
What about the Internet? • Yes, but… • Evaluate the information you find • Be sure you are getting GOOD information Loyola University Health Science s Library
What makes good information? • Authority • Quality • Trustworthy • Evidence • Unbiased • Private Loyola University Health Science s Library
Authority • Who wrote this? • Do I know they can be trusted, or do they just say they can be trusted? Loyola University Health Science s Library
Quality • Is someone backing this up? • School, Clinic or Government? • How new is this information? Loyola University Health Science s Library
Trustworthy • Too good to be true? • Confusing “scientific” language? • Only site making this claim? ? Loyola University Health Science s Library
Evidence • Is there Proof? • Can I trust it? Loyola University Health Science s Library
Unbiased • Selling me something? Loyola University Health Science s Library
Private • My health information should be private • Is there a privacy policy? Loyola University Health Science s Library
What if I’m not sure? • Ask your doctor or nurse Loyola University Health Science s Library
Useful Internet resources: • Where do I begin? Loyola University Health Science s Library
MedlinePlus www.medlineplus.gov • Safe, trustworthy information • From the U.S. Government • More detailed information Loyola University Health Science s Library
NIH Senior Health www.nihseniorhealth.gov • Information for older adults from the U.S. National Institutes of Health Loyola University Health Science s Library
KidsHealth www.kidshealth.org • Easy-to-understand • Information for kids, teens… • and their parents Loyola University Health Science s Library
Cancer.gov • http://www.cancer.gov • Types of cancer • Treatments and clinical trials • Screeing and testing • Cancer statistics Loyola University Health Science s Library
Federal Drug Administration • www.fda.gov • Food – safety, allergens, food bourne illness • Drugs – regulations and drug information • Medical Devices – Choosing a device, problems with devices, recalls • Biologics – vaccines, tissues, gene therapy Loyola University Health Science s Library
Centers for Disease Control • www.cdc.gov • Diseases & Conditions • Healthy Living – immunizations, smoking prevention, exercise • Emergency preparedness – bioterrorism • Environmental Health • Traveler’s Health • National Center for Health Statistics Loyola University Health Science s Library
KidsHealth www.kidshealth.org • Easy-to-understand • Information for kids, teens… • and their parents Loyola University Health Science s Library
Healthy Web Surfing • Source • Quality • Be skeptical • Currency • Site purpose • Privacy Questions/concerns to health care professional Loyola University Health Science s Library
Health-E Illinois Go Local: A National Library of Medicine Project Loyola University Health Sciences Library June 1, 2007 Loyola University Health Science s Library
Overview • "Go Local" links accessed from MedlinePlus health topic • web pages enable a user to find related health service • providers in their area. • MedlinePlus Breast Cancer page will direct users to Cancer • Clinics, Oncologists, Support Groups, etc. on the local state site • {Health-E Illinois}. • Services include hospitals, physicians, nursing homes, support • groups, health screening providers and many others. Loyola University Health Science s Library
Access directly from MedlinePlus Loyola University Health Science s Library
Health Information + Local Resources • MedlinePlus • NIH consumer literature • News • Nutrition • Directories • MEDLINE search • ClinicalTrials.gov • Genetics Research • Statistics • Financial Issues • Health-E Illinois • Featured Site • Search Functions: • Location • Health Care Providers • Programs and Facilities • Services for Diseases and • Health Issues • Topics + Loyola University Health Science s Library
Go Local Nationally 18 states active 8 in projects in development Loyola University Health Science s Library
Health-E Illinois Loyola University Health Science s Library
Welcome Search by Location Loyola University Health Science s Library
Search by Providers, Facilities, and Services Loyola University Health Science s Library
Topic Search Loyola University Health Science s Library
Results Loyola University Health Science s Library
Results Loyola University Health Science s Library
Contents 5,750 Records Loyola University Health Science s Library
Contents • 740 Health Topics • Diabetes, Cancer, Senior Health, etc… • Condensed for simpler indexing. • 161 Service Terms • Facilities, People, Programs • Blood Banks, Allergists, Health Screenings, etc… Loyola University Health Science s Library
Assigning Terms Service Term > Topic Term Advocacy > Autism Health Education Programs > Autism Referral Services > Autism Support Groups > Autism Loyola University Health Science s Library
Translating into results Advocacy > Autism Health Education Programs > Autism Referral Services > Autism Support Groups > Autism Loyola University Health Science s Library
Sources • Professional Associations • Government Funds Recipient Lists • Illinois Department of Public Health • HealthInfo Central Illinois Database • Commercial Directories • Homegrown lists from hospital referral services Loyola University Health Science s Library
http://library.luhs.org/GoLocal/ Loyola University Health Science s Library
Health-E Illinois • http://medlineplus.gov/illinois Loyola University Health Science s Library